Bleeding Disorders Foundation of Florida

Orlando Family Dinner
2021-12-15 18:00 - 20:00 (America/New_York) | Blu on The Avenue, 326 S. Park Ave, Winter Park, FL, 32789, United States
AMBASSADOR CHAT
You’re invited to a
fireside chat and dinner with
Presenters
Cristie Vidal-Strub, ARNP, MSN & Clinical Educator
& Maria Elena, HEMLIBRA ambassador
Wednesday, December 15, 2021, 6:30 PM
Blu on the Avenue
326 S. Park Avenue, Winter Park, FL 32789
RSVP by Friday, 12/10/2021
Register today at:
info@bleedingdisordersfl.org or 800.293.6527
Sponsored by
Genentech

Teen/Family Retreat
2021-12-04 11:00 - 13:30 | Zoo Tampa, 1101 W. Sligh Ave, Tampa, FL, 33612, United States
Join us for our
﻿2nd Annual Youth Retreat
For teens: 13-19 years old
You Can Invite your FAMILY to attend
﻿
Saturday, December 4, 2021, 11:00 am
The day includes:
Wonderful lunch and information on how to be a great advocate for the bleeding disorder community. After the program…enjoy your afternoon at the Zoo Tampa.
ZooTampa at Lowry Park
1101 W. Sligh Ave,
Tampa, FL 33604

Industry Update Family Dinner
2021-12-02 18:00 - 20:00 | Rusty Pelican, 2425 N Rocky Point Drive, Tampa, FL, 33607, United States
Join us for an amazing
Family Dinner Program
INDUSTRY UPDATE
DISCOVER THE MOST UPDATED INFORMATION
FROM OUR INDUSTRY PARTNERS
﻿Thursday, December 2, 2021
6:30 pm
at the
Rusty Pelican
2425 N Rocky Point Drive
Tampa, FL 33607
RSVP By: November 30, 2021
info@bleedingdisordersfl.org
800-293-6527

Emotional Health and Wellbeing Virtual Program
2021-10-14 18:00 - 19:30 | VIrtual
Emotional Health and Wellbeing
Thursday, October 14, 2021
6:00 pm
Register Here
https://us02web.zoom.us/meeting/register/tZAodOqqqzIjGNaBeq2cCmOnVMExbFwGODXW

Pain in Bleeding Disorders
2021-10-13 18:00 - 20:00 | FL
Pain in Bleeding Disorders
Dinner Program
Presented by
Barbie Arrebola
Hematology Community Consultant
October 13, 2021
6:00 pm
Maggiano’s Little Italy
9101 International Dr.
Orlando, FL 32819
407-241-8650

Family Retreat Weekend
2021-10-08 - 2021-10-10 | Camp Boggy Creek, 30500 Brantley Branch Rd,, Eustis, FL, 32736, United States
Family Retreat Weekend
October 8-10, 2021
Camp Boggy Creek

Being Prepared for a Bleeding Disorder Emergency
2021-09-09 18:00 - 21:00 | FL
Join us For a Virtual Interactive Discussion
Come interact and learn from one another and focus on problem-solving approaches to the day-to-day challenges posed by living with a bleeding disorder

Ladies Afternoon Tea Luncheon
2021-07-31 11:00 - 13:00 | Disney Beach, 1800 Epcot Resorts Boulevard Lk, Orlando, FL, 32830, United States

Teen TopGolf
2021-07-28 14:00 - 16:00 | FL
Teen TopGolf- Joint Health Update
The Importance of Excercise
Presented By
Dr. Gauger
Medical Director
Pediatric Hemophilia Treatment Center
Nemours Children’s Clinic
July 28, 2021
Enjoy an Afternoon of TOPGOLF
Unlimited Game Play

VIRTUAL WALK KICK OFF EVENT/ MUSIC TRIVIA NIGHT!
2021-07-21 19:00 - 20:00 | VIrtual
VIRTUAL WALK KICK-OFF EVENT

LET’S GATHER TOGETHER VIRTUALLY
FOR A
FUN ZOOM MUSIC TRIVIA NIGHT!
(THE WALKS ARE IN PERSON)

JULY 21, 2021 AT 7:00 PM

REGISTER YOUR TEAM BY THE TRIVIA KICK-OFF EVENT AND
YOU WILL BE ENTERED IN A RAFFLE FOR A PIZZA PARTY PRIZE! (VALUED AT $150)

