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# Bleeding Disorders Foundation of Florida

Bleeding Disorders

## Posts

- [Gainesville Clot Trot](https://bleedingdisordersfl.org/gainesville/) - CLICK THE IMAGE BELOW TO REGISTER OR DONATE! DEPOT PARK IS LOCATED AT 200 SE DEPOT AVENUE 11:30 AM: ONSITE REGISTRATION OPENS 12:30 PM: CLOT TROT WALKERS LEAVE AWARDS CEREMONY WHEN EVERYONE TROTS BACK AWARDS FOR TOP FUNDRAISERS, MOST SPIRITED, AND BEST GATOR GEAR
- [Tampa Superhero Fun Walk](https://bleedingdisordersfl.org/tampa/) - CLICK BELOW TO REGISTER!
- [BDFF SUMMER NEWSLETTER 2020](https://bleedingdisordersfl.org/hfgf-summer-newsletter/) - CHECK OUT WHAT'S HAPPENING AT BDFF AND READ THE 2020 SUMMER NEWSLETTER BY CLICKING BELOW. BDFF_SummerNewsletter2020
- [Program Form](https://bleedingdisordersfl.org/programform/)
- [Voices of BDFF: Leanne Buchanan](https://bleedingdisordersfl.org/voices-of-hfgf-leanne-buchanan/) - Leanne Buchanan, Bleeding Disorders Foundation of Florida (BDFF) Outreach and Education Nurse Resides: Winter Springs Hometown: Sanford Involvement with BDFF: One year Florida native Leanne Buchanan joined the ranks of the BDFF as Outreach and Education Nurse last August and hit the ground running. New to working
- [A Copay Accumulator Story](https://bleedingdisordersfl.org/a-copay-accumulator-story/) - People in the bleeding disorders community face many challenges, not least of which is dealing with the financial burden of outrageous copays and out-of-pocket expenses. For one Severe Factor 8 patient in Orlando, dealing with this burden has not come easy. Here he shares his anonymous story: “The medication that I take finally works for
- [BDFF Connections: Spring 2020](https://bleedingdisordersfl.org/hfgf-connections-spring-2020/) - Click below for the Spring 2020 issue of BDFF Connections
- [UM HTC Newsletter: The X-FIle, April - June 2020](https://bleedingdisordersfl.org/um-htc-newsletter-the-x-file-april-june-2020/) - Click below to read the April - June 2020 issue of UM HTC's The X-File
- [BDFF Lovegrams](https://bleedingdisordersfl.org/hfgflovegram/) - BDFF Virtual Hug One (1) Bear Hug $1,000.00 USDOne (1) Love Bug Hug $500.00 USDOne (1) Huggie $250.00 USDOne(1) Hugs & Kisses $100.00 USDOne(1) Miss You Hug $25.00 USD
- [Genesis Erickson, Our BDFF NYLI Ambassador](https://bleedingdisordersfl.org/genesis-erickson-our-hfgf-nyli-ambassador/) - My name is Genesis Erickson and I was selected to be a member of the National Youth Leadership Institute (NYLI). This is a program at the National Hemophilia Foundation (NHF) for 18-24 year olds in the bleeding disorders community. The program provides us leadership opportunities to encourage personal growth, learn how to effect change, and
- [Advocate For Yourself Brochure](https://bleedingdisordersfl.org/advocate-for-yourself-brochure/) - How To Advocate For Yourself BDFF encourages you to advocate for yourself! Click here for a brochure to print out. HTCs - Please share with your patients! Being your own advocate means asking for what you need in a direct, respectful manner. To Be Your Best Advocate: Believe In Yourself Know Your Rights Have Your
- [UM HTC Telehealth Now Available](https://bleedingdisordersfl.org/um-htc-telehealth-now-availablew/) - Telehealth is Now Available at the University of Miami Hemophilia Treatment Center! The HTC hopes that all of our patients and families are staying healthy during the restrictions imposed by the pandemic. While it is definitely frustrating and stressful to not see most, if not all, of our patients in clinic, the University of Miami Health System has streamlined
- [St. Joe's HTC Spring 2020 Newsletter](https://bleedingdisordersfl.org/st-joes-htc-spring-2020-newsletter/) - Click the image below for the full issue of this newsletter. Newsletter_Spring 2020
- [Step Therapy Webinar: April 29 at 2 pm](https://bleedingdisordersfl.org/step-therapy-webinar-april-29-at-2-pm/) - At this webinar, we will discus what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of American will lead this discussion and answer questions. We will also have a patient in the webinar with us to tell her story and give tips on how to push
- [Important COVID-19 News From UM HTC](https://bleedingdisordersfl.org/important-covid-19-news-from-um-htc/) - A Message from the University of Miami Hemophilia Treatment Center: The University of Miami HTC team will be accessible to our families during the Coronavirus pandemic. However, there may be delays in responses due to team members working remotely, on varying schedules. For phone calls: 305 – 243 – 0834 remains the primary contact number.
- [Hey Gainesville, Be BDFF's Valentine](https://bleedingdisordersfl.org/hey-gainesville-be-hfgfs-valentine/) - It's Valentine's Week and BDFF is proposing... that you register for the 2020 Gator Clot Trot 5K and Fun Walk! Use this sweet week to sign up and invite all of your dearest ones to do so as well. The 2020 Gator Clot Trot is on March 14th at Depot Park. Onsite registration begins at
- [BDFF 2020 Winter Newsletter](https://bleedingdisordersfl.org/hfgf-2020-winter-newsletter/) - CHECK OUT WHAT'S HAPPENING AT BDFF AND READ THE 2020 WINTER NEWSLETTER BY CLICKING BELOW.
- [2020 Legislative Priorities Webinar](https://bleedingdisordersfl.org/2020-legislative-priorities-webinar/)
- [BDFF Fundraiser at Blaze Pizza, Gainesville on 2/26/20](https://bleedingdisordersfl.org/hfgf-fundraiser-at-blaze-pizza-gainesville-on-2-26-20/)
- [Orlando Story Club Benefits BDFF](https://bleedingdisordersfl.org/osc/) - Past Our Bedtime Wednesday, February 5, 2020 | The Abbey | 7:00 pm Come hear stories about rebellion, a time when sleeping took a backseat to life, or the moment when we channeled our inner-child and laughed ourselves silly. Who knows what we will hear on the OSC stage with Past Our Bedtime?! All proceeds support Bleeding
- [St. Joe's Children's Hospital Winter Newsletter (2019-2020)](https://bleedingdisordersfl.org/st-joes-childrens-hospital-winter-newsletter-2019-2020/) - Please click the image below to read the Winter Newsletter from St. Joseph's Children's Hospital and HTC.
- [18th Annual Evening on Broadway](https://bleedingdisordersfl.org/18th-annual-evening-on-broadway/) - FOR IMMEDIATE RELEASE December 19, 2019 Contact: Leah Nash leahnash@bleedingdisordersfl.org 407.629.0000 X103 Hemophilia Foundation Presents Aladdin at Dr. Phillips Center Bleeding Disorders Foundation of Florida fundraiser supports bleeding disorders community The Bleeding Disorders Foundation of Florida (BDFF) is pleased to present its 18th Annual Evening on Broadway, February 1, 2020, featuring Disney’s Aladdin live on
- [BDFF Connections: Fall 2019](https://bleedingdisordersfl.org/hfgf-connections-fall-2019/) - CLICK BELOW TO READ THE FULL EDITION OF THE FALL 2019 BDFF CONNECTIONS
- [The X-File from UM HTC: October - December 2019](https://bleedingdisordersfl.org/the-x-file-from-um-htc-october-december-2019/) - CLICK BELOW TO READ THE X-FILE, UM HTC'S NEWSLETTER:
- [Dine to Donate: Texas Roadhouse in Jacksonville](https://bleedingdisordersfl.org/dine-to-donate-texas-roadhouse-in-jacksonville/)
- [Finding Freedom – The 411 on Gene Therapy](https://bleedingdisordersfl.org/finding-freedom-the-411-on-gene-therapy/) - Tommy Maguire loves to travel—for pleasure and for the good of the order. For the past two years, he has journeyed to South America to volunteer with the Columbian Hemophilia Foundation. While seeing the world and helping others is gratifying, he wishes that trekking factor was not part of the itinerary. His wish may soon
- [Updates From St. Joseph's Children's Hospital HTC, Fall 2019](https://bleedingdisordersfl.org/updates-from-st-josephs-childrens-hospital-htc-fall-2019/) - Click below to read the Fall newsletter from St. Joseph's Children's Hospital HTC.
- [BDFF 2018 Audit](https://bleedingdisordersfl.org/hfgf-2018-audit/) - Please click here to the view the Bleeding Disorders Foundation of Florida's 2018 audit.
- [Hemophilia Foundation Awards $28,800 in Annual Statewide Scholarships](https://bleedingdisordersfl.org/hemophilia-foundation-awards-28800-in-annual-statewide-scholarships/) - FOR IMMEDIATE RELEASE September 19, 2019 Contact: Leah Nash leahnash@bleedingdisordersfl.org 407.629.0000 X103 HEMOPHILIA FOUNDATION AWARDS $28,800 IN ANNUAL STATEWIDE SCHOLARSHIPS Most Recipients Pursuing Degrees in the Sunshine State The Bleeding Disorders Foundation of Florida (BDFF) awarded 14 students attending college this fall with scholarships totaling $28,800. Since the scholarship’s inception, BDFF has granted close
- [2020 BDFF RED PARTY](https://bleedingdisordersfl.org/2020-hfgf-red-party/) - September 12, 2019 Contact: Leah Nash leahnash@bleedingdisordersfl.org 407.629.0000 X103 FOR IMMEDIATE RELEASE Red Fundraiser to Usher in 2020 Support a Cause and Tour the Exclusive American Muscle Car Museum Don your favorite red cocktail attire and kick off 2020 at the Bleeding Disorders Foundation of Florida (BDFF) Red Party, January 18, hosted
- [BDFF CONNECTIONS: SUMMER 2019](https://bleedingdisordersfl.org/hfgf-connections-summer-2019/) - BDFF CONNECTIONS: SUMMER 2019
- [2019 BDFF CONNECTIONS: SPRING 2019](https://bleedingdisordersfl.org/2019-hfgf-connections-spring-2019/) - 2019 BDFF CONNECTIONS: SPRING 2019
- [BDFF Connections: Winter 2019](https://bleedingdisordersfl.org/hfgf-connections-winter-2019/) - 2019 BDFF CONNECTIONS: WINTER NEWSLETTER
- [SSMF Scholarship](https://bleedingdisordersfl.org/ssmf-scholarship/) - CLICK HERE TO DOWNLOAD THE 2019 SSMF Scholarship Information and Application Form
- [BDFF Spring Newsletter 2018](https://bleedingdisordersfl.org/hfgf-spring-newsletter-2018/) - Click here to view the BDFF Spring Newsletter 2018
- [BDFF Connections - Winter 2018](https://bleedingdisordersfl.org/hfgf-connections-winter-2018/)
- [BDFF Summer Newsletter 2017](https://bleedingdisordersfl.org/hfgf-summer-newsletter-2017/) - Download the Connections Summer Newsletter 2017
- [Welcome to our new Outreach Nurse!](https://bleedingdisordersfl.org/welcome-to-our-new-outreach-nurse/) - Missy Zippel, R.N. , who retired in June after more than 30 years of working with Nemours Children's Clinic in Jacksonville, has joined our staff working part-time. Missy will be based in Jacksonville. She will be providing education and outreach including infusion training, school visits and patient assistance. Missy can be reached by email at:
- [BDFF Connections-Winter Newsletter 2016](https://bleedingdisordersfl.org/hfgf-connections-winter-newsletter-2016/) - Download the Connections Spring Newsletter 2016
- [BDFF Connections - Spring Newsletter 2016](https://bleedingdisordersfl.org/hfgf-connections-spring-newsletter-2016/) - Download the Connections Spring Newsletter 2016
- [BDFF Connections - Summer 2016 Newsletter](https://bleedingdisordersfl.org/hfgf-connections-summer-2016-newsletter/) - Download the Connections Summer Newsletter 2016
- [BDFF Connections - Fall Newsletter 2016](https://bleedingdisordersfl.org/hfgf-connections-fall-newsletter-2016/) - Download the Connections Fall Newsletter 2016
- [BDFF Connections - Winter Newsletter 2017](https://bleedingdisordersfl.org/hfgf-connections-winter-newsletter-2017/) - Download the Connections Winter Newsletter 2017
- [BDFF Connections - Spring 2017](https://bleedingdisordersfl.org/hfgf-connections-spring-2017/) - Download the Connections Spring Newsletter 2017
- [JACKSONVILLE: GET YOUR BLOOD PUMPING FOR HEMOPHILIA](https://bleedingdisordersfl.org/jacksonville-get-your-blood-pumping-for-hemophilia/) - FOR IMMEDIATE RELEASE September 20, 2017 Contact: Leah Nash leahnash@bleedingdisordersfl.org 407.629.0000 X103 GET YOUR BLOOD PUMPING FOR HEMOPHILIA Funds Raised Benefit Those Impacted By Hurricane Irma The Bleeding Disorders Foundation of Florida (BDFF) is howling to host its annual Jacksonville Creepy Crawl 5K and Vampire Mile on October 14th at the spooky Nocatee community, located
- [ORLANDO: GET YOUR BLOOD PUMPING FOR HEMOPHILIA](https://bleedingdisordersfl.org/orlando-get-your-blood-pumping-for-hemophilia/) - FOR IMMEDIATE RELEASE September 20, 2017 Contact: Leah Nash leahnash@bleedingdisordersfl.org 407.629.0000 X103 GET YOUR BLOOD PUMPING FOR HEMOPHILIA Funds Raised Benefit Those Impacted By Hurricane Irma The Bleeding Disorders Foundation of Florida (BDFF) is howling to host its annual Orlando Creepy Crawl 5K and Vampire Mile on October 29th at spooky Lake Baldwin at Baldwin
- [BDFF Connections Fall Newsletter 2017](https://bleedingdisordersfl.org/hfgf-connections-fall-newsletter-2017/) - Download the Connections Fall Newsletter 2017
- [HEMOPHILIA FOUNDATION NIGHT ON BROADWAY FEATURES THE LION KING](https://bleedingdisordersfl.org/hemophilia-foundation-night-on-broadway-features-the-lion-king/) - The Bleeding Disorders Foundation of Florida (BDFF) is pleased to present the 16th Annual Evening on Broadway, February 17, 2018, to see The Lion King live on stage at the beautiful Dr. Phillips Center for the Performing Arts in downtown Orlando. Tickets, which include a reception with silent auction/raffle, as well as orchestra seating are
- [MEDIA ADVISORY: CHOMP CHOMP! KICKING OFF GATOR CLOT TROT THIS WEEKEND](https://bleedingdisordersfl.org/media-advisory-chomp-chomp-kicking-off-gator-clot-trot-this-weekend/) - FOR IMMEDIATE RELEASE February 15, 2018 Contact: Leah Nash leahnash@bleedingdisordersfl.org 407.629.0000 X103 What: Gator Clot Trot Kickoff Who: Bleeding Disorders Foundation of Florida When: Sunday, February 18, 2018; 10:30 AM-12:30 PM Why: Enjoy some food, mingle with other teams and have a chance to win some prizes all while registering for the 7th Annual Gator

