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BDCF Legislative Webinar: Understanding the Committee Structure
The Bleeding Disorders Coalition of Florida is hosting a webinar that will help you understand the committee structure. Nathan Schaefer with the National Hemophilia Foundation will lead an interactive session and give tips on getting bills through committees and which legislators to talk about bills such as step therapy and copay accumulators. Please RSVP to
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BDFF Star Search — POSTPONED
Join BDFF for an online variety show! We want YOU to get involved... sing a song, play an instrument, tell a joke... share your talent during this hilarious hour of heartfelt fun! Be creative with your talent, we want to see what you can do! We are looking for a limited number of 2-3 minute
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Sports, Drugs & Rock N’ Roll
Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse. Listen to his story and how his experiences as a severe hemophilia playing college sports. Please RSVP by June 24, 2020 Email: [email protected] Phone: 800-293-6527 Once you we have your RSVP you will be sent the instructions on how to login the day
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BDFF Live Broadcast: Challenge Accepted
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? Topic of this video: Siblings and Bleeding Disorders RSVP to [email protected] for login information. By RSVPing
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BDFF Live Broadcast: Challenge Accepted
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? Topic of this video: Siblings and Bleeding Disorders RSVP to [email protected] for login information. By RSVPing
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My HTC & Me
A conversation with the University of Miami Hemophilia Treatment Center Team. Do you have questions about your bleeding disorder? Maybe you understand what it means, from a laboratory or scientific point of view, to have Hemophilia or von Willebrand Disease. BUT, Have you ever left a clinic visit, arrived home and thought: "Oops, I should have
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Parenting with A Chronic Condition
Gain insights about the two phases of living with chronic condition, including impact on the family & available resources.
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Von Willebrand’s Disease (an overview)
Presented by Mary Ann Cardenas, RN Hemophilia Nurse Coordinator All Children's Hospital
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