BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Bleeding Disorders Foundation of Florida - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Bleeding Disorders Foundation of Florida
X-ORIGINAL-URL:https://bleedingdisordersfl.org
X-WR-CALDESC:Events for Bleeding Disorders Foundation of Florida
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20191103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20200308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20201101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20190101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201211T170000
DTEND;TZID=America/New_York:20201211T190000
DTSTAMP:20260418T053353
CREATED:20201201T160744Z
LAST-MODIFIED:20201201T160744Z
UID:8079-1607706000-1607713200@bleedingdisordersfl.org
SUMMARY:Teen Retreat & Pizza Dinner
DESCRIPTION:Teen Siblings included ages 13-19 only please.\nScavenger Hunt\, Games & Visual Art Self-Expression\n\nJoin us for a Pizza dinner & Virtual Interactive Program\n(we will have it delivered it to you at the beginning of the program)\n\nOnce you confirm your attendance you will receive a box of fun things and supplies that we will use during the program.\nRSVP By 12/5/2020
URL:https://bleedingdisordersfl.org/event/teen-retreat-pizza-dinner/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201201T180000
DTEND;TZID=America/New_York:20201201T190000
DTSTAMP:20260418T053353
CREATED:20201201T155502Z
LAST-MODIFIED:20201201T155502Z
UID:8075-1606845600-1606849200@bleedingdisordersfl.org
SUMMARY:Food & Fitness
DESCRIPTION:Small changes for a healthier lifestyle. This is a virtual program.
URL:https://bleedingdisordersfl.org/event/food-fitness/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201117T180000
DTEND;TZID=America/New_York:20201117T190000
DTSTAMP:20260418T053353
CREATED:20201028T141848Z
LAST-MODIFIED:20201028T141848Z
UID:7995-1605636000-1605639600@bleedingdisordersfl.org
SUMMARY:Managing Challenges for Women with Bleeding Disorders
DESCRIPTION:At the UM HTC\, our physicians see several women/teens with heavy periods/anemia EVERY WEEK. And\, we are fortunate to now include Dr. Ian Bishop\, an OB/GYN physician as part of our team. Dr. Bishop has a particular interest in managing the menstrual\, pregnancy-related and postpartum challenges facing our carrier women\, and women with vWD and other bleeding disorders.
URL:https://bleedingdisordersfl.org/event/managing-challenges-for-women-with-bleeding-disorders/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201114T160000
DTEND;TZID=UTC:20201114T170000
DTSTAMP:20260418T053353
CREATED:20200702T235411Z
LAST-MODIFIED:20200821T222245Z
UID:7484-1605369600-1605373200@bleedingdisordersfl.org
SUMMARY:Tampa Superhero Fun Virtual Walk
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/tampa-superhero-fun-virtual-walk/
CATEGORIES:Fun Stuff,Fundraising,Walks/5K
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201024T170000
DTEND;TZID=UTC:20201024T180000
DTSTAMP:20260418T053353
CREATED:20200702T235607Z
LAST-MODIFIED:20200821T222256Z
UID:7488-1603558800-1603562400@bleedingdisordersfl.org
SUMMARY:Orlando Virtual Creepy Crawl
DESCRIPTION:Virtual Walk!
URL:https://bleedingdisordersfl.org/event/orlando-virtual-creepy-crawl/
CATEGORIES:Fun Stuff,Fundraising,Walks/5K
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201017T100000
DTEND;TZID=UTC:20201017T110000
DTSTAMP:20260418T053353
CREATED:20200703T010202Z
LAST-MODIFIED:20201002T141105Z
UID:7494-1602928800-1602932400@bleedingdisordersfl.org
SUMMARY:Jacksonville Virtual Creepy Crawl
DESCRIPTION:Virtual Walk
URL:https://bleedingdisordersfl.org/event/jacksonville-virtual-creepy-crawl-2/
CATEGORIES:Fun Stuff,Fundraising,Walks/5K
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201008T183000
DTEND;TZID=America/New_York:20201008T193000
DTSTAMP:20260418T053353
CREATED:20200924T172943Z
LAST-MODIFIED:20200924T173136Z
UID:7898-1602181800-1602185400@bleedingdisordersfl.org
SUMMARY:Men's Program (Virtual)
DESCRIPTION:Join Dr. Gupta & others from the bleeding disorder community to talk about your bleeding disorder.