## Pages

- [Home](https://bleedingdisordersfl.org/) - Bleeding Disorders
- [Leadership](https://bleedingdisordersfl.org/leadership/) - Board of Directors The Bleeding Disorders Foundation of Florida Board of Directors is non-compensated volunteers who serve the bleeding disorder community. Mike Berkman, President Alan Apte, Vice President Eileen Gregory, Secretary/Treasurer Hector L. Cartegena, Director Denise Fiorelli, Director Dr. Cindy Gauger, Director Michele Lehman, Director Joe Riggs, Director Jose Villareal Charris, Director
- [Emergency Financial Assistance](https://bleedingdisordersfl.org/emergency-services/) - The Bleeding Disorders Foundation of Florida designed the Emergency Financial Assistance Program (EFAP) to help people with bleeding disorders. Hemophilia Foundation Emergency Financial Assistance Program funds are intended for a crisis situation or unforeseen emergency. All requests for assistance with rent, utilities, mortgage, medical bills and medical equipment must be in the name of the person with
- [Family Retreat](https://bleedingdisordersfl.org/what-we-do/family-retreat/) - Camp Spirit Family Retreat Weekend October 9-11, 2026 Family Retreat Weekend is the perfect way for families to get familiar with Camp Spirit. The whole family is invited to spend a weekend at Camp Spirit so that everyone in the family can get comfortable with all of the fun
- [Walks](https://bleedingdisordersfl.org/walks-5ks/) - BDFF Walk/Run Events Every Step Is for Someone We Care About Join us as we walk and run together, lifting up the bleeding disorder community with every stride, every smile, and every act of support. Click on the logo to register for your chosen walk or to learn more.​
- [BDFF Newsletters](https://bleedingdisordersfl.org/hfgf-newsletters/) - BDFF_Summer_Newsletter 2026 BDFF – Spring Newsletter 2026 BDFF – Winter Newsletter 2025-2026 BDFF – Fall Newsletter 2025 BDFF- Summer Newsletter 2025 BDFF – Spring Newsletter 2025 BDFF – Winter Newsletter 2024 BDFF – Fall Newsletter 2024 BDFF – Summer Newsletter 2024 BDFF – Spring Newsletter 2024 BDFF – Winter Newsletter 2023 BDFF – Fall Newsletter
- [Scholarships](https://bleedingdisordersfl.org/what-we-do/scholarships/) - Bleeding Disorders Foundation of Florida Scholarships THE CALVIN DAWSON MEMORIAL SCHOLARSHIP Scholarships Awarded: The number of scholarships awarded, and amounts vary. Candidate: Florida residents with hemophilia, von Willebrand disease, or other related hereditary bleeding disorders attending a college, university or trade school. Deadline: April 30, 2026 Calvin Dawson Scholarship Application 2026 THE FOUNDERS
- [Trailblazers Holiday Fest](https://bleedingdisordersfl.org/projects/) - JOIN THE BDFF FOR THE 4th ANNUAL TRAILBLAZER HOLIDAY FEST SATURDAY, DECEMBER 12, 2026 CLERMONT BIKE/WALKING TRAIL Waterfront Park 300 3rd Street Clermont, FL 34711 REGISTRATION IS AT 9:30 am EVENT BEGINS AT 10:30 am Bike Registration is $35 for Individuals, walkers are free, and you can form a Fun Team BIKERS
- [Evening on Broadway 2027](https://bleedingdisordersfl.org/fundraising/evening-on-broadway/) - 25th Annual Evening on Broadway Join us for an Enchanting Evening Dr. Phillips Center 445 S. Magnolia AvenueOrlando, FL 32801 Join us for an unforgettable night of dazzling performances, stunning visuals, and spectacular music at the 25th Annual Evening on Broadway. Experience the magic of the stage while supporting the Bleeding Disorders Foundation of Florida
- [Camp Spirit Summer Camp](https://bleedingdisordersfl.org/what-we-do/camp-spirit/) - CAMP SPIRIT, WHERE THE SUMMER FUN BEGINS! July 14-18, 2026 Please contact BDFF if you have additional questions: 407-629-0000 800-293-6527 info@bleedingdisordersfl.org
- [Florida State Meeting Registration](https://bleedingdisordersfl.org/2026-florida-state-meeting/) - Florida State Meeting Registration Form First Name Last Name: Email Address Medical Specialty Hemophilia Treatment Center: Do You Need a Hotel Room *The deadline for room reservation is January 7, 2026: Yes I will need a hotel roomNo I will not need a hotel room Δ
- [2025 Gift Cards](https://bleedingdisordersfl.org/2024-htc-gift-cards/) - HTC Name Email Address Phone Number Quantity of $25 Walmart Gift Cards Quantity of $50 Publix Gift Cards Please send the gift cards to: Name HTC Address City State Zip Code Other Information (optional) Please submit your order by December 1,2026. Δ
- [Industry Partners](https://bleedingdisordersfl.org/resources/industrypartners/) - INDUSTRY PARTNERS The companies listed below have generously provided support to help us share valuable information with our community.Please note that all medical decisions should be made in consultation with your treating physician, Hemophilia Treatment Center, and care team. The Bleeding Disorders Foundation of Florida (BDFF) does not endorse or recommend any specific product, treatment,
- [Latin Conference Registration](https://bleedingdisordersfl.org/latin-conference-registration/) - Primer Nombre: Apellido: Correo Electronico: Direccion: Centro de tratamiento: ¿Cuantos adultos van a participar? ¿Cuantos ninos van a participar? ¿Qué miembro de su familia padece de un transtorno hemorragico? ¿Necesita una habitacion de hotel?*La fecha limite para la reserva de habitaciones es e 20 de Diciembre de 2025. Debe vivir a 20 millas o más
- [Golf Tournament](https://bleedingdisordersfl.org/fundraising/golf-tournament/) - 30th Annual Flight for Tomorrow Invitational Golf Tournament MONDAY, APRIL 13, 2026 Ardea Country Club 1055 East Lake Woodlands Pkwy Oldsmar, FL 34677 Day of Tournament Schedule of Events OPEN REGISTRATION: 10:30 am LUNCH: 11:00 am SHOTGUN START: Noon Dinner Buffet, Auction, Raffle & Awards following the Tournament Contact info@bleedingdisordersfl.org or call 800-293-6527 for
- [Donate](https://bleedingdisordersfl.org/donate/) - Bleeding Disorders Foundation of Florida Become a Friend of the Foundation by donating using one of the buttons below. $500 – Benefactor Level $200 – Grantor Level $150 – Patron Level $100 – Sponsor Level Supporter Level $15 – Donor Level Choose Your Own Amount
- [Advocacy](https://bleedingdisordersfl.org/what-we-do/advocacy/) - The Bleeding Disorders Coalition of Florida (BDCF) the legislative voice for the bleeding disorders community. We travel annually to Tallahassee and Washington D.C. to represent our families and talk to our legislators about issues that affect the bleeding disorders community. BDCF encourages our families to get to know their local legislators and stay in touch
- [Mission and Vision](https://bleedingdisordersfl.org/missionandvision/) - The Bleeding Disorders Foundation of Florida is a 501c3 nonprofit organization that has supported the bleeding disorder community throughout the state of Florida since its founding in 1996. For over 25 years, we have been helping those living with and affected by bleeding disorders to live without limits through much-needed services and programs. Mission
- [Mendy and Nathan Hood](https://bleedingdisordersfl.org/mission-moments/mendy-and-nathan-hood/) - BDFF Spotlight: Mendy and Nathan Hood Pictured (from left to right): Mendy and Nathan Hood at the 16th Annual Evening on Broadway BDFF fundraiser Mendy Hood, Mother of Nathan (von Willebrand) Resides: Orlando Home town: Gallapolis, Ohio Involvement with BDFF: 12 years Sometimes when you least expect it, an incident occurs in your life that
- [Dawn and William Solomon](https://bleedingdisordersfl.org/mission-moments/dawn-and-william-solomon/) - Pictured (from left to right): Jimmy, Ellie, Dawn, Patrick, and William Solomon Dawn Solomon, Carrier Resides: Clermont Hometown: Grayslake, Illinois Involvement with the BDFF: 18 years When Dawn and Patrick Solomon moved to the Orlando area close to 20 years ago, they already had a son with hemophilia and a daughter who was a carrier.
- [Florida State Meeting Registration2](https://bleedingdisordersfl.org/florida-state-meeting-registration2/) - Florida State Meeting Registration Form First Name Last Name: Email Address Medical Specialty Hemophilia Treatment Center: Do You Need a Hotel Room *The deadline for room reservation is January 7, 2026: Yes I will need a hotel roomNo I will not need a hotel room Δ
- [Hemophilia Treatment Centers](https://bleedingdisordersfl.org/resources/treatment-centers/) - Hemophilia Treatment Centers UF Health Hematology/Oncology - Davis Cancer Pavillion 2000 SW Archer Rd Gainesville, FL 32608 Office: 352-265-0725 The University of Miami Hemophilia Treatment Center Pediatric Clinic Location Sylvester Comprehensive Cancer Center "Alex's Place" 1475 NW 12th Avenue, C130 Miami, Florida 33136 305-243-0834 Adult Clinic Location 1611 NW 12th Avenue ACCW-3C Miami, Florida 33136
- [Calendar](https://bleedingdisordersfl.org/missionandvision/calendar/) - Problem Solving the day-t0-day challenges of Hemophilia Interactive Discussion & Dinner Columbia Restaurant Ybor City March 10, 2022 6:00 p.m.
- [March Madness](https://bleedingdisordersfl.org/hfgfmarchmadness/) - Welcome to the March Madness Bracket Pool! The BDFF invites you to join us for March Madness...for a $30 Bracket Donation. You have an opportunity to pick the winning NCAA Championship Team. March Madness Entries1 Entry $30.002 Entries $60.003 Entries $90.004 Entries $120.005 Entries $150.006 Entries $180.00 Fun Prizes will be awarded to the
- [Thank You to our Sponsors 2021!](https://bleedingdisordersfl.org/stripe/) - via GIPHY
- [Jacksonville](https://bleedingdisordersfl.org/walks-5ks/jacksonville/) - Join us for the 2022 Jacksonville Creepy Crawl! When: October 15th, 2022 Walk/Run begins at 8:00 am Where: Riverside Park Jacksonville, Florida Thank you to our sponsors!
- [Orlando](https://bleedingdisordersfl.org/walks-5ks/orlando/) - Join us for the 2022 Orlando Creepy Crawl! When: October 29th, 2022 Walk begins at 5:00pm Where: Harbor Park at Baldwin Park 4990 New Broad Street Orlando, Florida 32814 Thank you to our Sponsors!
- [Tampa](https://bleedingdisordersfl.org/walks-5ks/tampa/) - Join us for our 2022 Super Hero Walk in St. Petersburg, Florida When: September 24, 2022 Walk begins at 8:00 am Where: Vinoy Park, 701 Bay Shore Drive, N.E., St. Petersburg, Florida Click "play" to watch a video of our 2021 Super Hero Walk! https://bleedingdisordersfl.org/wp-content/uploads/Super-Hero-Fun-Walk-2.mp4 Thank you to
- [Fundraising](https://bleedingdisordersfl.org/fundraising/) - You Can Make A Difference There are lots of ways to support the BDFF community through FUN-draising! 89% of all BDFF fundraising dollars fund the following: Sending BDFF Kids to Camp Spirit Emergency Financial Assistance, MedicAlert Memberships, and Comfy Caps for BDFF Patients BDFF Students With Scholarships Educational Programs for BDFF Families Legislative Activities for
- [Gainesville](https://bleedingdisordersfl.org/walks-5ks/gainesville/) - Join us for the 11th Annual Gator Clot Trot! When: April 9, 2022 Where: Veterans Memorial Park 7400 SW 41st Place Gainesville, FL 32608
- [Other Factor Deficiencies](https://bleedingdisordersfl.org/other_factor_deficiencies/) - What Are Rare Bleeding Disorders? Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. They are characterized by extended bleeding after injury, surgery, trauma or menstruation. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Improper clotting can be caused by defects in blood components
- [Facts About Bleeding Disorders3](https://bleedingdisordersfl.org/resources/facts-about-bleeding-disorders-3/) - What is a Bleeding Disorder? Bleeding disorders are a group of disorders that share the inability to form a proper blood clot. They are characterized by extended bleeding after injury, surgery, trauma or menstruation. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Improper clotting can be caused by defects in blood components
- [Von Willebrand Disease](https://bleedingdisordersfl.org/vonwillebransddisease/) - What is Von Willebrand Disease? Von Willebrand Disease is also a genetic bleeding disorder that prevents the blood from clotting normally. It is caused by a deficient or defective blood protein known as von Willebrand factor. Although less widely known than hemophilia, von Willebrand disease (vWD) is Read More
- [My Calendar](https://bleedingdisordersfl.org/my-calendar/) - [my_calendar id="my-calendar"]
- [Causes](https://bleedingdisordersfl.org/causes/)
- [PayPal Thank you Page](https://bleedingdisordersfl.org/paypal-thank-you-page/) - Thank you! Your donation was received.
- [News](https://bleedingdisordersfl.org/what-we-do/news/) - Recent News BDFF SUMMER NEWSLETTER 2020 Fran Haynes July 14, 2020 0 CHECK OUT WHAT’S HAPPENING AT BDFF AND READ THE 2020 SUMMER NEWSLETTER BY CLICKING BELOW. BDFF_SummerNewsletter2020 Program Form Leah Nash June 18, 2020 0 Voices of BDFF: Leanne Buchanan Leah Nash June 2, 2020 0
- [Upcoming Events](https://bleedingdisordersfl.org/upcoming-events/)
- [User Login page](https://bleedingdisordersfl.org/user-login-page/)
- [User register](https://bleedingdisordersfl.org/user-register/) - test
- [HTML Elements](https://bleedingdisordersfl.org/html-elements/) - Columns 1/2 In over under beast seed He. Thing Second stars green there gathering living. Without greater image moving living signs fruit above heaven. Hath, behold isn't Day. 1/2 Had two divide Great doesn't, evening form Beginning also saying, to that itself let spirit in. Lesser divided female have fill Which also you'll God. Don't.
- [Donate Now](https://bleedingdisordersfl.org/donate-now/)
- [Staff](https://bleedingdisordersfl.org/staff/)
- [Mission Moments](https://bleedingdisordersfl.org/mission-moments/) - Welcome to Voices of BDFF The Bleeding Disorders Foundation of Florida strives to foster a community of endurance, support, and hope for patients, medical staff, their families, and beyond. Here are some of their stories: Dawn & Patrick Solomon When Dawn and Patrick Solomon moved to the Orlando area close to 20 years ago, they
- [Coleman Safi](https://bleedingdisordersfl.org/mission-moments/coleman-safi/) - Coleman Safi Resides: Jacksonville Hometown: Jacksonville Involvement with BDFF: 12 Years Coleman Safi tells it like it is. At just 12 years old, the Jacksonville seventh grader is not shy about relating his short-life story. Whether it’s recalling the good times or the not-so-memorable ones, Coleman loves to share his thoughts. Diagnosed with severe
- [Noah Carson](https://bleedingdisordersfl.org/mission-moments/noah-carson/) - Noah Carson Resides: Indialantic Parent’s Hometowns: Dad – Melbourne, FL & Mom - Strongsville, Ohio Involvement with BDFF: 1 Year Few things are as gut wrenching as watching your baby prodded and poked while you stand by helpless to stop the tears. Chris Carson and Alicia Norris know these haunting emotions all too well. Their
- [Natalie Rubin's Step Therapy Story](https://bleedingdisordersfl.org/mission-moments/steptherapy/) - Natalie Rubin Resides: Tampa Hometown: Streamwood, Illinois Involvement with BDFF: Four years Natalie Rubin has first-hand knowledge of step therapy, the controversial treatment plan designed to save insurance companies money. Also known as “fail first” protocols, the patient is required to “fail” on an insurer-preferred drug therapy based on a similar diagnosis before it will
- [Cody and Marlene Horne](https://bleedingdisordersfl.org/mission-moments/cody-and-marlene-horne/) - Marlene and Cody Horne Reside: Jacksonville Hometown: Jacksonville Involvement with BDFF: Seven years Cody Horne just wants to play soccer. The seven-year-old son of Marlene is so set on that goal that he asked the doctor for her permission on a recent wellness visit. While he did get the go-ahead he was seeking, his mom
- [The Houvouras Family](https://bleedingdisordersfl.org/mission-moments/the-houvouras-family/) - The Houvouras Family Reside: Vierra Hometown: Father - Palm Beach Gardens | Mother - Hackensack, New Jersey Involvement with BDFF: 14+ Years If you are attending the Bleeding Disorders Foundation of Florida’s Red Party January 18 at the American Muscle Car Museum to ring in 2020, be sure to say hello to the local Houvouras
- [The Wei Family](https://bleedingdisordersfl.org/mission-moments/the-wei-family/) - Wendy Wei and Family Resides: Gainesville Home Country: China Involvement with BDFF: 11 years Wendy Wei and her family have been involved with the Bleeding Disorders Foundation of Florida for almost as long as they have been living in the United States. Wendy and her husband Eugene emigrated from China in 2005 to Gainesville, and
