Bleeding Disorders Foundation of Florida

Family Feud Game Night
2021-01-14 18:00 - 19:00 (America/New_York) | FL
Presenter
Martina Wills McCullough, RN

Office Closed For the Holiday's
2020-12-24 08:00 - 2020-12-25 17:00 (America/New_York) | FL
Happy Holiday’s to all from the BDFF Staff

Family Bingo Night
2020-12-17 18:00 - 19:00 (America/New_York) | FL
Family Friendly – Virtual Program
Prizes for winners of each game
All kids who attend & participate will be sent a $10 Walmart gift card.

Teen Retreat & Pizza Dinner
2020-12-11 17:00 - 19:00 (America/New_York) | FL
Teen Siblings included ages 13-19 only please.
Scavenger Hunt, Games & Visual Art Self-Expression

Join us for a Pizza dinner & Virtual Interactive Program
(we will have it delivered it to you at the beginning of the program)

Once you confirm your attendance you will receive a box of fun things and supplies that we will use during the program.
RSVP By 12/5/2020

Food & Fitness
2020-12-01 18:00 - 19:00 (America/New_York) | FL
Small changes for a healthier lifestyle. This is a virtual program.

Managing Challenges for Women with Bleeding Disorders
2020-11-17 18:00 - 19:00 (America/New_York) | FL
At the UM HTC, our physicians see several women/teens with heavy periods/anemia EVERY WEEK. And, we are fortunate to now include Dr. Ian Bishop, an OB/GYN physician as part of our team. Dr. Bishop has a particular interest in managing the menstrual, pregnancy-related and postpartum challenges facing our carrier women, and women with vWD and other bleeding disorders.

Tampa Superhero Fun Virtual Walk
2020-11-14 16:00 - 17:00 UTC | FL

Orlando Virtual Creepy Crawl
2020-10-24 17:00 - 18:00 UTC | FL
Virtual Walk!

Jacksonville Virtual Creepy Crawl
2020-10-17 10:00 - 11:00 UTC | FL
Virtual Walk

Men's Program (Virtual)
2020-10-08 18:30 - 19:30 (America/New_York) | FL
Join Dr. Gupta & others from the bleeding disorder community to talk about your bleeding disorder.

Von Willebrand's Disease (an overview)
2020-10-02 18:30 - 19:30 (America/New_York) | FL
Presented by
Mary Ann Cardenas, RN
Hemophilia Nurse Coordinator
All Children’s Hospital

Healthcare Insurance Road Map (Virtual)
2020-09-29 18:30 - 20:00 (America/New_York) | VIrtual

Do What Moves You: Staying Fit (Virtual)
2020-09-24 18:30 - 20:00 (America/New_York) | VIrtual

Parenting with A Chronic Condition
2020-09-17 18:30 - 19:30 (America/New_York) | FL
Gain insights about the two phases of living with chronic condition, including impact on the family & available resources.

My HTC & Me
2020-09-11 18:00 - 19:00 (America/New_York) | FL
A conversation with the University of Miami Hemophilia Treatment Center Team.

Do you have questions about your bleeding disorder? Maybe you understand what it means, from a laboratory or scientific point of view, to have Hemophilia or von Willebrand Disease.
BUT, Have you ever left a clinic visit, arrived home and thought: “Oops, I should have asked about……….” OR has a challenge or situation come up between clinic visits —- nothing urgent — Wouldn’t it be nice to talk it over with the HTC team?
Well, now’s your chance.

BDFF Live Broadcast: Challenge Accepted
2020-07-14 18:30 - 19:30 UTC | FL
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge?
Topic of this video: Siblings and Bleeding Disorders
RSVP to info@bleedingdisordersfl.org for login information.
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.

BDFF Live Broadcast: Challenge Accepted
2020-07-14 18:30 - 19:30 UTC | FL
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge?
Topic of this video: Siblings and Bleeding Disorders
RSVP to info@bleedingdisordersfl.org for login information.
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
Thank you to Genentech.

Sports, Drugs & Rock N' Roll
2020-06-25 18:30 - 20:00 UTC | FL
Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse. Listen to his story and how his experiences as a severe hemophilia playing college sports.
Please RSVP by June 24, 2020
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527
Once you we have your RSVP you will be sent the instructions on how to login the day of
WEBINAR WAIVER AND DISCLOSURE
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
Brought to you by CSL Behring

BDFF Star Search -- POSTPONED
2020-06-18 19:00 - 20:00 UTC | FL
Join BDFF for an online variety show! We want YOU to get involved… sing a song, play an instrument, tell a joke… share your talent during this hilarious hour of heartfelt fun! Be creative with your talent, we want to see what you can do!
We are looking for a limited number of 2-3 minute talent acts for this online variety show of BDFF talent. This is your time to shine! And don’t worry, this is all happening from the comfort of your own home.
More info coming soon.
Contact events@bleedingdisordersfl.org if you’d like to be part of the show!
Sponsorships available. Contact leahnash@bleedingdisordersfl.org for information.

BDCF Legislative Webinar: Understanding the Committee Structure
2020-06-11 16:00 - 17:00 UTC | FL
The Bleeding Disorders Coalition of Florida is hosting a webinar that will help you understand the committee structure. Nathan Schaefer with the National Hemophilia Foundation will lead an interactive session and give tips on getting bills through committees and which legislators to talk about bills such as step therapy and copay accumulators.
Please RSVP to info@bleedingdisorderscoalitionofflorida.org by June 10th for login information. This program is supported by Takeda.
WEBINAR WAIVER AND DISCLOSURE
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF), Florida Hemophilia Association (FHA) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.