URL:https://bleedingdisordersfl.org/event/mens-program/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201002T183000
DTEND;TZID=America/New_York:20201002T193000
DTSTAMP:20260418T053353
CREATED:20200908T182339Z
LAST-MODIFIED:20200908T182339Z
UID:7831-1601663400-1601667000@bleedingdisordersfl.org
SUMMARY:Von Willebrand's Disease (an overview)
DESCRIPTION:Presented by \nMary Ann Cardenas\, RN\nHemophilia Nurse Coordinator\nAll Children’s Hospital
URL:https://bleedingdisordersfl.org/event/von-willebrands-disease-an-overview/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200929T183000
DTEND;TZID=America/New_York:20200929T200000
DTSTAMP:20260418T053353
CREATED:20200921T184306Z
LAST-MODIFIED:20200924T173204Z
UID:7891-1601404200-1601409600@bleedingdisordersfl.org
SUMMARY:Healthcare Insurance Road Map (Virtual)
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/healthcare-insurance-road-map/
LOCATION:VIrtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200924T183000
DTEND;TZID=America/New_York:20200924T200000
DTSTAMP:20260418T053353
CREATED:20200921T184115Z
LAST-MODIFIED:20200921T184115Z
UID:7888-1600972200-1600977600@bleedingdisordersfl.org
SUMMARY:Do What Moves You: Staying Fit (Virtual)
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/do-what-moves-you-staying-fit-virtual/
LOCATION:VIrtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200917T183000
DTEND;TZID=America/New_York:20200917T193000
DTSTAMP:20260418T053353
CREATED:20200908T180523Z
LAST-MODIFIED:20200908T180523Z
UID:7825-1600367400-1600371000@bleedingdisordersfl.org
SUMMARY:Parenting with A Chronic Condition
DESCRIPTION:Gain insights about the two phases of living with chronic condition\, including impact on the family & available resources.
URL:https://bleedingdisordersfl.org/event/parenting-with-a-chronic-condition/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200911T180000
DTEND;TZID=America/New_York:20200911T190000
DTSTAMP:20260418T053353
CREATED:20200908T182130Z
LAST-MODIFIED:20200908T182130Z
UID:7829-1599847200-1599850800@bleedingdisordersfl.org
SUMMARY:My HTC & Me
DESCRIPTION:A conversation with the University of Miami Hemophilia Treatment Center Team. \n\nDo you have questions about your bleeding disorder? Maybe you understand what it means\, from a laboratory or scientific point of view\, to have Hemophilia or von Willebrand Disease.  \nBUT\, Have you ever left a clinic visit\, arrived home and thought:  “Oops\, I should have asked about……….” OR has a challenge or situation come up between clinic visits —- nothing urgent — Wouldn’t it be nice to talk it over with the HTC team?\nWell\, now’s your chance.
URL:https://bleedingdisordersfl.org/event/my-htc-me/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200714T183000
DTEND;TZID=UTC:20200714T193000
DTSTAMP:20260418T053353
CREATED:20200703T004604Z
LAST-MODIFIED:20200703T004604Z
UID:7492-1594751400-1594755000@bleedingdisordersfl.org
SUMMARY:BDFF Live Broadcast: Challenge Accepted
DESCRIPTION:Join us for a screening of an original video series inspired by and made for the hemophilia community\, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? \nTopic of this video: Siblings and Bleeding Disorders \nRSVP to info@bleedingdisordersfl.org for login information. \nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration. This session is not being recorded. To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
URL:https://bleedingdisordersfl.org/event/hfgf-live-broadcast-challenge-accepted-2/
CATEGORIES:Online Events,Programs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200714T183000
DTEND;TZID=UTC:20200714T193000
DTSTAMP:20260418T053353
CREATED:20200625T224118Z
LAST-MODIFIED:20200625T224118Z
UID:7473-1594751400-1594755000@bleedingdisordersfl.org
SUMMARY:BDFF Live Broadcast: Challenge Accepted
DESCRIPTION:Join us for a screening of an original video series inspired by and made for the hemophilia community\, followed by an open discussion about the everyday struggles of living with a bleeding disorder.  Are you up for the challenge? \nTopic of this video: Siblings and Bleeding Disorders \nRSVP to info@bleedingdisordersfl.org for login information. \nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration.  This session is not being recorded.  To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session.  You are not obligated to share any personal information.   BDFF recommends using your first initial instead of your full name when signing on.   \nThank you to Genentech.