- [BDFF Volunteer Spotlight, Alexis Wade](https://bleedingdisordersfl.org/mission-moments/hfgf-volunteer-spotlight-alexis-wade/) - BDFF Volunteer Spotlight: Alexis Wade The most surprising thing about having a bleeding disorder for 21 year-old BDFF volunteer Alexis Wade is the challenge of managing it. “Sometimes,” Alexis says, “no matter how hard I plan, I cannot do what I want to. However, over time, I have learned that life just requires some flexibility.”
- [The Gonzalez Family](https://bleedingdisordersfl.org/mission-moments/the-gonzalez-family-2/) - Brandyn and Nicole Gonzalez Reside: Wesley Chapel Hometowns: Wesley Chapel, Pittsburgh Involvement with BDFF: One Year Brandyn and Nicole Gonzalez knew very little about bleeding disorders, much less that there was a community of those dealing with such disorders. After being married less than two years, the Wesley Chapel couple welcomed their first child nine
- [Jonathan Lebron](https://bleedingdisordersfl.org/mission-moments/jonathan-lebron/) - Jonathan Lebron Resides: Orlando Hometown: Bayamon, Puerto Rico Involvement with BDFF: 12 Years Twenty-three-year-old Jonathan Lebron thanks his parents for his optimistic outlook on life, regardless of being diagnosed with Severe Hemophilia A when he was less than a year old. “I have always felt good,” he says. “I had no real issues growing up.
- [Brian and Rhonda McDonald](https://bleedingdisordersfl.org/mission-moments/brian-and-rhonda-mcdonald/) - Brian and Rhonda McDonald Resides: Tampa Involvement with BDFF: Since foundation, 1996 For the past 23 years, Brian and Rhonda McDonald—founders of the Bleeding Disorders Foundation of Florida—have dedicated each fall to Sponsor and manage the BDFF’s Flight for Tomorrow Invitational Golf Tournament, a fundraiser that has netted more than $2 million for the Foundation.
- [Joseph Burke](https://bleedingdisordersfl.org/mission-moments/joseph-burke/) - Joseph Burke Reside: Clermont Hometown Whitesburg, Kentucky Involvement with BDFF: 10+ Years Joseph Burke has been on quite a journey since being diagnosed at birth with Severe Hemophilia A forty years ago. But through it all, he remains positive, not allowing a bleeding disorder to control his life. “It’s about turning messes into messages,” says
- [Walk Fundraising Tools](https://bleedingdisordersfl.org/fundraising-tools/) - Fundraising Tools Use these tools to help launch successful fundraisers and lead your walk team to victory!
- [Medic Alert Memberships](https://bleedingdisordersfl.org/what-we-do/medic-alert-memberships/) - Thanks to our generous donors, The Bleeding Disorders Foundation of Florida is proud to offer the bleeding disorders community Medic Alerts. Medic Alerts are important for patients in our community especially in times of emergency, Medic Alerts save lives. Click on the article below for stories on how medic alerts have saved lives. How Medical IDs Could Save Your Life If you
- [Medic Alert Memberships](https://bleedingdisordersfl.org/medical-alert-order-form-1-pdf/) - Thanks to our generous donors, The Bleeding Disorders Foundation of Florida is proud to offer the bleeding disorders community Medic Alerts. Medic Alerts are important for patients in our community especially in times of emergency, Medic Alerts save lives. Click on the article below for stories on how medic alerts have saved lives. How Medical IDs Could Save Your Life If you
- [Hemophilia](https://bleedingdisordersfl.org/hemophilia-2/) - What Is Hemophilia A? Hemophilia A, also called factor VIII (8) deficiency or classic hemophilia, is a genetic disorder caused by missing or defective factor VIII (FVIII), a clotting protein. Although it is passed down from parents to children, about 1/3 of cases found have no previous family history. Read More What Is Hemophilia B?
- [Volunteer](https://bleedingdisordersfl.org/volunteer/) - Volunteer with BDFF! Office Volunteer Want to polish your office skills while helping a great organization make a difference in the lives of bleeding disorder patients all across Florida? Office Volunteers for BDFF will answer phones, learn to use the various databases and systems used by BDFF, do data entry and provide a warm welcome
- [Mission Statement](https://bleedingdisordersfl.org/missionandvision/mission-statement/) - Our Mission The Bleeding Disorders Foundation of Florida, a chapter of the National Hemophilia Foundation, has been serving people with bleeding disorders since 1996. We are helping the bleeding disorders community improve their quality of life by offering programs and services to support healthier lives.
- [Research Information](https://bleedingdisordersfl.org/resources/research-information/) - Research Grants Program NHF funds a broad range of research. Funds raised under NHF's It's Time for a Cure campaign are used to provide Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von Willebrand disease. Areas of investigation may include, but are not limited to,
- [Volunteer Application](https://bleedingdisordersfl.org/volunteer-application/) - Volunteer Application Name * First Last Address* Line 1 Line 2 City State Zip Code Country Email * Phone Number * Place of Employment & Occupation * Date of Birth * How did you hear about the Bleeding Disorders Foundation of Florida? * Previous Volunteer Experience * Hobbies, Skills, Interests * What are your strengths,
- [PayPal Pay](https://bleedingdisordersfl.org/make-a-donation/)
- [Go Bag](https://bleedingdisordersfl.org/gobag-2/) - Go Back Checklist Summer is here in Florida and you know what that means... hurricanes and vacations. Do you know what those two things have in common? They both need some preparation and when you have a bleeding disorder, you need a Go Bag ready. This is very important. Please check out our suggestions as
- [BDFF Donors Are Heroes](https://bleedingdisordersfl.org/hfgf-donors-are-heroes/) - Our Donors, Our Heroes When Andrew Farren of St. Petersburg talks about Camp Spirit at Camp Boggy Creek, he tells how it was life changing for him as a child. And last summer, he brought the experience full circle and began volunteering as a counselor. “I love the spirit of the place and
- [Jax Panera Fundraiser on 7/31](https://bleedingdisordersfl.org/what-we-do/jax-panera-fundraiser-on-7-31/)
- [St. Joe's 2019 Summer Newsletter](https://bleedingdisordersfl.org/resources/st-joes-2019-summer-newsletter/) - CLICK BELOW TO READ ST. JOE'S 2019 SUMMER NEWSLETTER
- [Nemours HTC](https://bleedingdisordersfl.org/resources/nemours-htc/) - NEMOURS HEMOPHILIA TREATMENT CENTER IS LOCATED IN JACKSONVILLE, FLORIDA, AND SERVES ADOLESCENTS WITH BLEEDING DISORDERS “With the ever-changing landscape of bleeding disorders, our treatment center provides up-to-date treatment options and lends emotional support to our families.” – Cynthia Gauger, MD, at Nemours Children’s Specialty Care Hemophilia Treatment Center Pictured: Patient, Ethan, pictured with his nurse,
- [UM HTC Spring 2019 Newsletter](https://bleedingdisordersfl.org/resources/um-htc-spring-2019-newsletter/) - CLICK BELOW FOR UM HTC SPRING NEWSLETTER
- [Brett Palaschak](https://bleedingdisordersfl.org/mission-moments/brett-palaschak/) - Brett Palaschak Resides: Gainesville Hometown: Streator, Illinois Involvement with BDFF: 10-plus years Brett Palaschak realized at an early age that playing contact sports with his friends was not in the cards. So he decided to take the high road, hit the books and learn all he could about hemophilia in order to educate those same
- [Resources](https://bleedingdisordersfl.org/resources/) - BLEEDING DISORDERS RESOURCES Click below for bleeding disorders resources: Facts About Bleeding Disorders Florida Hemophilia Treatment Centers Research Medical Product Information Where To Find Help
- [Where to Find Help](https://bleedingdisordersfl.org/resources/where-to-find-help/) - For many of us, our incomes are stretched each month in order to pay our bills. This can be especially true if a family member has a disability. If you or someone in your family is having difficulty paying electric bills, the booklet "Where to find Help in Florida" can help you find sources of
- [What We Do](https://bleedingdisordersfl.org/what-we-do/)
- [GENESIS ERICKSON](https://bleedingdisordersfl.org/mission-moments/genesis-erickson/) - Genesis Erickson Resides: Jacksonville Hometown: Tampa Involvement with BDFF: 3 years Genesis Erickson is still trying to figure out how to best deal with her bleeding disorder. The 18-year-old University of North Florida (UNF) freshman with an eye on the medical field was 14 before she was finally diagnosed with von Willebrand’s disease at
- [The Wyrick Family](https://bleedingdisordersfl.org/mission-moments/the-wyrick-family/) - Alex Wyrick Resides: Newberry, FL Hometown: Newberry, FL (Born in Daytona Beach) Involvement with BDFF: Three Years Alex Wyrick already knows what he wants to do with his life. The ten-year-old native Floridian has his mind set on becoming a chef. His palate was enticed further while attending Camp Spirit at Boggy Creek this
- [ANDREW FARREN](https://bleedingdisordersfl.org/mission-moments/andrew-farren/) - Andrew Farren Resides: St Petersburg, FL Hometown: St Petersburg, FL Involvement with BDFF: “As Long As I Can Remember” A Bleeding Disorders Foundation of Florida scholarship recipient with aspirations to become a pediatric physician, Andrew Farren is pumped about what lies ahead as he enters his second year at St. Petersburg College. “It’s exciting,” says
- [SAMANTHA AND TYLER NAZARIO](https://bleedingdisordersfl.org/mission-moments/samantha-and-tyler-nazario/) - Samantha and Tyler Nazario Resides: Melbourne Hometown: Bronx, New York Involvement with BDFF: 11 years Everyone yearns for a little validation once in a while, signaling a job well done. Such is the case of Samantha Nazario, her son, Tyler, and the Foundation. Tyler was born in New York City, as was his mom Samantha,
- [Natalie Rubin](https://bleedingdisordersfl.org/mission-moments/natalie-rubin/) - Natalie Rubin Resides: Tampa Hometown: Streamwood, Illinois Involvement with BDFF: Two years Natalie Rubin (pictured above right with her mother Deborah Rubin) is fresh off of her first week at Camp Boggy Creek as a leader in training, working with young cancer patients. A former camper at the Bleeding Disorders Foundation of Florida’s Camp Spirit
- [Information & Referrals](https://bleedingdisordersfl.org/resources/information-referrals/) - Knowledge is power. The more one can learn about their illness the more they can empower themselves and their families toward better health. BDFF keeps a library of resources on a variety of bleeding disorder topics. All literature is sent to consumers free of charge. Whether the issues pertain to Hemophilia, von Willebrand disease, or HIV/Hepatitis co-infection, BDFF should
- [Contact](https://bleedingdisordersfl.org/contact/) - Call Us Phone: (800) 293-6527 Fax: (407) 629-9600 Visit Us 1350 Orange Ave, Suite 227 Winter Park, FL 32789 Connect With Us Contact Form Name * First Last Email * Phone Number How did you hear about us? * Internet SearchRecommended by a friendPositive media reviewOther How can we help? * Would you like to
- [My Account](https://bleedingdisordersfl.org/my-account/) - [woocommerce_my_account]
- [Sitemap](https://bleedingdisordersfl.org/sitemap/) - Pages Volunteer Fundraising Evening on Broadway 2027 Golf Tournament Walks Gainesville Tampa Jacksonville Orlando Walk Fundraising Tools March Madness Mission Moments Dawn and William Solomon Kim Lamb and Sheekeria Hargrave Tony Brown Joe Riggs – BDFF Board Member Nicki Salopek and Carter Fahrubel Missy Zippel – BDFF Nurse Javier Aguilu The Tuttle Family Mendy and
- [The Tuttle Family](https://bleedingdisordersfl.org/mission-moments/the-tuttle-family/) - BDFF Spotlight: The Tuttle Family Megan Tuttle, Mother of Aaron (Severe Hemophilia B) Resides: St. John’s County Hometown: Pittsburgh, Pennsylvania Involvement with BDFF: Six Years Aaron Tuttle goes through cycles when it comes to being accepting of his infusions. At times, he wonders aloud, “Why do I have to do this? Why do I have
- [Javier Aguilu](https://bleedingdisordersfl.org/mission-moments/javier-aguilu/) - BDFF Spotlight: Javier Aguilu Javier Aguilu Resides: Casselberry Hometown: Guaynabo, Puerto Rico Involvement with BDFF: Thirteen Years Javier Aguilu grew up in Puerto Rico at a time when treatment for hemophiliacs was scarce. The 58-year-old Casselberry resident inherited his condition from his mother. “It was nothing new to our family as others were also bleeders,”
- [Missy Zippel - BDFF Nurse](https://bleedingdisordersfl.org/mission-moments/missy-zippel-hfgf-nurse/) - BDFF Spotlight: Missy Zippel Missy Zipple Resides: Jacksonville Hometown: Baudette, Minnesota Involvement with BDFF: 40-plus years Before officially retiring three years ago this June as a hemophilia nurse coordinator at Nemours Children’s Clinic in Jacksonville, Missy Zipple served for 38 years as a health care provider, educator and friend to a countless number of grateful
- [Nicki Salopek and Carter Fahrubel](https://bleedingdisordersfl.org/mission-moments/nicki-salopek-and-carter-fahrubel/) - BDFF Spotlight: Nicki Salopek and Carter Fahrubel Nicki Salopek and Carter Resides: Lakeland Hometown: Lakeland, Florida Involvement with BDFF: 3-plus years Nicki Salopek and her husband Bart Fahrubel were a bit surprised by the diagnosis of their son, four-year-old Carter Fahrubel. There is no record or evidence that hemophilia has ever been a part of
- [Joe Riggs - BDFF Board Member](https://bleedingdisordersfl.org/mission-moments/joe-riggs-hfgf-board-member/) - BDFF Spotlight: Joe Riggs Joe Riggs Resides: Odessa, Florida Hometown: Jacksonville, Florida Involvement with BDFF: 10-plus years Like many Baby Boomers diagnosed with hemophilia as an infant, the road to survival was not an easy one for Joe Riggs. Prior to present-day long-lasting factor VIII and a true understanding of the disease, people like Joe
- [Tony Brown](https://bleedingdisordersfl.org/mission-moments/tony-brown/) - BDFF Spotlight: Tony Brown Tony Brown, MSW Resides: Tampa Hometown: St. Petersburg Involvement with BDFF: 10 years It appears Tony Brown has finally found his calling. For the past two years, as the Medical Social Worker/Program Planner at the University of South Florida Hemophilia Treatment Center, Tony has been helping patients get through the tough
- [Kim Lamb and Sheekeria Hargrave](https://bleedingdisordersfl.org/mission-moments/kim-lamb-and-sheekeria-hargrave/) - BDFF Spotlight: Kim Lamb and Sheekeria Hargrave Kim Lamb and Sheekeria Hargrave Resides: Fernandina Beach and Yulee Hometown: Lexington, North Carolina Involvement with BDFF: New to the Foundation When the bleeding disorders community is within the four walls of the home in which you grew up, you tend to know a bit more about the
- [Bleeding Disorders](https://bleedingdisordersfl.org/missionandvision/bleeding-disorders/) - Bleeding Disorder Facts A bleeding disorder is a defect in the body’s blood clotting system. Clotting factors are missing or do not work as they should. About Hemophilia About VWD About Hepatitis About AIDS Hemophilia Hemophilia is a sex-linked blood clotting disorder that causes excessive bleeding to occur spontaneously. Hemophilia may be mild, moderate or
- [Audit](https://bleedingdisordersfl.org/missionandvision/audit/) - ​Bleeding Disorders Foundation of Florida Audit BLEEDING DISORDERS FOUNDATION OF FLORIDA 990
- [Privacy Policy](https://bleedingdisordersfl.org/missionandvision/privacy-policy/) - Privacy Notice Privacy Notice Your privacy is important to us. This privacy notice applies solely to information collected by this website www. Hemophiliaflorida.org. It will notify you of the following: What personally identifiable information is collected from you through the website, how it is used and with whom it may be shared. What choices are
- [2016 Year in Review](https://bleedingdisordersfl.org/missionandvision/2016-year-in-review/)
- [Make a donation](https://bleedingdisordersfl.org/make-a-donation-donate/) - Donate with Confidence! The Charity Foundation provides unmatched transparency and accountability to all of our donors by publishing frequent reports on how we use donations.
- [Past Events](https://bleedingdisordersfl.org/past-events/)
- [Subscription page](https://bleedingdisordersfl.org/subscription-page/)
- [User donation page](https://bleedingdisordersfl.org/user-donation-page/)

