*CANCELLED* Superhero Fun Walk Registration Party at Tampa Lightning Game
**NOTE: DUE TO THE CDC RECOMMENDATIONS ON COVID-19, THE NHL HAS CANCELLED THEIR HOCKEY SEASON. AS SUCH, AND IN KEEPING WITH THE HEALTH AND SAFETY OF OUR ATTENDEES, WE HAVE CANCELLED THIS EVENT AS WELL. ** REGISTRATION PARTY: March 28th at the Amalie Arena LIGHTNING VS. RANGERS Educational Program & Dinner Included Program starts at
Webinar: Understanding Gene Therapy Research
Seasons 52 7700 W. Sand Lake Road, Orlando, FL, United StatesUnderstanding Gene Therapy Research Webinar (This webinar is replacing the dinner due to COVID-19) Tuesday April 14, 2020 Webinar will begin at 7:00pm Presented by Laureen Temple, Senior Patient Education Liaison with Spark Therapeutics This presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene
BDFF Happy Hour
BDFF Happy Hour April 16th at 4pm Topic: What's in a name? RSVP to [email protected] for login information
BDFF World Hemophilia Day Online Trivia
Curtis Earth has been hosting his quiz online since the closing of the local restaurants. He was featured this week in Orlando Date Night guides favorite virtual things to do. We are going to have Curtis quiz us in our homes through the Zoom app. We will send out the link that will put you
BDFF Webinar: Emergency Preparation With a Bleeding Disorder
So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips! What to expect at ER Prep for emergencies Prep for travel Advocating Medical ID / medic alert Picking an ER Your Go Bag Your Emergency Plan When to go to the ER What happens when you get to
Step Therapy Webinar
At this webinar, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions. We will also have a patient in the webinar with us to tell her story and give tips on how to push
Mental Health Matters: Maintaining Your Mental Health in Uncertain Times
Maintaining Your Mental Health In Uncertain Times: Let's Talk About It In response to the anxiety generated by the coronavirus outbreak, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover: Common reactions to crisis Our natural stress response
Self-Infusion 101
Here is your chance to join an interactive webinar and learn the basics of self-infusion Friday May 1, 2020 4:oopm Hosted by Leanne Buchanan, RN Hemophilia Outreach Nurse Our Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to
Happy Hour En Español
La Fundación de Hemofilia de la Gran Florida te invita a nuestro primer Happy Hour en Español Martes, Cinco de Mayo, 2020 a las 4 p.m. Nuestro tema de discusion: Activando A Nuestra Comunidad Hispana RSVP a [email protected] para recibir instrucciones de como conectarte Bebidas opcionales ?. Te esperamos! The Bleeding Disorders Foundation of Florida