Exercise and Your Joints Scavenger Hunt
2020-06-04 16:00 - 17:00 UTC | FL
Understand the importance of exercise to maintain joint health. Discuss the various types of exercise, all exercise does not have to be strenuous. Exercise for all age groups. This online program will be led by Janelle Swartz, RN and Nurse Educator.
Please RSVP By June 3, 2020
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527
Once you we have your RSVP you will be sent the instructions on how to login the day of the program.
Thank you to Octapharma for your support!

BDFF Family Trivia Night
2020-05-21 19:00 - 20:30 UTC | FL
BDFF is hosting another fun trivia night with your favorite trivia master, Curtis Earth! RSVP to info@bleedingdisordersfl.org for login information.

Happy Hour
2020-05-14 16:00 - 17:00 UTC | FL

BDFF Teen Talk
2020-05-07 16:00 - 17:00 UTC | FL
Hey Teens! How are you dealing with COVID-19? We want to give you a safe space to chat about how you’re feeling through all of this. Do you like distance learning? Do you miss your friends? What do you miss most about life before COVID-19?
BDFF’s very own Natalie Rubin will be leading this talk. Natalie has been part of the BDFF community throughout middle and high school. She gets what it’s like to live with a bleeding disorder as a teen.
RSVP to info@bleedingdisordersfl.org for log in information.
By RSVPing for this event, you are allowing BDFF to use your image/likeness in BDFF promotions and outlets such as the BDFF website, Facebook/Twitter/Instagram pages, etc.

Happy Hour En Español
2020-05-05 16:00 - 17:00 UTC | FL
La Fundación de Hemofilia de la Gran Florida te invita a
nuestro primer
Happy Hour en Español
Martes, Cinco de Mayo, 2020 a las 4 p.m.

Nuestro tema de discusion:
Activando A Nuestra Comunidad Hispana

RSVP a info@bleedingdisordersfl.org para recibir instrucciones de como conectarte

Bebidas opcionales ?. Te esperamos!

The Bleeding Disorders Foundation of Florida invites you to
our first
Happy Hour in Spanish
Tuesday, May 5th, 2020 at 4 p.m.

Our topic of discussion:
Engaging our Hispanic Community

RSVP to info@bleedingdisordersfl.org to receive instructions on how to connect

Drinks optional ?. We hope to see you there!

Self-Infusion 101
2020-05-01 16:00 - 17:00 UTC | FL
Here is your chance to join an interactive webinar and learn the basics of self-infusion
Friday May 1, 2020
4:oopm
Hosted by
Leanne Buchanan, RN
Hemophilia Outreach Nurse
Our Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to normal one of our nurses will schedule a visit so you can practice infusing your factor.
Please RSVP By April 30, 2020
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527
Once you we have your RSVP you will be sent the instructions on how to log in the day of the webinar.
*By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration.*

Mental Health Matters: Maintaining Your Mental Health in Uncertain Times
2020-04-30 19:00 - 20:30 UTC | FL
Maintaining Your Mental Health In Uncertain Times: Let’s Talk About It
In response to the anxiety generated by the coronavirus outbreak, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover:
Common reactions to crisis
Our natural stress response and ways to minimize its negative impact
The distinction between situational stress and an anxiety condition
Creating a personalized stress management toolkit
Resources for mental health information and care
Speaker Bio:
Debbie de la Riva, LPC has been an active member of the bleeding disorders community since the birth of her son with severe hemophilia 25 years ago. She served as the Executive Director of the Lone Star Chapter of the National Hemophilia Foundation, was a co-chair of a NHF Annual Meeting, and received a Ryan White Award for Advocacy Excellence. In 2018, Ms. de la Riva founded Mental Health Matters Too as a way of combining her degree as a licensed professional counselor with her passion of helping community members struggling with mental health challenges. The mission of MHMT is to normalize the discussion of mental health issues within the bleeding disorders community, provide information on various mental health concepts and help community members locate resources for mental health care and support.
Please RSVP to info@bleedingdisordersfl.org for login information.
Moderated by BDFF Outreach and Education Nurse, Leanne Buchanan, RN

Step Therapy Webinar
2020-04-29 14:00 - 15:00 UTC | FL
At this webinar, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions.
We will also have a patient in the webinar with us to tell her story and give tips on how to push this issue forward for the 2021 Florida legislative session.
Please RSVP to info@bleedingdisorderscoalitionofflorida.org for the log in information.
This is a great way for you to become an advocate for yourself and the bleeding disorders community of Florida!

BDFF Webinar: Emergency Preparation With a Bleeding Disorder
2020-04-21 19:00 - 20:00 UTC | FL
So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips!
What to expect at ER
Prep for emergencies
Prep for travel
Advocating
Medical ID / medic alert
Picking an ER
Your Go Bag
Your Emergency Plan
When to go to the ER
What happens when you get to the ER
Communicating with Providers
Patient Rights
There will be time for questions and answers.
Presented by Bayer nurse, Linda Peacock
RSVP to info@bleedingdisordersfl.org and you will receive login information.
Brought to you by Bayer

BDFF World Hemophilia Day Online Trivia
2020-04-17 19:00 - 20:30 UTC | FL
Curtis Earth has been hosting his quiz online since the closing of the local restaurants. He was featured this week in Orlando Date Night guides favorite virtual things to do.
We are going to have Curtis quiz us in our homes through the Zoom app. We will send out the link that will put you on Zoom and introduce you to Virtual Trivia with Curtis Earth!! You can even create remote teams.
BDFF World Hemophilia Day Online Trivia is our time to celebrate and create awareness for bleeding disorders! There will be bleeding disorders trivia included so being knowledgeable about your disorder is your advantage!
RSVP to info@bleedingdisordersfl.org for link to play. There is no cost for members of our bleeding disorders community to play.
Game on!
