Bleeding Disorders Foundation of Florida

Being Prepared for a Bleeding Disorder Emergency
2021-09-09 18:00 - 21:00 (America/New_York) | FL
Join us For a Virtual Interactive Discussion
Come interact and learn from one another and focus on problem-solving approaches to the day-to-day challenges posed by living with a bleeding disorder

Ladies Afternoon Tea Luncheon
2021-07-31 11:00 - 13:00 | Disney Beach, 1800 Epcot Resorts Boulevard Lk, Orlando, FL, 32830, United States

Teen TopGolf
2021-07-28 14:00 - 16:00 | FL
Teen TopGolf- Joint Health Update
The Importance of Excercise
Presented By
Dr. Gauger
Medical Director
Pediatric Hemophilia Treatment Center
Nemours Children’s Clinic
July 28, 2021
Enjoy an Afternoon of TOPGOLF
Unlimited Game Play

VIRTUAL WALK KICK OFF EVENT/ MUSIC TRIVIA NIGHT!
2021-07-21 19:00 - 20:00 | VIrtual
VIRTUAL WALK KICK-OFF EVENT

LET’S GATHER TOGETHER VIRTUALLY
FOR A
FUN ZOOM MUSIC TRIVIA NIGHT!
(THE WALKS ARE IN PERSON)

JULY 21, 2021 AT 7:00 PM

REGISTER YOUR TEAM BY THE TRIVIA KICK-OFF EVENT AND
YOU WILL BE ENTERED IN A RAFFLE FOR A PIZZA PARTY PRIZE! (VALUED AT $150)

REGISTER HERE

Talking About Hemophilia, How It Can Help
2021-07-14 18:30 - 20:30 | Christners, 729 Lee Road, Orando, FL, 32810, United States
Presented By
Shveta Gupta, MD

Director of Hemophilia and Thrombosis Center
Director of the Young Women with Bleeding Disorder Clinic
Haley Center for Cancer and Blood Diseases
Arnold Palmer Hospital for Children

Wednesday, July 14, 2021, 6:30 pm

Christner’s Prime Steak & Lobster
729 Lee Road
Orlando, FL 32810

Please RSVP by July 10, 2021
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527

Telling your Story
2021-07-09 18:00 - 20:00 | FL
Telling your Story and the Orlando Creepy Crawl Walk Kick-Off
Presented by
Moriah Cunning, Development Coordinator
The event includes Dinner, and the Best Soccer Game of the Summer
Orlando Pride vs Racing Women’s Soccer

Super Hero Walk Committee Meeting
2021-07-07 12:00 - 13:00 | VIrtual
Zoom Link
https://us02web.zoom.us/j/89104304458?pwd=[REDACTED]

June For Joint Health
2021-06-29 18:30 - 20:00 | FL
Live On Zoom.

Being Prepared for an Emergency
2021-05-27 18:30 - 19:30 | VIrtual

Rare Bleeding Disorders
2021-05-13 18:30 - 19:30 | FL
Fernando F. Corrales Medina MD
University of Miami Pediatric Hemophilia
Treatment Center

The Ups and Downs of Advocacy
2021-05-06 18:00 - 19:00 | VIrtual
Ups & Downs of Advocacy

Brave is in our Blood
2021-04-29 18:30 - 19:30 | FL
Register here: Bleeding disorder families only please
https://us02web.zoom.us/meeting/register/tZcrdOGsqz4oHNMrM09tQ4nkGxt7MFLWJn-o

Personalizing your Hemophilia Treatment
2021-04-20 18:30 - 19:30 | FL
Register here: Families with bleeding disorders only please
https://us02web.zoom.us/meeting/register/tZwrcOuurDwvGdQ5k1cWq4F_lId4Ml5vPH_M

Transitioning throughout the lifespan
2021-04-13 18:30 - 19:30 | FL
Register here: Bleeding disorder families only please.
https://us02web.zoom.us/meeting/register/tZEude2urDMrGNCAYOlkDKpm_MBCsBLSrFTr

Life After High School
2021-04-08 18:30 - 19:30 | FL
Register here: Bleeding disorder families only please
https://us02web.zoom.us/meeting/register/tZYpce2ppjwuGN17Lv8ef0MfioHMpC5Syx_A

Building Connections - Seeking Support in a Time of Social Distancing
2021-03-25 18:30 - 19:30 | FL
Speaker: Erin Weigel, MSN, RN, CPN
The worldwide pandemic has created unforeseen challenges for our health and wellbeing. Learn how to manage a bleeding disorder amid shelter-in-place and social distancing mandates while building and maintaining supportive relationships

Microbleeds
2021-03-18 18:30 - 19:30 | FL
Presented by
Martina Willis-McCullough
RN Educator

Infusing Kids at Home
2021-03-11 18:30 - 19:30 | FL
Presented by:
Rachel Kroouze & Lily Gomez
Community Relations & Education Managers

Hemofilia La Conecciòn Femenina
2021-03-04 18:00 - 19:00 | FL
Presentado por la
Dra. Leslie Soto

Virtual Escape Room- Teen Program
2021-02-26 18:30 - 20:30 | FL

The Female Connection
2021-02-23 18:00 - 19:00 | FL
Speaker: Dr. Gupta
Learn how women inherit hemophilia, what it means to be a carrier of the hemophilia gene, and the effects of hemophilia on women and girls.

The Whole Tooth & Nothing but the Tooth
2021-02-16 18:00 - 19:00 | FL
Speaker: Erin Weigel, MSN, RN & CPN
The Importance of oral healthcare

Couples Cooking with Edgar
2021-02-10 18:00 - 19:00 | FL
Virtual Cooking Program

"Build Your Support System - In Real Life or Online"
2021-01-19 18:30 - 19:30 | FL
It’s important to seek out a community to give you direction when you’re lost. In addition to her involvement with her local National Hemophilia Foundation chapter, Krissy joined a social media group for mothers of children with bleeding disorders. Today, Krissy wants to share the importance of building a good support network and how it ensures she can call on help as needed-especially when navigating new life challenges.

Family Feud Game Night
2021-01-14 18:00 - 19:00 | FL
Presenter
Martina Wills McCullough, RN

Office Closed For the Holiday's
2020-12-24 08:00 - 2020-12-25 17:00 | FL
Happy Holiday’s to all from the BDFF Staff

Family Bingo Night
2020-12-17 18:00 - 19:00 | FL
Family Friendly – Virtual Program
Prizes for winners of each game
All kids who attend & participate will be sent a $10 Walmart gift card.

Teen Retreat & Pizza Dinner
2020-12-11 17:00 - 19:00 | FL
Teen Siblings included ages 13-19 only please.
Scavenger Hunt, Games & Visual Art Self-Expression

Join us for a Pizza dinner & Virtual Interactive Program
(we will have it delivered it to you at the beginning of the program)

Once you confirm your attendance you will receive a box of fun things and supplies that we will use during the program.
RSVP By 12/5/2020

Food & Fitness
2020-12-01 18:00 - 19:00 | FL
Small changes for a healthier lifestyle. This is a virtual program.

Managing Challenges for Women with Bleeding Disorders
2020-11-17 18:00 - 19:00 | FL
At the UM HTC, our physicians see several women/teens with heavy periods/anemia EVERY WEEK. And, we are fortunate to now include Dr. Ian Bishop, an OB/GYN physician as part of our team. Dr. Bishop has a particular interest in managing the menstrual, pregnancy-related and postpartum challenges facing our carrier women, and women with vWD and other bleeding disorders.