REGISTER HERE

Talking About Hemophilia, How It Can Help
2021-07-14 18:30 - 20:30 | Christners, 729 Lee Road, Orando, FL, 32810, United States
Presented By
Shveta Gupta, MD

Director of Hemophilia and Thrombosis Center
Director of the Young Women with Bleeding Disorder Clinic
Haley Center for Cancer and Blood Diseases
Arnold Palmer Hospital for Children

Wednesday, July 14, 2021, 6:30 pm

Christner’s Prime Steak & Lobster
729 Lee Road
Orlando, FL 32810

Please RSVP by July 10, 2021
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527

Telling your Story
2021-07-09 18:00 - 20:00 | FL
Telling your Story and the Orlando Creepy Crawl Walk Kick-Off
Presented by
Moriah Cunning, Development Coordinator
The event includes Dinner, and the Best Soccer Game of the Summer
Orlando Pride vs Racing Women’s Soccer

Super Hero Walk Committee Meeting
2021-07-07 12:00 - 13:00 | VIrtual
Zoom Link
https://us02web.zoom.us/j/89104304458?pwd=[REDACTED]

June For Joint Health
2021-06-29 18:30 - 20:00 | FL
Live On Zoom.

Being Prepared for an Emergency
2021-05-27 18:30 - 19:30 | VIrtual

Rare Bleeding Disorders
2021-05-13 18:30 - 19:30 | FL
Fernando F. Corrales Medina MD
University of Miami Pediatric Hemophilia
Treatment Center

The Ups and Downs of Advocacy
2021-05-06 18:00 - 19:00 | VIrtual
Ups & Downs of Advocacy

Brave is in our Blood
2021-04-29 18:30 - 19:30 | FL
Register here: Bleeding disorder families only please
https://us02web.zoom.us/meeting/register/tZcrdOGsqz4oHNMrM09tQ4nkGxt7MFLWJn-o

Personalizing your Hemophilia Treatment
2021-04-20 18:30 - 19:30 | FL
Register here: Families with bleeding disorders only please
https://us02web.zoom.us/meeting/register/tZwrcOuurDwvGdQ5k1cWq4F_lId4Ml5vPH_M

Transitioning throughout the lifespan
2021-04-13 18:30 - 19:30 | FL
Register here: Bleeding disorder families only please.
https://us02web.zoom.us/meeting/register/tZEude2urDMrGNCAYOlkDKpm_MBCsBLSrFTr

Life After High School
2021-04-08 18:30 - 19:30 | FL
Register here: Bleeding disorder families only please
https://us02web.zoom.us/meeting/register/tZYpce2ppjwuGN17Lv8ef0MfioHMpC5Syx_A

Building Connections - Seeking Support in a Time of Social Distancing
2021-03-25 18:30 - 19:30 | FL
Speaker: Erin Weigel, MSN, RN, CPN
The worldwide pandemic has created unforeseen challenges for our health and wellbeing. Learn how to manage a bleeding disorder amid shelter-in-place and social distancing mandates while building and maintaining supportive relationships

Microbleeds
2021-03-18 18:30 - 19:30 | FL
Presented by
Martina Willis-McCullough
RN Educator

Infusing Kids at Home
2021-03-11 18:30 - 19:30 | FL
Presented by:
Rachel Kroouze & Lily Gomez
Community Relations & Education Managers

Hemofilia La Conecciòn Femenina
2021-03-04 18:00 - 19:00 | FL
Presentado por la
Dra. Leslie Soto

Virtual Escape Room- Teen Program
2021-02-26 18:30 - 20:30 | FL

The Female Connection
2021-02-23 18:00 - 19:00 | FL
Speaker: Dr. Gupta
Learn how women inherit hemophilia, what it means to be a carrier of the hemophilia gene, and the effects of hemophilia on women and girls.

The Whole Tooth & Nothing but the Tooth
2021-02-16 18:00 - 19:00 | FL
Speaker: Erin Weigel, MSN, RN & CPN
The Importance of oral healthcare

Couples Cooking with Edgar
2021-02-10 18:00 - 19:00 | FL
Virtual Cooking Program

"Build Your Support System - In Real Life or Online"
2021-01-19 18:30 - 19:30 | FL
It’s important to seek out a community to give you direction when you’re lost. In addition to her involvement with her local National Hemophilia Foundation chapter, Krissy joined a social media group for mothers of children with bleeding disorders. Today, Krissy wants to share the importance of building a good support network and how it ensures she can call on help as needed-especially when navigating new life challenges.