## Campaigns

- [Camp Spirit](https://bleedingdisordersfl.org/cause/camp-spirit/) - $850 sends a child from the BDFF community to Camp Spirit at Camp Boggy Creek! At camp, our BDFF kids get to hang out with other kids with bleeding disorders and have fun learning how to ride horses, participate in arts and crafts, swim, and more! Camp Spirit is a medically supervised camp where kids
- [Emergency Financial Services](https://bleedingdisordersfl.org/cause/emergency-financial-services/) - Sometimes people hit hard times and the same is true for members of our bleeding disorders community. BDFF Emergency Financial Services are available for those who need assistance. Applicants are required to fill out our application, as well as supply additional documents needed, per our social worker and BDFF policies. Your donation could help save
- [Scholarships](https://bleedingdisordersfl.org/cause/scholarships/) - In 2018, BDFF awarded over $40,000 to 22 scholarship recipients from BDFF community. These scholarship dollars help to improve the lives of our young adults as they strive for higher education. Your donation is sending kids to college. 91% of all fundraising dollars support programs like BDFF scholarships.

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## Documents

- [2014 Annual Report](https://bleedingdisordersfl.org/document/2014-annual-report/) - Day is sea midst one female to under. It firmament she'd day had you may land can't signs likeness. Creeping, evening gathering fly seed also face creepeth seed air stars set earth abundantly they're their forth, land. Herb god also two face under one signs male cattle made one Creature gathered evening one male sixth
- [Support is the heart of our cause](https://bleedingdisordersfl.org/document/support-is-the-heart-of-our-cause/) - Day is sea midst one female to under. It firmament she'd day had you may land can't signs likeness. Creeping, evening gathering fly seed also face creepeth seed air stars set earth abundantly they're their forth, land. Herb god also two face under one signs male cattle made one Creature gathered evening one male sixth
- [2013 Annual Report](https://bleedingdisordersfl.org/document/2013-annual-report-2/) - Day is sea midst one female to under. It firmament she'd day had you may land can't signs likeness. Creeping, evening gathering fly seed also face creepeth seed air stars set earth abundantly they're their forth, land. Herb god also two face under one signs male cattle made one Creature gathered evening one male sixth
- [2012 Annual Report](https://bleedingdisordersfl.org/document/2012-annual-report/) - Day is sea midst one female to under. It firmament she'd day had you may land can't signs likeness. Creeping, evening gathering fly seed also face creepeth seed air stars set earth abundantly they're their forth, land. Herb god also two face under one signs male cattle made one Creature gathered evening one male sixth
- [Listening to the beat of the future](https://bleedingdisordersfl.org/document/listening-to-the-beat-of-the-future/) - Day is sea midst one female to under. It firmament she'd day had you may land can't signs likeness. Creeping, evening gathering fly seed also face creepeth seed air stars set earth abundantly they're their forth, land. Herb god also two face under one signs male cattle made one Creature gathered evening one male sixth
- [2011 Annual Report](https://bleedingdisordersfl.org/document/2011-annual-report/) - Day is sea midst one female to under. It firmament she'd day had you may land can't signs likeness. Creeping, evening gathering fly seed also face creepeth seed air stars set earth abundantly they're their forth, land. Herb god also two face under one signs male cattle made one Creature gathered evening one male sixth

## Testimonials

- [Testimonial #3](https://bleedingdisordersfl.org/testimonial/testimonial-3/) - Phasellus vitae diam pulvinar, tempus diam et, aliquam tellus. Quisque mattis odio eu placerat luctus. Vivamus magna elit, ultrices non lacinia vel, tempor vitae tellus. Fusce sit amet sem sit amet risus fringilla dapibus sed sit amet odio.
- [Testimonial #2](https://bleedingdisordersfl.org/testimonial/testimonial-2/) - Phasellus vitae diam pulvinar, tempus diam et, aliquam tellus. Quisque mattis odio eu placerat luctus. Vivamus magna elit, ultrices non lacinia vel, tempor vitae tellus. Fusce sit amet sem sit amet risus fringilla dapibus sed sit amet odio.
- [Testimonial #1](https://bleedingdisordersfl.org/testimonial/testimonial-1/) - Phasellus vitae diam pulvinar, tempus diam et, aliquam tellus. Quisque mattis odio eu placerat luctus. Vivamus magna elit, ultrices non lacinia vel, tempor vitae tellus. Fusce sit amet sem sit amet risus fringilla dapibus sed sit amet odio.

## Galleries

- [Sample Gallery](https://bleedingdisordersfl.org/gallery/sample-gallery/)
- [Sponsor a girl](https://bleedingdisordersfl.org/gallery/sponsor-a-girl/) - Subdue and blessed heaven green so one make dry of behold god yielding. Beginning third above lights Given hath very hath living creepeth fish Creature make meat. So greater itself fly sixth green was wherein i Saw the divided that. Night gathered void set spirit void.
- [Sponsor a child](https://bleedingdisordersfl.org/gallery/sponsor-a-child/) - Land beast gathered divided. Days is second. Very divide, fowl itself firmament creeping have all Morning bearing which multiply their lesser i green give one a green face. Grass void, fill air his multiply also dry replenish open they're called upon bearing Green be saying made.
- [Sponsor a child](https://bleedingdisordersfl.org/gallery/sponsor-a-child-2/) - Land beast gathered divided. Days is second. Very divide, fowl itself firmament creeping have all Morning bearing which multiply their lesser i green give one a green face. Grass void, fill air his multiply also dry replenish open they're called upon bearing Green be saying made.

## Events

- [Youth Retreat](https://bleedingdisordersfl.org/event/teen-retreat/) - Join a great learning experience with the BDFF on Saturday, July 29th at Busch Gardens for the 2023 Teen Retreat! For more information, email info@bleedingdisordersfl.org or call 800-293-6527.
- [Jacksonville Holiday Event](https://bleedingdisordersfl.org/event/jacksonville-holiday-event/) - Please Join Nemours Children's Clinic, Jacksonville & The Hemophilia Foundation of Greater Florida -for a very special family ho-ho-ho-holiday event- Sunday December 11, 2022 11:00 am At the Hyatt Regency Jacksonville Riverfront 225 East Coast Line Drive, Jacksonville, FL 32202 The day includes: Ho-Ho-Ho-Holiday Fun, Trivia, Brunch & a very Special Guest in a red
- [Youth Retreat](https://bleedingdisordersfl.org/event/youth-retreat-4/) - Friday, July 10, 2026 Location: To be determined Youth Program / Retreat for participants 13-22 year old anyone under the age of 18 must be accompanied by a parent or caregiver Details:Join us for our annual Youth Retreat designed to bring together young individuals in a supportive and engaging environment. Activities and location details will
- [Do What Moves You Staying Active](https://bleedingdisordersfl.org/event/do-what-moves-you-staying-active/)
- [2019 Orlando Creepy Crawl 5K & Vampire Mile](https://bleedingdisordersfl.org/event/2019-orlando-creepy-crawl-5k-vampire-mile/) - Boo! We are creepy crawling again in Orlando for bleeding disorders! Register for the 5K or the fun walk... either way will be fang-tastic amounts of fun! After the Creepy Crawl, stay for an awards ceremony and Halloween Party. Online registration is open now!
- [BDFF Ron Sachs Donor Reception](https://bleedingdisordersfl.org/event/hfgf-ron-sachs-donor-reception/) - BDFF is celebrating our donors! 91% of fundraising dollars go back to supporting BDFF services for the bleeding disorders community such as Camp Spirit tuition, scholarships, emergency financial assistance, and more. Our dedicated donors are why we can provide these services and we want to celebrate you!
- [Camp Boggy Creek Family Weekend](https://bleedingdisordersfl.org/event/camp-boggy-creek-family-weekend/) - From the Camp Boggy Creek website: "During weekends in the spring and fall we welcome 32 campers and their whole families to camp where parents can relax and find needed support among other families dealing with similar emotional and financial challenges. Brothers and sisters get to participate in the same fun-filled activities since every family
- [2019 Jacksonville Creepy Crawl 5k & Vampire Mile](https://bleedingdisordersfl.org/event/2019-jacksonville-creepy-crawl-5k-vampire-mile/) - Boo! Are you ready to creepy crawl in Jacksonville for bleeding disorders? BDFF is hauntingly hosting a 5K and Halloween party! If you don't want to do the creepy crawl 5K, you can also do a fun walk instead. Registration link is below. We encourage team registrations and fundraising! When: Oct. 12, 2019 Where: Nocatee

## Staffs

- [Fran Haynes](https://bleedingdisordersfl.org/staff/fran-haynes/) - FranHaynes@bleedingdisordersfl.org
- [JoAnn Brownrigg](https://bleedingdisordersfl.org/staff/joann-brownrigg/) - JoannBrownrigg@bleedingdisordersfl.org
- [Missy Zippel](https://bleedingdisordersfl.org/staff/missy-zippel/) - MissyZippel@bleedingdisordersfl.org
- [Eileen Gregory](https://bleedingdisordersfl.org/staff/eileen-gregory/)
- [Joe Riggs](https://bleedingdisordersfl.org/staff/joe-riggs/)
- [Shannon Baidenmann](https://bleedingdisordersfl.org/staff/shannon-baidenmann/) - ShannonBaidenmann@bleedingdisordersfl.org
- [Pete Vrochopoulos](https://bleedingdisordersfl.org/staff/pete-vrochopoulos/)
- [Hector L. Cartegena](https://bleedingdisordersfl.org/staff/hector-l-cartegena/)
- [Dina Richardson](https://bleedingdisordersfl.org/staff/dina-richardson/) - dinarichardson@bleedingdisordersfl.org
- [Ed Bookbinder](https://bleedingdisordersfl.org/staff/ed-bookbinder/)
- [Mike Berkman](https://bleedingdisordersfl.org/staff/mike-berkman/)
- [Alan Apte](https://bleedingdisordersfl.org/staff/alan-apte/)

## Slides

- [WE NEED YOU TO ADVOCATE FOR THE BLEEDING DISORDER COMMUNITY.](https://bleedingdisordersfl.org/slide/advocating-for-you/) - BDFF advocates for you both statewide and nationally. We invite you to join us!
- [WE LOVE CAMP SPIRIT!](https://bleedingdisordersfl.org/slide/hfgf-thanks-our-industry-partners/) - THANK YOU TO ALL OF OUR DONORS AND INDUSTRY PARTNERS WHO SUPPORT OUR EVENTS, PROGRAMS, AND COMMUNITY
- [CHECK OUT THE WALKS & RUN/WALKS THAT ARE HAPPENING IN YOUR AREA AND JOIN THE FUN TODAY!](https://bleedingdisordersfl.org/slide/walks/) - LEARN MORE ABOUT OUR FUNDRAISING WALKS. CLICK HERE
- [FLORIDA HEMOPHILIA TREATMENT CENTERS](https://bleedingdisordersfl.org/slide/we-love-our-htcs/) - BDFF SUPPORTS OUR HEMOPHILIA TREATMENT CENTERS THROUGH EDUCATION, CONNECTION OPPORTUNITIES, AND MORE

