Bleeding Disorders Foundation of Florida

Life After High School
2021-04-08 18:30 - 19:30 (America/New_York) | FL
Register here: Bleeding disorder families only please
https://us02web.zoom.us/meeting/register/tZYpce2ppjwuGN17Lv8ef0MfioHMpC5Syx_A

Building Connections - Seeking Support in a Time of Social Distancing
2021-03-25 18:30 - 19:30 (America/New_York) | FL
Speaker: Erin Weigel, MSN, RN, CPN
The worldwide pandemic has created unforeseen challenges for our health and wellbeing. Learn how to manage a bleeding disorder amid shelter-in-place and social distancing mandates while building and maintaining supportive relationships

Microbleeds
2021-03-18 18:30 - 19:30 (America/New_York) | FL
Presented by
Martina Willis-McCullough
RN Educator

Infusing Kids at Home
2021-03-11 18:30 - 19:30 (America/New_York) | FL
Presented by:
Rachel Kroouze & Lily Gomez
Community Relations & Education Managers

Hemofilia La Conecciòn Femenina
2021-03-04 18:00 - 19:00 (America/New_York) | FL
Presentado por la
Dra. Leslie Soto

Virtual Escape Room- Teen Program
2021-02-26 18:30 - 20:30 (America/New_York) | FL

The Female Connection
2021-02-23 18:00 - 19:00 (America/New_York) | FL
Speaker: Dr. Gupta
Learn how women inherit hemophilia, what it means to be a carrier of the hemophilia gene, and the effects of hemophilia on women and girls.

The Whole Tooth & Nothing but the Tooth
2021-02-16 18:00 - 19:00 (America/New_York) | FL
Speaker: Erin Weigel, MSN, RN & CPN
The Importance of oral healthcare

Couples Cooking with Edgar
2021-02-10 18:00 - 19:00 (America/New_York) | FL
Virtual Cooking Program

"Build Your Support System - In Real Life or Online"
2021-01-19 18:30 - 19:30 (America/New_York) | FL
It’s important to seek out a community to give you direction when you’re lost. In addition to her involvement with her local National Hemophilia Foundation chapter, Krissy joined a social media group for mothers of children with bleeding disorders. Today, Krissy wants to share the importance of building a good support network and how it ensures she can call on help as needed-especially when navigating new life challenges.

Family Feud Game Night
2021-01-14 18:00 - 19:00 (America/New_York) | FL
Presenter
Martina Wills McCullough, RN

Office Closed For the Holiday's
2020-12-24 08:00 - 2020-12-25 17:00 (America/New_York) | FL
Happy Holiday’s to all from the BDFF Staff

Family Bingo Night
2020-12-17 18:00 - 19:00 (America/New_York) | FL
Family Friendly – Virtual Program
Prizes for winners of each game
All kids who attend & participate will be sent a $10 Walmart gift card.

Teen Retreat & Pizza Dinner
2020-12-11 17:00 - 19:00 (America/New_York) | FL
Teen Siblings included ages 13-19 only please.
Scavenger Hunt, Games & Visual Art Self-Expression

Join us for a Pizza dinner & Virtual Interactive Program
(we will have it delivered it to you at the beginning of the program)

Once you confirm your attendance you will receive a box of fun things and supplies that we will use during the program.
RSVP By 12/5/2020

Food & Fitness
2020-12-01 18:00 - 19:00 (America/New_York) | FL
Small changes for a healthier lifestyle. This is a virtual program.

Managing Challenges for Women with Bleeding Disorders
2020-11-17 18:00 - 19:00 (America/New_York) | FL
At the UM HTC, our physicians see several women/teens with heavy periods/anemia EVERY WEEK. And, we are fortunate to now include Dr. Ian Bishop, an OB/GYN physician as part of our team. Dr. Bishop has a particular interest in managing the menstrual, pregnancy-related and postpartum challenges facing our carrier women, and women with vWD and other bleeding disorders.