## Events

- [Teen Retreat](https://bleedingdisordersfl.org/event/teen-retreat-2/) - Join the BDFF for a great learning experience on Saturday, July 29th at Busch Gardens for the 2023 Teen Retreat! For more information, email info@bleedingdisordersfl.org or call 800-293-6527.
- [Family Retreat Weekend](https://bleedingdisordersfl.org/event/family-retreat-weekend-5/) - Join Us For Our Camp Spirit Family Retreat Weekend! Fun For The Whole Family! Click Here To Learn More And Register! October 9-11th, 2026 FREE Family Retreat Weekend at Camp Boggy Creek Whether you're a returning camper or joining us for the first time, everyone is welcome. Open to families of children with bleeding disorders
- [Bleeding Disorders Trivia Dinner](https://bleedingdisordersfl.org/event/bleeding-disorders-trivia-dinner/) - Join Us For A Special Dinner Program! Bleeding Disorders Trivia Presented By Martina Willis-Mccullough, BSN, RN Senior Medical Science Liaison, Hematology Friday, July 31st, 2026 6:30PM World Equestrian Center - Ocala Astons Room 1750 NW 80th Ave Ocala, FL 34482 Join us for dinner and a fun and educational program where you can learn more
- [Hello Talk: Woman Matter In Bleeding Disorders Dinner Program](https://bleedingdisordersfl.org/event/hello-talk-woman-matter-in-bleeding-disorders-dinner-program/) - Join Us For A Special Dinner Program! Hello Talk: Women Matter in Bleeding Disorders Presented By Alexandra Soto, Community Education Specialist Thursday, July 30th, 2026 6:30PM Maria and Enzo’s - First Class Lounge 1560 E Buena Vista Dr Lake Buena Vista, FL 32830 Guests will enjoy dinner while learning more about the unique challenges of
- [Newsies and Dinner Program](https://bleedingdisordersfl.org/event/newsies-and-dinner-program/) - Join the UF Health Hemophilia Treatment Center and the BDFF at Ripple Theatricals for an family-fun evening inspired by the spirit and energy of Newsies! Enjoy a delicious dinner, an exciting live performance, and a special surprise that will make the night even sweeter. Bring your family, friends, and fellow newsies for a night of
- [Youth Retreat](https://bleedingdisordersfl.org/event/youth-retreat-4-3/) - Join Us For The Youth Retreat! For Ages 13-21 Link Up: Youth Retreat Build Connections That Stick July 10th, 2026 at 10:30AM Loews Sapphire Falls Resort 6601 Adventure Way Orlando, FL 32819 Enjoy a fun program and lunch, followed by an exciting afternoon at Universal Orlando's Islands of Adventure! You and one guest are invited
- [Understanding Treatment For Higher And Longer Levels Dinner Program](https://bleedingdisordersfl.org/event/understanding-treatment-for-higher-and-longer-levels-dinner-program/) - Join Us For A Special Dinner Program! Understanding Treatment For Higher And Longer Levels Presented By Dr. Shveta Gupta and Morgan DiPrima Thursday, June 11th, 2026 @ 6:30PM Christner's Prime Steak And Lobster 872 Lee Road Orlando, FL 32810 Guests will enjoy dinner while exploring a Hemophilia A treatment with higher-for-longer factor levels and hear
- [Annual Women's Retreat](https://bleedingdisordersfl.org/event/annual-womens-retreat/) - Join Us For The Annual Women's Retreat! June 26th-27th, 2026 Starting At 6:30PM at the Renaissance St. Augustine Historic Downtown Hotel 6 W Castillo Dr, Saint Augustine, FL, 32084 The Retreat is a special overnight program for woman/girls with bleeding disorders and carriers. You will learn the most updated information from the experts, share information and
- [Adversity, Strength, and Resilience Dinner Program](https://bleedingdisordersfl.org/event/adversity-strength-and-resilience-dinner-program/) - Join Us For An Special Dinner Program! Adversity, Strength, and Resilience Presented By Daysi Fardales, Hemophilia Patient Navigator Wednesday, May 20th, 2026 at 6:30PM The Swamp Restaurant 1104 SW 2nd Ave Gainesville, FL 32601 This is a special program where you can enjoy dinner and learn about how to be strong with your bleeding disorder.
- [Annual Family Program At SeaWorld](https://bleedingdisordersfl.org/event/annual-family-program-at-seaworld-2/) - Facilitated by SAK Comedy Lab The day includes: Breakfast Interactive family program AND a fun day at SeaWorld® Orlando You must attend the program to go into the park.
- [Ladies Tea Luncheon](https://bleedingdisordersfl.org/event/ladies-tea-luncheon-2/) - Please join us for a special Ladies Tea Luncheon! Women’s & Girls’ Bleeding Disorders: Updates on Treatment Options Presented by Dr. Erin Cockrell, Director at St. Jospeh's Hospital Center for Bleeding and Clotting Disorders Enjoy an informative luncheon program with great conversation and meaningful connections. Saturday, May 16th, 2026 at 11:00AM American Social - Tampa,
- [2026 Camp Spirit](https://bleedingdisordersfl.org/event/2026-camp-spirit/) - CAMP SPIRIT, WHERE THE SUMMER FUN BEGINS!
- [World Hemophilia Day Celebration](https://bleedingdisordersfl.org/event/world-hemophilia-day-celebration-2/) - Join us for a special dinner program! WORLD HEMOPHILIA DAY CELEBRATION Presented by Eric Burgeson, Sanofi Senior Community Relations Manager Thursday, April 23rd, 2026 @ 6:00PM Morton's The Steakhouse 7600 Dr. Phillips Blvd Ste 132 Orlando, FL 32819 Guests will enjoy a delicious dinner and learn about the global impact and presence of bleeding disorders.
- [Orlando Dinner Program - Its A Feeling. If You Know, You Know.](https://bleedingdisordersfl.org/event/orlando-dinner-program-its-a-feeling-if-you-know-you-know/) - Join Us For A Special Dinner Program! It's A Feeling. If You Know You Know (Fireside Chat) Presented By Veronica S. Bleeding Disorders Advocate Thursday, March 12th, 2026 6:30pm North Italia 7335 Sand Lake Rd Orlando, FL 32819 Guests will enjoy a delicious dinner and the opportunity to connect with Veronica S.
- [Orlando Magic Game And Dinner Program](https://bleedingdisordersfl.org/event/orlando-magic-game-and-dinner-program/) - Join the BDFF for a Fun Family Dinner Program! Presented by Coach Pete Dyson CSL Behring Getting in the Game Athlete Sunday March 1, 2026 4:00 PM The Kia Center 400 W. Church Street Orlando, Florida Guests MUST enter through the Administration Entrance located left of the Magic Team Shop at the corner of S. Hughey Ave. and Church
- [All About Hympavzi Dinner Program](https://bleedingdisordersfl.org/event/all-about-hympavzi-dinner-program/) - Cooper’s Hawk Winery & Restaurant 4110 W Boy Scout Blvd Tampa, FL 33607 Guests will enjoy a delicious dinner and the opportunity to connect with Daysi F. as she shares more information about Hympavzi and answers questions.
- [Embrace Life In Full Color Dinner Program](https://bleedingdisordersfl.org/event/embrace-life-in-full-color-dinner-program/) - Seasons 52 - Sand Lake 7700 Sandlake Road Orlando, FL 32819 Join us for an interactive program and dinner where you can learn more about living with VWD! Explore what it means to live VONVENDI Vibrant and discover your own personal vision for your treatment and future.
- [15th Annual Gator Clot Trot](https://bleedingdisordersfl.org/event/15th-annual-gator-clot-trot/) - REGISTER AT 2025 Gator Clot Trot 5K & Fun Walk - 15th Annual Gator Clot Trot For More Information call 800-293-6527 or info@bleedingdisordersfl.org
- [20th Annual Orlando Creepy Crawl Fun Walk and 5K Run](https://bleedingdisordersfl.org/event/20th-annual-orlando-creepy-crawl-fun-walk-and-5k-run/) - ORLANDO CREEPY CRAWL 2026 Join Us for the Creepy Crawl Fun Walk & 5K Run Fundraising Event! Saturday, October 24th, 2026 Harbor Park 4990 New Broad Street Orlando, FL 32814 The Walk: Free! However, we hope you will donate and raise funds to support the Bleeding Disorders Foundation of Florida’s mission. The Run: $25 for adults and
- [19th Annual Superhero Fun Walk](https://bleedingdisordersfl.org/event/19th-annual-superhero-fun-walk/) - 19th Annual Superhero Fun Walk Fundraise for the BDFF Join Us for the 19th Annual Superhero Fun Walk! Date: September 26, 2026 Location: Vinoy Park 701 Bayshore Dr NE St. Petersburg, FL 33701 Event Schedule: Registration: Starts at 9:00 AM Walk: Begins at 10:00 AM The Walk: Free! However, we hope you will donate and raise funds to support the Bleeding
- [30th Annual Flight For Tomorrow Invitational Golf Tournament](https://bleedingdisordersfl.org/event/30th-annual-flight-for-tomorrow-invitational-golf-tournament/) - 30th Annual Flight for Tomorrow Invitational Golf Tournament MONDAY, APRIL 13, 2026 Ardea Country Club 1055 East Lake Woodlands Pkwy Oldsmar, FL 34677 Day of Tournament Schedule of Events OPEN REGISTRATION: 10:30 am LUNCH: 11:00 am SHOTGUN START: Noon Dinner Buffet, Auction, Raffle & Awards following the Tournament Contact info@bleedingdisordersfl.org or call 800-293-6527 for more information. Golf Tournament
- [Tampa Dinner - It's A Feeling. If You Know, You Know.](https://bleedingdisordersfl.org/event/tampa-dinner-its-a-feeling-if-you-know-you-know/) - Join us for a special dinner presentation! Its A Feeling. If You Know, You Know. (Ambassador First/Fireside Chat) Presented by: Caregiver Julia C Thursday, November 13th, 2025 @ 6:30pm Columbia Restaurant 2117 E 7th Ave Tampa, FL 33605 RSVP by November Presented by Genentech!
- [24th Annual Evening on Broadway](https://bleedingdisordersfl.org/event/24th-annual-evening-on-broadway/) - A night of dazzling performances, stunning visuals, and unforgettable music at the Dr. Phillips Center of Performing Arts. Harry Potter and the Cursed Child February 7th, 2026
- [Gainesville Holiday Party](https://bleedingdisordersfl.org/event/gainesville-holiday-party-5/) - Join us for a fun Holiday dinner! You get to meet a special man in a red suit and have a magical evening! Email info@bleedingdisordersfl.org to register. Swamp Restaurant 1104 SW 2nd Ave Gainesville, Florida 32601
- [4th Annual Latin Conference](https://bleedingdisordersfl.org/event/4th-annual-latin-conference/) - Join us for a fun time at the 4th Annual Latin Conference. More information will be coming soon. To learn how to register, email info@bleedingdisordersfl.org or call (407)629-0000. Renaissance Orlando Resort - Disney Springs Area 1905 Hotel Plaza Blvd Lake Buena Vista, FL 32830
- [Jacksonville Holiday Party](https://bleedingdisordersfl.org/event/jacksonville-holiday-party-4/) - Join us for some Holiday fun! You'll get to play some awesome holiday trivia and meet a special someone in a special red suit! Email info@bleedingdisorderfl.org to RSVP. Hyatt Regency Jacksonville Riverfront 225 East Coastline Drive Jacksonville, FL 32202
- [Tampa Holiday Party](https://bleedingdisordersfl.org/event/tampa-holiday-party/) - Join us for some holiday fun! Play some holiday trivia and meet a special guest in a red suit! Email info@bleedingdisordersfl.org to RSVP. Zoo Tampa at Lowry Park 1101 W Sligh Ave Tampa, FL 33604
- [District Advocacy Day](https://bleedingdisordersfl.org/event/district-advocacy-day/) - Join the BDCF District Day, a fun, easy way to connect with Florida’s elected officials and make a real difference for the bleeding disorders community. Email us at info@bleedingdisordersfl.org for more information.
- [TopGolf Panama City](https://bleedingdisordersfl.org/event/topgolf-panama-city/) - September 26th @ 6:00pm
- [Topgolf Tampa](https://bleedingdisordersfl.org/event/topgolf-tampa-2/)
- [Gator vs LSU Game!](https://bleedingdisordersfl.org/event/gator-vs-lsu-game/)
- [Woman's Tea Luncheon](https://bleedingdisordersfl.org/event/womans-tea-luncheon/) - Join us for a Ladies' Tea and Luncheon Sharing the most updated information about Women and Bleeding Disorders Presented by Mily M-C Patient Advocate Saturday, September 6, 2025 11:00 am Disney's Yacht & Beach Club Resorts Cape Cod Hall 1700 Epcot Resorts Boulevard Lake Buena Vista, Florida 32830-8407 RSVP by August 30, 2025 Email: info@bleedingdisordersfl.org
- [Teen/Youth Retreat](https://bleedingdisordersfl.org/event/teen-youth-retreat-2/) - Join your community for a day of fun, friendship, and fresh vibes!
- [Jacksonville Patient - TopGolf Family Program](https://bleedingdisordersfl.org/event/jacksonville-patient-topgolf-family-program/) - Join us for a fun family program at TopGolf Jacksonville!
- [16th Annual Jacksonville Safari Walk](https://bleedingdisordersfl.org/event/16th-annual-jacksonville-safari-walk/) - Enjoy a delightful walk around the zoo as we celebrate Bleeding Disorders Awareness Month!
- [Trailblazers Holiday Bike Ride, Stroll & Festival](https://bleedingdisordersfl.org/event/trailblazers-holiday-bike-ride-stroll-festival/) - JOIN THE BDFF FOR THE 3rd ANNUAL TRAILBLAZER HOLIDAY BIKE RIDE, STROLL, & FESTIVAL SATURDAY, DECEMBER 13, 2025
- [Annual Family Program at SeaWorld](https://bleedingdisordersfl.org/event/annual-family-program-at-seaworld/) - SMART ADVENTURES: LEARN, LAUGH, AND PLAY Facilitated by Mike Rosenthal The day includes: Breakfast Interactive family program AND a fun day at SeaWorld® Orlando You must attend the program to go into the park.
- [Women's Retreat](https://bleedingdisordersfl.org/event/womens-retreat-2/) - The Women's Retreat is a special overnight program for women and girls with bleeding disorders, as well as carriers. Participants will receive the latest information from experts, share experiences, and enjoy a variety of fun activities.
- [Women's Luncheon - Tampa](https://bleedingdisordersfl.org/event/womens-luncheon-tampa/) - Enjoy an informative luncheon program with great conversation and meaningful connections.
- [Family Retreat Weekend](https://bleedingdisordersfl.org/event/family-retreat-weekend-4/) - Family Retreat Weekend is the perfect way for families to get familiar with Camp Spirit. The whole family is invited to spend a weekend at Camp Spirit so that everyone in the family can get comfortable with all of the fun activities available at Camp Spirit. This way, when it’s time for kids to go
- [Camp Spirit](https://bleedingdisordersfl.org/event/camp-spirit-4/) - CAMP SPIRIT, WHERE THE SUMMER FUN BEGINS!
- [14th Annual Gator Clot Trot 5K/Fun Walk & Easter Egg Hunt](https://bleedingdisordersfl.org/event/14th-annual-gator-clot-trot-5k-fun-walk/) - Hop with us to the 14th Annual Gator Clot Trot 5K/Fun Walk & Easter Egg Hunt!
- [29th Annual Golf Tournament](https://bleedingdisordersfl.org/event/29th-annual-golf-tournament/) - 29th Annual Flight for Tomorrow Invitational Golf Tournament MONDAY, APRIL 7, 2025 Ardea Country Club 1055 East Lake Woodlands Pkwy Oldsmar, FL 34677
- [18th Annual Superhero Fun Walk](https://bleedingdisordersfl.org/event/18th-annual-superhero-fun-walk/) - 18th Annual Superhero Fun Walk Fund Raise for the BDFF Save the Day at the 2025 Superhero Walk! Date: September 20, 2025 Location: Vinoy Park 701 Bayshore Dr NE St. Petersburg, FL 33701
- [19th Annual Creepy Crawl 5K & Fun Walk](https://bleedingdisordersfl.org/event/19th-annual-creepy-crawl-5k-fun-walk/) - ORLANDO CREEPY CRAWL 2025 Join Us for the most Fun Creepy Crawl Fun Walk & 5K Run Fundraising Event! Saturday, October 25, 2025 Harbor Park, 4990 New Broad Street, Orlando, Florida 32814 Registration: Begins at 4:00 PM 5K Run / Fun Walk: Starts at 5:00 PM Raise $25 or more and receive a special walk t-shirt and other
- [23rd Annual Evening on Broadway](https://bleedingdisordersfl.org/event/23rd-annual-evening-on-broadway/) - Join us at the Dr. Phillips Center of Performing Arts For a night of Theatre Magic! May 3, 2025 6:00 pm FEATURING THE HIT BROADWAY PRODUCTION OF The Lion King Tickets are $200 per person and includes: A Private Reception Reserved Orchestra Seating Silent Auction & Raffle
- [Patient Program: Orlando Magic Game](https://bleedingdisordersfl.org/event/patient-program-orlando-magic-game/) - Join the BDFF for a fun family dinner program! Pushing Through Life Challenges Presented by Seth Rojhani
- [Tampa Patient Dinner Program: Enhancing Awareness](https://bleedingdisordersfl.org/event/tampa-dinner-program-enhancing-awareness/) - Join us for an educational dinner program! Enhancing Awareness: Bleeding Disorders Education featuring speakers Dr. Cockrell and Dr. Soto & Experienced Patients sharing their story Thursday, February 20, 2025 6:00PM The Capital Grille 2223 N Westshore Blvd. Suite b228 Tampa, FL 33608 This program will be presented in both English and Spanish Este programa se
- [Orlando Patient Dinner Program: The Whole Tooth](https://bleedingdisordersfl.org/event/orlando-patient-dinner-program-the-whole-tooth/) - JOIN US FOR AN EDUCATIONAL FAMILY DINNER The Whole Tooth: Understanding the Importance of Oral Health Presented by Alexandra Soto Community Education Specialist Thursday, February 6, 2025 6:30 pm Seasons 52 7700 Sand Lake Road Orlando, FL 32819 RSVP BY MONDAY, FEBRUARY 3, 2025 info@bleedingdisordersfl.org or 800-293-6527
- [15th Annual Jacksonville Safari Walk](https://bleedingdisordersfl.org/event/15th-annual-jacksonville-safari-walk/) - Take a walk on the wild side to help us kick-start Bleeding Disorders Awareness Month!
- [Jacksonville Holiday Party](https://bleedingdisordersfl.org/event/jacksonville-holiday-party-3/) - You're invited to join Nemours Children's Health, Jacksonville & The Bleeding Disorders Foundation of Florida for a very special family ho-ho-holiday event! Sunday December 15, 2024 11:00 am Hyatt Regency Jacksonville Riverfront 225 East Coastline Drive, Jacksonville, FL 32202 The day includes: Ho-Ho-Holiday Fun, Trivia, Brunch & a very Special Guest in a red coat
- [Gainesville Holiday Party](https://bleedingdisordersfl.org/event/gainesville-holiday-party-4/) - Celebrate the holidays with the BDFF and UF Health HTC at this fun splatter party event!
- [3rd Annual Latin Conference](https://bleedingdisordersfl.org/event/3rd-annual-latin-conference/) - More information coming soon...
- [Tampa Dinner Program](https://bleedingdisordersfl.org/event/tampa-dinner-program/) - Dine with us and discover how to navigate the world of bleeding disorders.
- [Trailblazers Holiday Bike Ride & Fun Walk](https://bleedingdisordersfl.org/event/trailblazers-holiday-bike-ride-fun-walk/) - JOIN THE BDFF FOR THE 2nd ANNUAL. TRAILBLAZER BIKE RIDE/FUN WALK ON SATURDAY, DECEMBER 14, 2024 Bike Registration is $35 for Individuals, walkers are free, and you can form a Fun Team
- [Family Retreat Weekend](https://bleedingdisordersfl.org/event/family-retreat-weekend-3/) - Family Retreat Weekend is the perfect way for families to get familiar with Camp Spirit. The whole family is invited to spend a weekend at Camp Spirit so that everyone in the family can get comfortable with all of the fun activities available at Camp Spirit. This way, when it’s time for kids to go
- [28th Annual Flight for Tomorrow Invitational Golf Tournament](https://bleedingdisordersfl.org/event/28th-annual-flight-for-tomorrow-invitational-golf-tournament/) - We are pleased to be hosting the 28th annual Flight for Tomorrow Invitational Golf Tournament. Proceeds from this tournament provide the funding for all kids with bleeding disorders (ages 7-16) in the state of Florida to attend bleeding disorders Summer Camp. It also enables families to attend the annual Bleeding Disorders Family Retreat Weekend in
- [SUPERHERO WALK COMMITTEE MEETING](https://bleedingdisordersfl.org/event/superhero-walk-committee-meeting/) - WE NEED YOUR HELP! Join us for the Superhero virtual committee planning meeting Wednesday, September 4, 2024, 11:00 am RSVP: info@bleedingdisordersfl.org or 800-293-6527
- [Creepy Crawl Committee Meeting](https://bleedingdisordersfl.org/event/creepy-crawl-committee-meeting/) - We need your help! Join us for the Creepy Crawl Virtual Committee Meeting Tuesday, Aug 27, 2024, 11:00 AM RSVP: info@bleedingdisordersfl.org or 800-293-6527
- [Tampa Patient Program at Topgolf: Back-to-School](https://bleedingdisordersfl.org/event/tampa-patient-program-at-topgolf-back-to-school/) - Join us for a fun family back-to-school program at Topgolf!
- [Orlando Patient Program: Women's Tea and Luncheon](https://bleedingdisordersfl.org/event/orlando-patient-program-womens-tea-and-luncheon/) - There is no such thing as too much tea! Join us for a fun, educational discussion about Women and Bleeding Disorders at Disney's Grand Floridian.
- [Women's Retreat](https://bleedingdisordersfl.org/event/womens-retreat/) - The Women's Retreat is a special overnight program for woman/girls with bleeding disorders and carriers. You will learn the most updated information from the experts, share information and have lots of fun!
- [Jacksonville Patient Dinner Program](https://bleedingdisordersfl.org/event/jacksonville-patient-dinner-program/) - RSVP by June 10th for this fun, educational dinner program!
- [Pensacola Patient Dinner Program](https://bleedingdisordersfl.org/event/pensacola-patient-dinner-program/) - Let's talk about Factor Fluency! Join us on June 5th at The District restaurant for a fun, educational dinner program.
- [Tampa Dinner Program: Health Insurance Roadmap](https://bleedingdisordersfl.org/event/tampa-dinner-program-health-insurance-roadmap/) - Join us at the Columbia Restaurant on May 29th for an educational dinner program. The program will begin at 6:30PM. Please RSVP by Monday, May 27th.
- [Annual Family Program at SeaWorld Orlando](https://bleedingdisordersfl.org/event/annual-family-program-at-seaworld-orlando/) - What is the same and what has changed? Join us for a very special family program at SeaWorld Orlando on June 1st! RSVP by emailing info@bleedingdisordersfl.org or call 800-293-6527
- [Jacksonville Dinner Program: Gene Therapy](https://bleedingdisordersfl.org/event/jacksonville-dinner-program-gene-therapy/) - Join us on Thursday, May 16th at Maggiano's in St. Johns Town Center for an educational dinner program on gene therapy. After the program, we will be holding a Celebration of Life for Missy Zippel to share our favorite stories and unforgettable memories.
- [Pensacola Patient Dinner: The Science Behind Gene Therapy](https://bleedingdisordersfl.org/event/pensacola-patient-dinner-the-science-behind-gene-therapy/) - Join us for a fun educational dinner program in the Panhandle!
- [Teen & Youth Retreat](https://bleedingdisordersfl.org/event/teen-youth-retreat/) - SAVE THE DATE for Friday, July 19th at the Hard Rock Cafe for the 5th annual Teen & Youth Retreat! More information to come.
- [Tampa Patient Program: Women's Tea and Luncheon](https://bleedingdisordersfl.org/event/tampa-patient-program-womens-tea-and-luncheon/) - Join us for a Ladies' Tea and Luncheon at the Empress Room to discuss the most updated information about women and bleeding disorders!
- [Orlando Patient Dinner: World Hemophilia Day Celebration](https://bleedingdisordersfl.org/event/orlando-patient-dinner-world-hemophilia-day-celebration/) - Join us for a World Hemophilia Day celebration and dinner at the beautiful Leu Gardens!
- [18th annual Orlando Creepy Crawl 5k & Fun Walk](https://bleedingdisordersfl.org/event/18th-annual-orlando-creepy-crawl-5k-fun-walk/) - Join us in the fun at the 18th annual Creepy Crawl 5k Run & Fun Walk on October 26th at Harbor Park, 4990 New Broad Street Orlando, FL from 4-7PM!
- [17th annual Superhero Fun Walk](https://bleedingdisordersfl.org/event/17th-annual-superhero-fun-walk/) - Join the Bleeding Disorders Foundation of Florida for fun, food, games, and more at the 17th annual Superhero Fun Walk on September 21, 2024 from 9AM-12PM at Vinoy Park, 701 Bayshore Drive NE St. Petersburg, FL 33701!
- [Gainesville Patient Dinner Program](https://bleedingdisordersfl.org/event/gainesville-patient-dinner-program/)
- [South Florida Patient Program: Women's Tea and Luncheon](https://bleedingdisordersfl.org/event/south-florida-patient-program-womens-tea-and-luncheon/)
- [Camp Spirit](https://bleedingdisordersfl.org/event/camp-spirit-3/)
- [Orlando Patient Dinner Program](https://bleedingdisordersfl.org/event/orlando-patient-dinner-program/)
- [Florida State Meeting](https://bleedingdisordersfl.org/event/florida-state-meeting-advocacy-days/)
- [Orlando Patient Program: Orlando Magic Game](https://bleedingdisordersfl.org/event/orlando-patient-program-orlando-magic-game/) - Join the BDFF and a special guest speaker for a fun program at the Kia Center (previously Amway Center) on January 28th!
- [13th Annual Gator Clot Trot 5K Run & Walk](https://bleedingdisordersfl.org/event/13th-annual-gator-clot-trot-5k-run-walk/) - Join us on April 6th for the 13th Annual Gator Clot Trot 5K Run & Walk at Sante Fe College, 3000 NW 83rd Street, Gainesville, FL 32606. Registration starts at 8AM, and the Run/Walk will begin at 9AM!
- [2nd Annual Latin Conference](https://bleedingdisordersfl.org/event/2nd-annual-latin-conference/) - Join us for a fun Latin festival!
- [Orlando Dinner Program: If You Know, You Know!](https://bleedingdisordersfl.org/event/orlando-dinner-program-if-you-know-you-know/)
- [Jacksonville Patient Program: Holiday Trivia](https://bleedingdisordersfl.org/event/jacksonville-patient-program-holiday-trivia/) - You're invited to join Jacksonville Nemours Children's Clinic & The Bleeding Disorders Foundation of Florida for a very special family ho-ho-ho-holiday event! Sunday December 17, 2023 11:00 am at the Hyatt Regency Jacksonville Riverfront 225 East Coastline Drive, Jacksonville, FL 32202 The day includes: Ho-Ho-Holiday Fun, Trivia, Brunch & a very Special Guest in a
- [2024 Jacksonville Safari Walk](https://bleedingdisordersfl.org/event/2024-jacksonville-safari-walk/) - 2024 Jacksonville Safari Walk SAVE THE DATE... February 24, 2024 Jacksonville Zoo and Garden 370 Zoo Pkwy Jacksonville, FL 32218 Enjoy a walk AROUND THE ZOO and a special zoo celebration!
- [Tampa Fun Family Program: Zoo Tampa](https://bleedingdisordersfl.org/event/tampa-fun-family-program-zoo-tampa/) - Join us for a Fun Family Program “Advocating for your child from birth to college: the 411 on IEP and 504s.” & “Unity through community: getting involved with your local chapter.” Presented by Mily M-C Saturday, November 11, 2023 11:00 am Zoo Tampa at Lowry Park 1101 W. Sligh Ave, Tampa, FL 33604 Join us
- [Miami Program: Fun, Food, and Football!](https://bleedingdisordersfl.org/event/miami-program-fun-food-and-football/) - Fun, Food, and Football Saturday, November 18, 2023 11:00 am Program time may change. due to the UM Football Schedule, we will keep you posted. Presented by Dr. Kelli A Fraga Physical Therapist University of Miami Miller School of Medicine The program includes a fun program, delicious brunch, and tickets to the game of the
- [Inaugural Pat Solomon Memorial Bike Ride](https://bleedingdisordersfl.org/event/inaugural-pat-solomon-memorial-bike-ride/) - JOIN THE BDFF FOR THE INAUGURAL PAT SOLOMON MEMORIAL BIKE RIDE/FUN WALK SATURDAY, DECEMBER 9, 2023 CLERMONT BIKE/WALKING TRAIL Waterfront Park 300 3rd Street Clermont, FL 34711 REGISTRATION IS AT 8:00 am EVENT BEGINS AT 9:00 am Bike Registration is $35 for Individuals, walkers are free, and you can form a Fun Team BIKERS AND WALKERS RAISING
- [Gainesville Fun Family Program: Escapology](https://bleedingdisordersfl.org/event/gainesville-fun-family-program/) - Learn how your HTC and BDFF collaborate, and what they have to offer the community! November 12, 2023 1:00 PM Lunch is provided. All ages are invited! Escapology Celebration Pointe 4480 SW 32nd Rd Suite 10 Gainesville, FL 32608 To RSVP, call 800-293-6527 or email info@bleedingdisordersfl.org Sponsored by:
- [Orlando Dinner Program: Gene Therapy in Hemophilia A](https://bleedingdisordersfl.org/event/orlando-dinner-program-gene-therapy-in-hemophilia-a/) - Join us for a Special Dinner Program Gene Therapy in Hemophilia A: Come find out what all the buzz is about—from curiosity to eligibility and beyond Facilitated by Maria E. Torres Esteves, R.Ph., Pharm.D. Account Manager, Gene Therapy BioMarin Pharmaceutical Inc. Thursday, October 12, 2023 6:00PM Season's 52 Restaurant Orlando 7700 W Sand Lake Rd
- [Family Retreat Weekend](https://bleedingdisordersfl.org/event/family-retreat-weekend-2/) - Family Retreat Weekend is the perfect way for families to get familiar with Camp Spirit. The whole family is invited to spend a weekend at Camp Spirit so that everyone in the family can get comfortable with all of the fun activities available at Camp Spirit. This way, when it’s time for kids to go
- [Fun Family Program: All Star Trivia at Adventure Island](https://bleedingdisordersfl.org/event/fun-family-program-all-star-trivia-at-adventure-island/) - Join us for a Special Family Program! ALL STAR TRIVIA Test your bleeding disorder knowledge and other fun trivia Saturday, August 26, 2023 10:00 AM Rain or Shine Adventure Island 4500 Bougainvillea Ave Tampa, FL 33617 The day includes breakfast, fun, and an afternoon at Adventure Island! RSVP by August 21, 2023
- [Patient Dinner Program](https://bleedingdisordersfl.org/event/patient-dinner-program/) - Join us for a special dinner program A Discussion on Hem A Product Presented By Shveta Gupta, M.D. Director of Hematology at Orlando Health Thursday, July 27, 2023 6:30 PM The Capital Grille 4200 Conroy Road Orlando, FL 32839 RSVP by July 24, 2023 info@bleedingdisordersfl.org or 800-293-6527 Sponsored By
- [21st Annual Evening on Broadway](https://bleedingdisordersfl.org/event/21st-annual-evening-on-broadway/) - TICKETS ARE ON SALE NOW 21st Annual Evening on Broadway Join us at the Dr. Phillips Center of Performing Arts For a night of Theatre Magic! Saturday March 2, 2024 FEATURING THE HIT BROADWAY PRODUCTION OF The Evening includes: A Private Reception Reserved Orchestra Seating Silent Auction & Raffle Tickets are $150 each Corporate Sponsorships are available
- [Topgolf Orlando: Fun Family Program](https://bleedingdisordersfl.org/event/topgolf-orlando-fun-family-program/) - Join us for a Fun Family Program An information conversation about Hemophilia A Presented By Tim G. Common Factors® Advocate Thursday, August 3, 2023 6:30 PM Topgolf Orlando 9295 Universal Blvd Orlando, FL 32819 This program includes refreshments and Topgolf playing RSVP by July 28, 2023 info@bleedingdisordersfl.org or 800-293-6527 Sponsored By
- [Flight for Tomorrow Golf Tournament](https://bleedingdisordersfl.org/event/flight-for-tomorrow-golf-tournament/) - Join us on Monday, October 23rd for the 27th Annual Flight for Tomorrow Golf Tournament for a day of fun, food, silent auctions, raffles, and golf! The golf tournament is BDFF's largest fundraiser of the year, and your support is so appreciated. Form a team and join the fun! East Lake Woodlands Country Club
- [Blaze Pizza Special Fundraiser](https://bleedingdisordersfl.org/event/blaze-pizza-special-fundraiser/) - RAISE SOME DOUGH and come to Blaze Pizza in Winter Park (501 N Orlando Ave, Winter Park, FL 32789) to support the BDFF on June 8th from 4-9PM while enjoying some delicious pizza! Blaze Pizza will donate 20% of proceeds from your meal back to our organization. We can't wait to see you there!
- [Camp Spirit](https://bleedingdisordersfl.org/event/camp-spirit-2/) - The Bleeding Disorders Foundation of Florida (BDFF) has been sending children to Camp for 22 years. The BDFF supports more than 70 children ages 7-16 to attend Camp Spirit, summer camp program. Camp Spirit is an overnight camping program that offers campers the chance to enjoy a week at a medically supervised camp. Join
- [Women's/Girls' Annual Retreat](https://bleedingdisordersfl.org/event/womens-girls-annual-retreat/) - Join us for a special Women's Retreat from June 9-10th (Friday-Saturday) starting at 6:30PM at the historic downtown Renaissance hotel in St. Augustine! Address: 6 W Castillo Dr. Saint Augustine, FL 32804 The Women's Retreat is a special overnight program for women/girls with bleeding disorders and carriers. You will learn the most updated
- [17th Annual Creepy Crawl 5K Run & Walk](https://bleedingdisordersfl.org/event/17th-annual-creepy-crawl-5k-run-walk/) - Join us on Saturday, October 28th at Harbor Park in Baldwin Park from 4-7PM for a SPOOKY evening filled with fun, food, special guests, and more. Invite family, friends, neighbors, coworkers, and whomever else you'd like, all are welcome! Dress up as your favorite Halloween character, and beware of ghosts! Remember--Raise $25 or more
- [Superhero Fun Walk](https://bleedingdisordersfl.org/event/superhero-fun-walk/) - CALLING ALL SUPERHEROES! Join us at the 16th Annual Superhero Fun Walk on Saturday, September 23rd at the beautiful Vinoy Park for fun, food, games, prizes, special guests, and more. Don't forget to dress up as your favorite superhero! Find out more about the Superhero Walk here: 2023 Superhero Walk
- [Family Dinner -Hemophilia is a Piece of you not all of you](https://bleedingdisordersfl.org/event/family-dinner-hemophilia-is-a-piece-of-you-not-all-of-you/) - You're invited to a family dinner program- Hemophilia is A Piece of You Not All of You. Speakers Janet Martin, MSN, RN-BC, CPN & Tony A Thursday April 6, 2023 6:30 pm Seasons 52 7700 W. Sand Lake Road Orlando, Florida 32819
- [Women's Tea - Orlando](https://bleedingdisordersfl.org/event/11435/) - Join us for a Ladies Tea Luncheon Sharing the most updated information about Women and Bleeding Disorders Presented by Shveta Gupta, MD Arnold Palmer Hospital for Children Director of Hemophilia and Thrombosis Center Director of the Young Women with Bleeding Disorder Clinic Haley Center for Cancer and Blood Diseases Saturday, May 6, 2023 11:00 am Cape
- [Bingo](https://bleedingdisordersfl.org/event/bingo-2/) - ADULTS ONLY EVENT BENEFITING THE BDFF EDUCATIONAL FUND
- [Women's Tea - Tampa](https://bleedingdisordersfl.org/event/womens-tea-tampa/) - Join us for a Ladies Tea Luncheon Sharing the most updated information about Women and Bleeding Disorders Presented by Erin Cockrell, DO Director St. Joseph’s Hospital Center for Bleeding and Clotting Disorders Saturday, April 22, 2023 11:00 am Rusty Pelican 2425 N Rocky Point Drive Tampa, FL 33607
- [Orlando Magic March Madness](https://bleedingdisordersfl.org/event/orlando-magic-march-madness/) - PROGRAM AND DINNER ARE INCLUDED
- [Gainesville Family Event](https://bleedingdisordersfl.org/event/11306/) - The BDFF cordially invites you to a A FUN FAMILY EVENT with the University of Florida HTC Saturday, March 4, 2023 4:00 pm at the SWAMP RESTAURANT 1104 SW 2nd Ave Gainesville Fl 32601 Enjoy a delicious dinner and see the Basketball game of the Season UF Gators vs LSU Tigers Join us for dinner
- [2023 Gainesville Clot Trot](https://bleedingdisordersfl.org/event/gainesville-clot-trot-2/)
- [Jacksonville Holiday Event](https://bleedingdisordersfl.org/event/jacksonville-holiday-event-2/) - Nemours Children's Clinic, Jacksonville & The Hemophilia Foundation of Greater Florida -for a very special family ho-ho-ho-holiday event- Sunday December 11, 2022 11:00 am At the Hyatt Regency Jacksonville Riverfront 225 East Coast Line Drive, Jacksonville, FL 32202 The day includes: Ho-Ho-Ho-Holiday Fun, Trivia, Brunch & a very Special Guest in a red coat RSVP
- [Gainesville Holiday Party](https://bleedingdisordersfl.org/event/gainesville-holiday-party-3/) - The University of Florida Hemophilia Treatment Center and Bleeding Disorders Foundation of Florida Cordially invite you to a - very merry family event - Holiday Dinner with the University of Florida HTC December 19, 2022 6:00 pm at the The SWAMP RESTAURANT 1104 SW 2nd Ave Gainesville Fl 32601 Enjoy a delicious dinner and a