Tampa Superhero Fun Virtual Walk
2020-11-14 16:00 - 17:00 UTC | FL

Orlando Virtual Creepy Crawl
2020-10-24 17:00 - 18:00 UTC | FL
Virtual Walk!

Jacksonville Virtual Creepy Crawl
2020-10-17 10:00 - 11:00 UTC | FL
Virtual Walk

Men's Program (Virtual)
2020-10-08 18:30 - 19:30 (America/New_York) | FL
Join Dr. Gupta & others from the bleeding disorder community to talk about your bleeding disorder.

Von Willebrand's Disease (an overview)
2020-10-02 18:30 - 19:30 (America/New_York) | FL
Presented by
Mary Ann Cardenas, RN
Hemophilia Nurse Coordinator
All Children’s Hospital

Healthcare Insurance Road Map (Virtual)
2020-09-29 18:30 - 20:00 (America/New_York) | VIrtual

Do What Moves You: Staying Fit (Virtual)
2020-09-24 18:30 - 20:00 (America/New_York) | VIrtual

Parenting with A Chronic Condition
2020-09-17 18:30 - 19:30 (America/New_York) | FL
Gain insights about the two phases of living with chronic condition, including impact on the family & available resources.

My HTC & Me
2020-09-11 18:00 - 19:00 (America/New_York) | FL
A conversation with the University of Miami Hemophilia Treatment Center Team.

Do you have questions about your bleeding disorder? Maybe you understand what it means, from a laboratory or scientific point of view, to have Hemophilia or von Willebrand Disease.
BUT, Have you ever left a clinic visit, arrived home and thought: “Oops, I should have asked about……….” OR has a challenge or situation come up between clinic visits —- nothing urgent — Wouldn’t it be nice to talk it over with the HTC team?
Well, now’s your chance.

BDFF Live Broadcast: Challenge Accepted
2020-07-14 18:30 - 19:30 UTC | FL
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge?
Topic of this video: Siblings and Bleeding Disorders
RSVP to info@bleedingdisordersfl.org for login information.
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.

BDFF Live Broadcast: Challenge Accepted
2020-07-14 18:30 - 19:30 UTC | FL
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge?
Topic of this video: Siblings and Bleeding Disorders
RSVP to info@bleedingdisordersfl.org for login information.
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
Thank you to Genentech.

Sports, Drugs & Rock N' Roll
2020-06-25 18:30 - 20:00 UTC | FL
Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse. Listen to his story and how his experiences as a severe hemophilia playing college sports.
Please RSVP by June 24, 2020
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527
Once you we have your RSVP you will be sent the instructions on how to login the day of
WEBINAR WAIVER AND DISCLOSURE
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
Brought to you by CSL Behring

BDFF Star Search -- POSTPONED
2020-06-18 19:00 - 20:00 UTC | FL
Join BDFF for an online variety show! We want YOU to get involved… sing a song, play an instrument, tell a joke… share your talent during this hilarious hour of heartfelt fun! Be creative with your talent, we want to see what you can do!
We are looking for a limited number of 2-3 minute talent acts for this online variety show of BDFF talent. This is your time to shine! And don’t worry, this is all happening from the comfort of your own home.
More info coming soon.
Contact events@bleedingdisordersfl.org if you’d like to be part of the show!
Sponsorships available. Contact leahnash@bleedingdisordersfl.org for information.

BDCF Legislative Webinar: Understanding the Committee Structure
2020-06-11 16:00 - 17:00 UTC | FL
The Bleeding Disorders Coalition of Florida is hosting a webinar that will help you understand the committee structure. Nathan Schaefer with the National Hemophilia Foundation will lead an interactive session and give tips on getting bills through committees and which legislators to talk about bills such as step therapy and copay accumulators.
Please RSVP to info@bleedingdisorderscoalitionofflorida.org by June 10th for login information. This program is supported by Takeda.
WEBINAR WAIVER AND DISCLOSURE
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF), Florida Hemophilia Association (FHA) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