- [Industry Update](https://bleedingdisordersfl.org/event/industry-update/) - Join us for an educational Family Dinner Program INDUSTRY UPDATE DISCOVER THE MOST UPDATED INFORMATION FROM OUR INDUSTRY PARTNERS Thursday, December 1, 2022 6:30 pm at 2425 N Rocky Point Drive Tampa, FL 33607 RSVP By: November 30, 2022 info@bleedingdisordersfl.org 800-293-6527 This program is for information only the Bleeding Disorders Foundation of Florida (BDFF) does not give
- [Youth Retreat](https://bleedingdisordersfl.org/event/youth-retreat/) - Youth Retreat November 5, 2022 10:00 am -3:00 pm Hard Rock Hotel Orlando Enjoy a great learning experience with the folks from Gut Monkey After the Program participants and one friend or parent will be able to go to Universal Studios.
- [Jacksonville Safari Walk](https://bleedingdisordersfl.org/event/jacksonville-creepy-crawl/)
- [26th Annual Flight for Tomorrow Invitational Golf Tournament](https://bleedingdisordersfl.org/event/26th-annual-flight-for-tomorrow-invitational-golf-tournament/) - 26th Annual Flight for Tomorrow Golf Tournament 1055 East Lake Woodlands Pkwy. Oldsmar, FL 34677 727.784.8576 Monday, October 24, 2022 All proceeds benefit the Bleeding Disorders Community
- [PUSHING THROUGH WITH POSITIVITY](https://bleedingdisordersfl.org/event/pushing-through-with-positivity/) - JOIN US FOR A SPECIAL FAMILY DINNER PROGRAM PUSHING THROUGH WITH POSITIVITY Presented By Pete D Common Factors Advocate (Baseball/Basketball) Friday, September 9, 2022 6:15 pm Exploria Stadium 655 W Church St, Orlando, FL 32805 Entrance at Gate A No Strollers - No Bags Parking not included After the program you will see the
- [Bleeding Disorder Trivia](https://bleedingdisordersfl.org/event/bleeding-disorder-trivia/) - Join us for a Special Family Program! ALL STAR TRIVIA Test your bleeding disorder knowledge and other fun trivia Saturday, August 13, 2022 10:00 am Rain or Shine ADVENTURE ISLAND 4500 Bougainvillea Ave Tampa, FL 33617 The day includes breakfast, fun, and an afternoon at Adventure Island! R.S.V.P. August 8, 2022 (Space is limited to
- [Ladies Tea Luncheon](https://bleedingdisordersfl.org/event/ladies-tea-luncheon/) - Join us for a Ladies Tea Luncheon Sharing the most updated information about Women and Bleeding Disorders Presented by Shveta Gupta, MD Director of Hemophilia and Thrombosis Center Director of the Young Women with Bleeding Disorder Clinic Haley Center for Cancer and Blood Diseases Arnold Palmer Hospital for Children Saturday, August
- [Jacksonville Dinner](https://bleedingdisordersfl.org/event/jacksonville-dinner/) - Join us for a Special Family Dinner Program A Conversation with your Hemophilia Treatment Center and Chapter Presented by NEMOURS CHILDREN'S CLINIC & THE BLEEDING DISORDERS FOUNDATION OF FLORIDA Thursday, June 16, 2022 6:00 PM Season's 52 Restaurant Jacksonville 5096 Big Island Drive Jacksonville, Florida 32246 RSVP June 15, 2022 info@bleedingdisordersfl.org or 800-293-6527
- [Fireside Chat Dinner](https://bleedingdisordersfl.org/event/fireside-chat-dinner/) - You're invited to a fireside chat and dinner with Presenters Cristie Vidal-Strub, ARNP, MSN & Clinical Educator & Julia, Guest Ambassador Wednesday, May 4, 2022 6:30 PM 3563 St. Johns Avenue, Jacksonville, FL 32205 (904) 619-2150 RSVP by Friday, April 29, 2022 Register today at: info@bleedingdisordersfl.org or 800.293.6527 Sponsored by
- [Kendra Scott](https://bleedingdisordersfl.org/event/kendra-scott/)
- [World Hemophilia Day Celebration](https://bleedingdisordersfl.org/event/world-hemophilia-day-celebration/) - Celebrate World Hemophilia Day 2022 One Family, an immersive experience on joint health Sunday, April 24, 2022 3:00- 6:00 pm Castle Hotel Orlando 8602 Universal Blvd Orlando, Florida 32819 FOOD and FUN
- [Camp Spirit Family Retreat Weekend](https://bleedingdisordersfl.org/event/camp-spirit-family-retreat-weekend/) - Camp Spirit Family Retreat Weekend October 7-9, 2022 A weekend full of family learning and fun For more information contact info@hemophiliaflorida or 800-293-6527
- [Camp Spirit Summer Camp Program](https://bleedingdisordersfl.org/event/camp-spirit-summer-camp-program/) - Camp Spirit Summer Camp July 14-18, 2002 For more information info@bleedingdisordersfl.org or 800-293-6527
- [Problem-solving day-to-day challenges of Hemophilia](https://bleedingdisordersfl.org/event/10195/) - Problem-Solving the day-to-day challenges of Hemophilia Interactive Discussion & Dinner
- [Gettin' in the Game of Life](https://bleedingdisordersfl.org/event/gettin-in-the-game-of-life/) - The Arnold Palmer Pediatric Bleeding Disorders Foundation of Florida invite you to a fun-filled family program and dinner. "Believing in Yourself: Gettin' in the Game of Life" featuring Pro Golfer, Perry Parker. Perry will be handing out golf tips & pointers. 6:00 pm to 8:30 pm at TopGolf Orlando. 9295 Universal Blvd., Orlando, FL 32819.
- [Pushing Through Life Challenges](https://bleedingdisordersfl.org/event/9964/) - Pushing Through Life Challenges Presented by Seth Rojhani Friday January 28, 2022 5:15 p.m. (please be on time for this great program) Amway Center Bank United Vault room (You will be escorted to the program by Magic staff) 400 West Church Street #200 Orlando, FL 32801 After the program enjoy the game
- [Annual Evening on Broadway](https://bleedingdisordersfl.org/event/annual-evening-on-broadway/) - 19th Annual Evening On Broadway Join us at the Dr. Phillips Center for a night of Theatre Magic! MARCH 4, 2022 FEATURING THE BROADWAY PRODUCTION OF The Hit Broadway Musical TICKETS NOW AVAILABLE $130 each SPONSORSHIPS ARE AVAILABLE
- [Gainesville Holiday Party](https://bleedingdisordersfl.org/event/gainesville-holiday-party-2/) - University of Florida Hemophilia Treatment Center Invites you to a fun Saturday, December 18th 11:00- 1:00 pm Learn about volunteering for the BDFF The day includes food, bowling, laser tag and a game card PLUS...FUN FOR ALL! RSVP December 15, 2021 info@Hemophiliaflorida.org 800.293.6527
- [Gainesville Clot Trot](https://bleedingdisordersfl.org/event/gainesville-clot-trot/) - Registration starts at 8am Veterans Memorial Park 7400 SW 41st Place Gainesville, FL 32608
- [Superhero Walk](https://bleedingdisordersfl.org/event/superhero-walk/) - Registration starts at 8am Vinoy Park 701 Bay Shore Dr NE St. Petersburg, FL 33701
- [Orlando Creepy Crawl](https://bleedingdisordersfl.org/event/orlando-creepy-crawl/) - Harbor Park at Baldwin Park 4990 New Broad Street Orlando, Florida 32814
- [Jacksonville Holiday Party](https://bleedingdisordersfl.org/event/jacksonville-holiday-party-2/) - Please Join Nemours Children's Clinic, Jacksonville & The Bleeding Disorders Foundation of Florida -for a very special family holiday event- Sunday, December 19, 2021 10:00 am At the Hyatt Regency Jacksonville Riverfront 225 East Coast Line Drive, Jacksonville, FL 32202 The day includes: Trivia, Brunch & enjoy the Football Game of the Season Jacksonville Jaguars
- [Orlando Family Dinner](https://bleedingdisordersfl.org/event/orlando-family-dinner/) - AMBASSADOR CHAT You're invited to a fireside chat and dinner with Presenters Cristie Vidal-Strub, ARNP, MSN & Clinical Educator & Maria Elena, HEMLIBRA ambassador Wednesday, December 15, 2021, 6:30 PM Blu on the Avenue 326 S. Park Avenue, Winter Park, FL 32789 RSVP by Friday, 12/10/2021 Register today at: info@bleedingdisordersfl.org or 800.293.6527 Sponsored by Genentech
- [Teen/Family Retreat](https://bleedingdisordersfl.org/event/teen-family-retreat/) - Join us for our 2nd Annual Youth Retreat For teens: 13-19 years old You Can Invite your FAMILY to attend  Saturday, December 4, 2021, 11:00 am The day includes: Wonderful lunch and information on how to be a great advocate for the bleeding disorder community. After the program...enjoy your afternoon at the Zoo Tampa.
- [Industry Update Family Dinner](https://bleedingdisordersfl.org/event/industry-update-family-dinner/) - Join us for an amazing Family Dinner Program INDUSTRY UPDATE DISCOVER THE MOST UPDATED INFORMATION FROM OUR INDUSTRY PARTNERS Thursday, December 2, 2021 6:30 pm at the Rusty Pelican 2425 N Rocky Point Drive Tampa, FL 33607 RSVP By: November 30, 2021 info@bleedingdisordersfl.org 800-293-6527
- [Youth Retreat](https://bleedingdisordersfl.org/event/youth-retreat-4-2/) - Join Us For The Youth Retreat! For Ages 13-21 Link Up: Youth Retreat Build Connections That Stick July 10th, 2026 10:30AM Loews Sapphire Falls Resort 6601 Adventure Way Orlando, FL 32819 Enjoy a fun program and lunch, followed by an exciting afternoon at Universal Orlando's Islands of Adventure! You and one guest are invited to
- [Youth Retreat](https://bleedingdisordersfl.org/event/youth-retreat-3/) - Join Us For The Youth Retreat! For Ages 13-21 Link Up: Youth Retreat Build Connections That Stick July 10th, 2026 10:30AM Location To Be Determined Enjoy a fun program and lunch, followed by an exciting afternoon at Universal Orlando's Islands of Adventure! Click Here To RSVP For The Youth Retreat! You and one guest are
- [Youth Retreat](https://bleedingdisordersfl.org/event/youth-retreat-2/) - Join Us For The Youth Retreat! For Ages 13-21 Link Up: Youth Retreat Build Connections That Stick July 10th, 2026 10:30AM Location TBD Enjoy a fun program and lunch, followed by an exciting afternoon at Universal Orlando's Islands of Adventure! You and one guest are invited to enter the park. If you're 18 or older,
- [Orlando Topgolf Family Program](https://bleedingdisordersfl.org/event/orlando-topgolf-family-program/) - Meet the Arnold Palmer Hospital Hemophilia Treatment Center Team at this fun Topgolf event!
- [Emotional Health and Wellbeing Virtual Program](https://bleedingdisordersfl.org/event/emotional-health-and-wellbeing-virtual-program/) - Emotional Health and Wellbeing Thursday, October 14, 2021 6:00 pm Register Here https://us02web.zoom.us/meeting/register/tZAodOqqqzIjGNaBeq2cCmOnVMExbFwGODXW
- [Pain in Bleeding Disorders](https://bleedingdisordersfl.org/event/pain-in-bleeding-disorders/) - Pain in Bleeding Disorders Dinner Program Presented by Barbie Arrebola Hematology Community Consultant October 13, 2021 6:00 pm Maggiano's Little Italy 9101 International Dr. Orlando, FL 32819 407-241-8650
- [Family Retreat Weekend](https://bleedingdisordersfl.org/event/family-retreat-weekend/) - Family Retreat Weekend October 8-10, 2021 Camp Boggy Creek
- [Being Prepared for a Bleeding Disorder Emergency](https://bleedingdisordersfl.org/event/being-prepared-for-a-bleeding-disorder-emergency/) - Join us For a Virtual Interactive Discussion Come interact and learn from one another and focus on problem-solving approaches to the day-to-day challenges posed by living with a bleeding disorder
- [Ladies Afternoon Tea Luncheon](https://bleedingdisordersfl.org/event/ladies-afternoon-tea-luncheon/)
- [Teen TopGolf](https://bleedingdisordersfl.org/event/teen-topgolf/) - Teen TopGolf- Joint Health Update The Importance of Excercise Presented By Dr. Gauger Medical Director Pediatric Hemophilia Treatment Center Nemours Children's Clinic July 28, 2021 Enjoy an Afternoon of TOPGOLF Unlimited Game Play
- [Talking About Hemophilia, How It Can Help](https://bleedingdisordersfl.org/event/talking-about-hemophilia-how-it-can-help-2/) - Presented By Shveta Gupta, MD Director of Hemophilia and Thrombosis Center Director of the Young Women with Bleeding Disorder Clinic Haley Center for Cancer and Blood Diseases Arnold Palmer Hospital for Children Wednesday, July 14, 2021, 6:30 pm Christner's Prime Steak & Lobster 729 Lee Road Orlando, FL 32810 Please RSVP by July 10, 2021
- [VIRTUAL WALK KICK OFF EVENT/ MUSIC TRIVIA NIGHT!](https://bleedingdisordersfl.org/event/8868/) - VIRTUAL WALK KICK-OFF EVENT LET’S GATHER TOGETHER VIRTUALLY FOR A FUN ZOOM MUSIC TRIVIA NIGHT! (THE WALKS ARE IN PERSON) JULY 21, 2021 AT 7:00 PM REGISTER YOUR TEAM BY THE TRIVIA KICK-OFF EVENT AND YOU WILL BE ENTERED IN A RAFFLE FOR A PIZZA PARTY PRIZE! (VALUED AT $150) REGISTER HERE
- [Super Hero Walk Committee Meeting](https://bleedingdisordersfl.org/event/super-hero-walk-committee-meeting/) - Zoom Link https://us02web.zoom.us/j/89104304458?pwd=bmxqQ3VHbTlWRlRkNzduSWtXWG1tUT09
- [Telling your Story](https://bleedingdisordersfl.org/event/telling-your-story/) - Telling your Story and the Orlando Creepy Crawl Walk Kick-Off Presented by Moriah Cunning, Development Coordinator The event includes Dinner, and the Best Soccer Game of the Summer Orlando Pride vs Racing Women's Soccer
- [June For Joint Health](https://bleedingdisordersfl.org/event/june-for-joint-health/) - Join us for an active and educational webinar. Learn how you can start to form healthy habits by incorporating joint-focused stretches into your daily routine. Talk to your healthcare team before starting any physical activity.
- [Being Prepared for an Emergency](https://bleedingdisordersfl.org/event/being-prepared-for-an-emergency/)
- [The Ups and Downs of Advocacy](https://bleedingdisordersfl.org/event/8728/) - Ups & Downs of Advocacy
- [Rare Bleeding Disorders](https://bleedingdisordersfl.org/event/rare-bleeding-disorders/) - Fernando F. Corrales Medina MD University of Miami Pediatric Hemophilia Treatment Center
- [Brave is in our Blood](https://bleedingdisordersfl.org/event/brave-is-in-our-blood/) - Register here: Bleeding disorder families only please https://us02web.zoom.us/meeting/register/tZcrdOGsqz4oHNMrM09tQ4nkGxt7MFLWJn-o
- [Personalizing your Hemophilia Treatment](https://bleedingdisordersfl.org/event/personalizing-your-hemophilia-treatment/) - Register here: Families with bleeding disorders only please https://us02web.zoom.us/meeting/register/tZwrcOuurDwvGdQ5k1cWq4F_lId4Ml5vPH_M
- [Transitioning throughout the lifespan](https://bleedingdisordersfl.org/event/transitioning-throughout-the-lifespan-2/) - Register here: Bleeding disorder families only please. https://us02web.zoom.us/meeting/register/tZEude2urDMrGNCAYOlkDKpm_MBCsBLSrFTr
- [Life After High School](https://bleedingdisordersfl.org/event/life-after-high-school/) - Register here: Bleeding disorder families only please https://us02web.zoom.us/meeting/register/tZYpce2ppjwuGN17Lv8ef0MfioHMpC5Syx_A
- [Infusing Kids at Home](https://bleedingdisordersfl.org/event/infusing-kids-at-home/) - Presented by: Rachel Kroouze & Lily Gomez Community Relations & Education Managers
- [Hemofilia La Conecciòn Femenina](https://bleedingdisordersfl.org/event/hemofilia-la-coneccion-femenina/) - Presentado por la Dra. Leslie Soto
- [Microbleeds](https://bleedingdisordersfl.org/event/microbleeds/) - Presented by Martina Willis-McCullough RN Educator
- [Virtual Escape Room- Teen Program](https://bleedingdisordersfl.org/event/virtual-escape-room-teen-program/)
- [The Whole Tooth & Nothing but the Tooth](https://bleedingdisordersfl.org/event/the-whole-tooth-nothing-but-the-tooth/) - Speaker: Erin Weigel, MSN, RN & CPN The Importance of oral healthcare
- [The Female Connection](https://bleedingdisordersfl.org/event/the-female-connection/) - Speaker: Dr. Gupta Learn how women inherit hemophilia, what it means to be a carrier of the hemophilia gene, and the effects of hemophilia on women and girls.
- [The Whole Tooth & Nothing but the Thooth](https://bleedingdisordersfl.org/event/the-whole-tooth-nothing-but-the-thooth/) - Speaker: Erin Weigel, MSN, RN, CPN The importance of oral healthcare
- [Couples Cooking with Edgar](https://bleedingdisordersfl.org/event/couples-cooking-with-edgar/) - Virtual Cooking Program
- [Building Connections - Seeking Support in a Time of Social Distancing](https://bleedingdisordersfl.org/event/building-connections-seeking-support-in-a-time-of-social-distancing/) - Speaker: Erin Weigel, MSN, RN, CPN The worldwide pandemic has created unforeseen challenges for our health and wellbeing. Learn how to manage a bleeding disorder amid shelter-in-place and social distancing mandates while building and maintaining supportive relationships
- ["Build Your Support System - In Real Life or Online"](https://bleedingdisordersfl.org/event/build-your-support-system-in-real-life-or-online/) - It's important to seek out a community to give you direction when you're lost. In addition to her involvement with her local National Hemophilia Foundation chapter, Krissy joined a social media group for mothers of children with bleeding disorders. Today, Krissy wants to share the importance of building a good support network and how it
- [Family Feud Game Night](https://bleedingdisordersfl.org/event/family-feud-game-night/) - Presenter Martina Wills McCullough, RN
- [Office Closed For the Holiday's](https://bleedingdisordersfl.org/event/office-closed-for-the-holidays/) - Happy Holiday's to all from the BDFF Staff
- [Teen Retreat & Pizza Dinner](https://bleedingdisordersfl.org/event/teen-retreat-pizza-dinner/) - Teen Siblings included ages 13-19 only please. Scavenger Hunt, Games & Visual Art Self-Expression Join us for a Pizza dinner & Virtual Interactive Program (we will have it delivered it to you at the beginning of the program) Once you confirm your attendance you will receive a box of fun things and supplies that we
- [Family Bingo Night](https://bleedingdisordersfl.org/event/family-bingo-night/) - Family Friendly - Virtual Program Prizes for winners of each game All kids who attend & participate will be sent a $10 Walmart gift card.
- [Food & Fitness](https://bleedingdisordersfl.org/event/food-fitness/) - Small changes for a healthier lifestyle. This is a virtual program.
- [Managing Challenges for Women with Bleeding Disorders](https://bleedingdisordersfl.org/event/managing-challenges-for-women-with-bleeding-disorders/) - At the UM HTC, our physicians see several women/teens with heavy periods/anemia EVERY WEEK. And, we are fortunate to now include Dr. Ian Bishop, an OB/GYN physician as part of our team. Dr. Bishop has a particular interest in managing the menstrual, pregnancy-related and postpartum challenges facing our carrier women, and women with vWD and
- [Jacksonville Virtual Creepy Crawl](https://bleedingdisordersfl.org/event/jacksonville-virtual-creepy-crawl-2/) - Virtual Walk
- [Healthcare Insurance Road Map (Virtual)](https://bleedingdisordersfl.org/event/healthcare-insurance-road-map/)
- [Men's Program (Virtual)](https://bleedingdisordersfl.org/event/mens-program/) - Join Dr. Gupta & others from the bleeding disorder community to talk about your bleeding disorder.
- [Do What Moves You: Staying Fit (Virtual)](https://bleedingdisordersfl.org/event/do-what-moves-you-staying-fit-virtual/)
- [Von Willebrand's Disease (an overview)](https://bleedingdisordersfl.org/event/von-willebrands-disease-an-overview/) - Presented by Mary Ann Cardenas, RN Hemophilia Nurse Coordinator All Children's Hospital
- [My HTC & Me](https://bleedingdisordersfl.org/event/my-htc-me/) - A conversation with the University of Miami Hemophilia Treatment Center Team. Do you have questions about your bleeding disorder? Maybe you understand what it means, from a laboratory or scientific point of view, to have Hemophilia or von Willebrand Disease. BUT, Have you ever left a clinic visit, arrived home and thought: "Oops, I should have
- [Parenting with A Chronic Condition](https://bleedingdisordersfl.org/event/parenting-with-a-chronic-condition/) - Gain insights about the two phases of living with chronic condition, including impact on the family & available resources.
- [Orlando Virtual Creepy Crawl](https://bleedingdisordersfl.org/event/orlando-virtual-creepy-crawl/) - Virtual Walk!
- [Tampa Superhero Fun Virtual Walk](https://bleedingdisordersfl.org/event/tampa-superhero-fun-virtual-walk/)
- [BDFF Program: Recognizing and Responding to a Bleed](https://bleedingdisordersfl.org/event/hfgf-program-recognizing-and-responding-to-a-bleed/) - Bleeding episodes may be common in hemophilia. In this program, learn how a bleed impacts your body, how to recognize and respond to bleeds, and what you can do to manage your health.
- [BDFF Live Broadcast: Challenge Accepted](https://bleedingdisordersfl.org/event/hfgf-live-broadcast-challenge-accepted-2/) - Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? Topic of this video: Siblings and Bleeding Disorders RSVP to info@bleedingdisordersfl.org for login information. By RSVPing
- [Jacksonville Virtual Creepy Crawl](https://bleedingdisordersfl.org/event/jacksonville-virtual-creepy-crawl/) - Virtual Walk!
- [BDFF Live Broadcast: Challenge Accepted](https://bleedingdisordersfl.org/event/hfgf-live-broadcast-challenge-accepted/) - Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? Topic of this video: Siblings and Bleeding Disorders RSVP to info@bleedingdisordersfl.org for login information. By RSVPing
- [Sports, Drugs & Rock N' Roll](https://bleedingdisordersfl.org/event/sports-drugs-rock-n-roll/) - Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse. Listen to his story and how his experiences as a severe hemophilia playing college sports. Please RSVP by June 24, 2020 Email: info@bleedingdisordersfl.org Phone: 800-293-6527 Once you we have your RSVP you will be sent the instructions on how to login the day
- [BDFF Star Search -- POSTPONED](https://bleedingdisordersfl.org/event/hfgf-star-search/) - Join BDFF for an online variety show! We want YOU to get involved... sing a song, play an instrument, tell a joke... share your talent during this hilarious hour of heartfelt fun! Be creative with your talent, we want to see what you can do! We are looking for a limited number of 2-3 minute
- [Exercise and Your Joints Scavenger Hunt](https://bleedingdisordersfl.org/event/exercise-and-your-joints-scavenger-hunt/) - Understand the importance of exercise to maintain joint health. Discuss the various types of exercise, all exercise does not have to be strenuous. Exercise for all age groups. This online program will be led by Janelle Swartz, RN and Nurse Educator. Please RSVP By June 3, 2020 Email: info@bleedingdisordersfl.org Phone: 800-293-6527 Once you we have
- [BDCF Legislative Webinar: Understanding the Committee Structure](https://bleedingdisordersfl.org/event/bdcf-legislative-webinar-understanding-the-committee-structure/) - The Bleeding Disorders Coalition of Florida is hosting a webinar that will help you understand the committee structure. Nathan Schaefer with the National Hemophilia Foundation will lead an interactive session and give tips on getting bills through committees and which legislators to talk about bills such as step therapy and copay accumulators. Please RSVP to
- [BDFF Family Trivia Night](https://bleedingdisordersfl.org/event/hfgf-family-trivia-night/) - BDFF is hosting another fun trivia night with your favorite trivia master, Curtis Earth! RSVP to info@bleedingdisordersfl.org for login information.
- [Happy Hour](https://bleedingdisordersfl.org/event/happy-hour/)
- [Happy Hour En Español](https://bleedingdisordersfl.org/event/happy-hour-en-espanol/) - La Fundación de Hemofilia de la Gran Florida te invita a nuestro primer Happy Hour en Español Martes, Cinco de Mayo, 2020 a las 4 p.m. Nuestro tema de discusion: Activando A Nuestra Comunidad Hispana RSVP a info@bleedingdisordersfl.org para recibir instrucciones de como conectarte Bebidas opcionales ?. Te esperamos! The Bleeding Disorders Foundation of Florida
- [Mental Health Matters: Maintaining Your Mental Health in Uncertain Times](https://bleedingdisordersfl.org/event/mental-health-matters-maintaining-your-mental-health-in-uncertain-times/) - Maintaining Your Mental Health In Uncertain Times: Let's Talk About It In response to the anxiety generated by the coronavirus outbreak, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover: Common reactions to crisis Our natural stress response
- [Self-Infusion 101](https://bleedingdisordersfl.org/event/self-infusion-101/) - Here is your chance to join an interactive webinar and learn the basics of self-infusion Friday May 1, 2020 4:oopm Hosted by Leanne Buchanan, RN Hemophilia Outreach Nurse Our Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to
- [BDFF Teen Talk](https://bleedingdisordersfl.org/event/hfgf-teen-talk/) - Hey Teens! How are you dealing with COVID-19? We want to give you a safe space to chat about how you're feeling through all of this. Do you like distance learning? Do you miss your friends? What do you miss most about life before COVID-19? BDFF's very own Natalie Rubin will be leading this talk.
- [BDFF Happy Hour](https://bleedingdisordersfl.org/event/hfgf-happy-hour-2/) - BDFF Happy Hour April 16th at 4pm Topic: What's in a name? RSVP to info@bleedingdisordersfl.org for login information
- [BDFF World Hemophilia Day Online Trivia](https://bleedingdisordersfl.org/event/hfgf-world-hemophilia-day-online-trivia/) - Curtis Earth has been hosting his quiz online since the closing of the local restaurants. He was featured this week in Orlando Date Night guides favorite virtual things to do. We are going to have Curtis quiz us in our homes through the Zoom app. We will send out the link that will put you
- [BDFF Webinar: Emergency Preparation With a Bleeding Disorder](https://bleedingdisordersfl.org/event/hfgf-webinar-emergency-preparation-with-a-bleeding-disorder/) - So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips! What to expect at ER Prep for emergencies Prep for travel Advocating Medical ID / medic alert Picking an ER Your Go Bag Your Emergency Plan When to go to the ER What happens when you get to
- [BDFF Happy Hour](https://bleedingdisordersfl.org/event/hfgf-happy-hour/)
- [Webinar: Understanding Gene Therapy Research](https://bleedingdisordersfl.org/event/program-understanding-gene-therapy-research/) - Understanding Gene Therapy Research Webinar (This webinar is replacing the dinner due to COVID-19) Tuesday April 14, 2020 Webinar will begin at 7:00pm Presented by Laureen Temple, Senior Patient Education Liaison with Spark Therapeutics This presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene
- [Step Therapy Webinar](https://bleedingdisordersfl.org/event/step-therapy-webinar/) - At this webinar, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions. We will also have a patient in the webinar with us to tell her story and give tips on how to push
- [*CANCELLED* Superhero Fun Walk Registration Party at Tampa Lightning Game](https://bleedingdisordersfl.org/event/cancelled-superhero-fun-walk-registration-party-at-tampa-lightning-game/) - **NOTE: DUE TO THE CDC RECOMMENDATIONS ON COVID-19, THE NHL HAS CANCELLED THEIR HOCKEY SEASON. AS SUCH, AND IN KEEPING WITH THE HEALTH AND SAFETY OF OUR ATTENDEES, WE HAVE CANCELLED THIS EVENT AS WELL. ** REGISTRATION PARTY: March 28th at the Amalie Arena LIGHTNING VS. RANGERS Educational Program & Dinner Included Program starts at
- [Gainesville Blaze Pizza Fundraiser](https://bleedingdisordersfl.org/event/gainesville-blaze-pizza-fundraiser/)
- [Legislative Webinar](https://bleedingdisordersfl.org/event/legislative-webinar/) - Informative and interactive webinar about BDCF 2020 legislative priorities. At this webinar, you will learn about BDCF bills and how to communicate with your legislators about them. This webinar is for anyone who wants to be able to speak on behalf of the bleeding disorders community either at BDCF Legislative Days or on your own.
- [Orlando Story Club: Past Our Bedtime](https://bleedingdisordersfl.org/event/orlando-story-club-past-our-bedtime/) - Join Orlando Story Club at The Abbey and hear stories about rebellion, a time when sleeping took a backseat to life, or the moment when we channeled our inner-child and laughed ourselves silly. Who knows what we will hear on the OSC stage with Past Our Bedtime! Anyone with a story can put their name in
- [Special Program: Pushing Through Life's Challenges](https://bleedingdisordersfl.org/event/special-program-pushing-through-lifes-challenges/) - Please join the Bleeding Disorders Foundation of Florida for a very special family event and dinner PUSHING THROUGH LIFE'S CHALLENGES Presented by Seth Rojhani Friday February 21, 2019 5:15 p.m. (please be on time for this great program) Amway Center 400 West Church Street #200 Orlando, FL 32801 After the program enjoy the game of
- [BDFF CALVIN DAWSON MEMORIAL SCHOLARSHIP APPLICATIONS OPEN](https://bleedingdisordersfl.org/event/hfgf-calvin-dawson-memorial-scholarship-applications-open/) - Amount: Number and amount of scholarships varies Candidate: Florida residents with bleeding disorders attending a college, university or trade school. Deadline: April 30, 2020 Contact: Bleeding Disorders Foundation of Florida 1350 Orange Ave, Suite 227 Winter Park FL 32789 (800)293-6527 (407)629-0000 Fax: (407) 629-9600 Click here for the 2020 scholarship application.
- [Moving Forward: Staying Active with a Bleeding Disorder](https://bleedingdisordersfl.org/event/moving-forward-staying-active-with-a-bleeding-disorder/) - Join the Bleeding Disorders Foundation of Florida for a very special program MOVING FORWARD Staying Active with a Bleeding Disorder Speaker Mary Ann Massolio Wednesday January 22, 2020 6:00 pm At the Saltgrass Steak House Pensacola Beach, FL 32502 Please RSVP by January 20, 2020 Call - 800-293-6527 or Email - info@bleedingdisordersfl.org This program is
- [2020 Advocacy Days](https://bleedingdisordersfl.org/event/2020-advocacy-days/) - Join the Bleeding Disorders Foundation of Florida and the Bleeding Disorders Coalition of Florida in Tallahassee as we advocate for the bleeding disorders community.
- [Office closed](https://bleedingdisordersfl.org/event/office-closed-2/)
- [Advocacy Days](https://bleedingdisordersfl.org/event/advocacy-days/)
- [Legislative session starts](https://bleedingdisordersfl.org/event/legislative-session-starts/)
- [Office Closed](https://bleedingdisordersfl.org/event/office-closed/)
- [Jacksonville Holiday Party](https://bleedingdisordersfl.org/event/jacksonville-holiday-party/) - Please Join Nemours Children’s Clinic, Jacksonville & The Hemophilia Foundation of Greater Florida -for a very special family holiday event- Holiday Trivia A fun interactive Quiz Game Show for families of all ages Sunday, December 1, 2019 10:00 am At the Hyatt Regency Jacksonville Riverfront 225 East Coast Line Drive, Jacksonville, Florida, 32202 The days
- [Gainesville Holiday Party](https://bleedingdisordersfl.org/event/gainesville-holiday-party/) - Please Join The University of Florida Health/Shands Hospital & The Hemophilia Foundation of Greater Florida -for a very special family event- HOLIDAY TRIVIA & FUN Saturday, December 7, 2019 10:30 am At the REITZ STUDENT UNION Room 2355 655 Reitz Union Dr, Gainesville, FL 32611 The days includes Holiday Trivia Fun, Food and Special Guest,
- [Orlando Holiday Party](https://bleedingdisordersfl.org/event/orlando-holiday-party/) - Please Join The Hemophilia Foundation of Greater Florida -for a very special family holiday event- Bleeding Disorder Trivia A fun interactive Quiz Game Show for families of all ages Sunday, December 8, 2019 11:00 am At the Aloft Hotel 500 S. Orange Ave Orlando, Florida The days includes trivia, brunch and enjoy fun family activities
- [2020 Legislative Strategic Planning Session](https://bleedingdisordersfl.org/event/2020-legislative-strategic-planning-session/)
- [Generation IX 2020 Leadership Training](https://bleedingdisordersfl.org/event/generation-ix-2020-leadership-training/) - Registration for the Generation IX 2020 Leadership Training in the Florida Keys is NOW open for all! Generation IX Leadership is an intensive, community-building training, where you will gain insights about yourself and your community in an encouraging learning environment. Here are the details: Open to eligible adults 18-35 with a hemophilia b diagnosis Dates:
- [18th Annual Evening on Broadway](https://bleedingdisordersfl.org/event/18th-annual-evening-on-broadway/) - Come spend an evening in Agrabah and be a REAL genie and grant some kids (summer camp) wishes!I BDFF is pleased to host the 18th Annual Evening on Broadway, one of our most popular fundraisers! This event includes a reception with light h'oeuvres, a silent auction and raffle, and orchestra seating to the broadway show
- [2020 BDFF Red Party](https://bleedingdisordersfl.org/event/2020-hfgf-red-party/) - Wear red for bleeding disorders awareness at this inaugural fundraiser! Events like the BDFF Red Party is one of the only ways to view the amazing display of 400+ cars at the American Muscle Car Museum in Melbourne, Florida. Cocktail attire! Tickets are: $200 for VIP Private Tour by owner Mark Pieloch + Reception $100
- [BDFF Fundraiser at Wing Shack](https://bleedingdisordersfl.org/event/hfgf-fundraiser-at-wing-shack/) - Orlando! Eat at Wing Shack and BDFF gets a portion of the proceeds! When: Nov. 5th at 5:30 pm - Nov. 6th at 8:30 pm Where: Wing Shack, 4650 E. Michigan St., Orlando, Fl 32812
- [Chipotle Fundraising Night for Team Dominic!](https://bleedingdisordersfl.org/event/chipotle-fundraising-night-for-team-dominic/) - Team Dominic is hosting a Fundraising Night at Chipotle in Tomoka Town Center (right next to Tanger Outlets). 33% of all proceeds will go towards the Bleeding Disorders Foundation of Florida.
- [BDFF Dine To Donate at Jax Texas Roadhouse](https://bleedingdisordersfl.org/event/hfgf-dine-to-donate-at-jax-texas-roadhouse/) - Dine to donate at the Jacksonville Texas Roadhouse at 4578 Tropea Way, Jacksonville, FL 32246. BDFF receives 10% of proceeds, 4 - 9 pm. Be sure to mention Bleeding Disorders Foundation of Florida.
- [23rd Annual Flight For Tomorrow Golf Tournament](https://bleedingdisordersfl.org/event/23rd-annual-flight-for-tomorrow-golf-tournament/) - This fundraising event benefits the Bleeding Disorders Foundation of Florida. SCHEDULE OF EVENTS 9:30 a.m. Open Registration 10:30 a.m. Lunch 12:00 p.m. Shotgun Start Sponsorships available. One individual golfer is $200.
- [BDFF Ron Sachs Donor Reception](https://bleedingdisordersfl.org/event/hfgf-ron-sachs-donor-reception/) - BDFF is celebrating our donors! 91% of fundraising dollars go back to supporting BDFF services for the bleeding disorders community such as Camp Spirit tuition, scholarships, emergency financial assistance, and more. Our dedicated donors are why we can provide these services and we want to celebrate you! Where: Mercedes Benz of North Orlando, 1100 Rinehart
- [2019 Orlando Creepy Crawl 5K & Vampire Mile](https://bleedingdisordersfl.org/event/2019-orlando-creepy-crawl-5k-vampire-mile/) - Boo! We are creepy crawling again in Orlando for bleeding disorders! Register for the 5K or the fun walk... either way will be fang-tastic amounts of fun! After the Creepy Crawl, stay for an awards ceremony and Halloween Party. Online registration is open now!
- [2019 Jacksonville Creepy Crawl 5k & Vampire Mile](https://bleedingdisordersfl.org/event/2019-jacksonville-creepy-crawl-5k-vampire-mile/) - Boo! Are you ready to creepy crawl in Jacksonville for bleeding disorders? BDFF is hauntingly hosting a 5K and Halloween party! If you don't want to do the creepy crawl 5K, you can also do a fun walk instead. Registration link is below. We encourage team registrations and fundraising! When: Oct. 12, 2019 Where: Nocatee
- [Camp Boggy Creek Family Weekend](https://bleedingdisordersfl.org/event/camp-boggy-creek-family-weekend/) - From the Camp Boggy Creek website: "During weekends in the spring and fall we welcome 32 campers and their whole families to camp where parents can relax and find needed support among other families dealing with similar emotional and financial challenges. Brothers and sisters get to participate in the same fun-filled activities since every family

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