URL:https://bleedingdisordersfl.org/event/hfgf-live-broadcast-challenge-accepted/
CATEGORIES:Fun Stuff,Online Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200625T183000
DTEND;TZID=UTC:20200625T200000
DTSTAMP:20260418T053353
CREATED:20200618T220322Z
LAST-MODIFIED:20200618T220322Z
UID:7455-1593109800-1593115200@bleedingdisordersfl.org
SUMMARY:Sports\, Drugs & Rock N' Roll
DESCRIPTION:Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse.  Listen to his story and how his experiences as a severe hemophilia playing college sports. \nPlease RSVP by June 24\, 2020\nEmail: info@bleedingdisordersfl.org\nPhone: 800-293-6527 \nOnce you we have your RSVP you will be sent the instructions on how to login the day of \nWEBINAR WAIVER AND DISCLOSURE\nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration. This session is not being recorded. To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information.   BDFF recommends using your first initial instead of your full name when signing on. \nBrought to you by CSL Behring
URL:https://bleedingdisordersfl.org/event/sports-drugs-rock-n-roll/
CATEGORIES:Programs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200618T190000
DTEND;TZID=UTC:20200618T200000
DTSTAMP:20260418T053353
CREATED:20200515T232131Z
LAST-MODIFIED:20200618T220045Z
UID:7386-1592506800-1592510400@bleedingdisordersfl.org
SUMMARY:BDFF Star Search -- POSTPONED
DESCRIPTION:Join BDFF for an online variety show! We want YOU to get involved… sing a song\, play an instrument\, tell a joke… share your talent during this hilarious hour of heartfelt fun! Be creative with your talent\, we want to see what you can do! \nWe are looking for a limited number of 2-3 minute talent acts for this online variety show of BDFF talent. This is your time to shine! And don’t worry\, this is all happening from the comfort of your own home. \nMore info coming soon. \nContact events@bleedingdisordersfl.org if you’d like to be part of the show! \nSponsorships available. Contact leahnash@bleedingdisordersfl.org for information.
URL:https://bleedingdisordersfl.org/event/hfgf-star-search/
CATEGORIES:Fun Stuff
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/97107188_10157956923086839_1760685116729851904_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200611T160000
DTEND;TZID=UTC:20200611T170000
DTSTAMP:20260418T053353
CREATED:20200515T231808Z
LAST-MODIFIED:20200515T231808Z
UID:7383-1591891200-1591894800@bleedingdisordersfl.org
SUMMARY:BDCF Legislative Webinar: Understanding the Committee Structure
DESCRIPTION:The Bleeding Disorders Coalition of Florida is hosting a webinar that will help you understand the committee structure. Nathan Schaefer with the National Hemophilia Foundation will lead an interactive session and give tips on getting bills through committees and which legislators to talk about bills such as step therapy and copay accumulators. \nPlease RSVP to info@bleedingdisorderscoalitionofflorida.org by June 10th for login information. This program is supported by Takeda. \nWEBINAR WAIVER AND DISCLOSURE\nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF)\, Florida Hemophilia Association (FHA) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration. This session is not being recorded. To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
URL:https://bleedingdisordersfl.org/event/bdcf-legislative-webinar-understanding-the-committee-structure/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/97016961_10157956859676839_9112552715157766144_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200604T160000
DTEND;TZID=UTC:20200604T170000
DTSTAMP:20260418T053353
CREATED:20200522T000517Z
LAST-MODIFIED:20200603T235101Z
UID:7398-1591286400-1591290000@bleedingdisordersfl.org
SUMMARY:Exercise and Your Joints Scavenger Hunt
DESCRIPTION:Understand the importance of exercise to maintain joint health. Discuss the various types of exercise\, all exercise does not have to be strenuous. Exercise for all age groups. This online program will be led by Janelle Swartz\, RN and Nurse Educator. \nPlease RSVP By June 3\, 2020\nEmail: info@bleedingdisordersfl.org\nPhone: 800-293-6527 \nOnce you we have your RSVP you will be sent the instructions on how to login the day of the program. \nThank you to Octapharma for your support!
URL:https://bleedingdisordersfl.org/event/exercise-and-your-joints-scavenger-hunt/
CATEGORIES:Fun Stuff,Programs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200521T190000
DTEND;TZID=UTC:20200521T203000
DTSTAMP:20260418T053353
CREATED:20200515T231051Z
LAST-MODIFIED:20200515T231051Z
UID:7380-1590087600-1590093000@bleedingdisordersfl.org
SUMMARY:BDFF Family Trivia Night
DESCRIPTION:BDFF is hosting another fun trivia night with your favorite trivia master\, Curtis Earth! RSVP to info@bleedingdisordersfl.org for login information.
URL:https://bleedingdisordersfl.org/event/hfgf-family-trivia-night/
CATEGORIES:Fun Stuff
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/96611337_10157953099441839_4535135158453403648_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200514T160000
DTEND;TZID=UTC:20200514T170000
DTSTAMP:20260418T053353
CREATED:20200422T002432Z
LAST-MODIFIED:20200422T002432Z
UID:7322-1589472000-1589475600@bleedingdisordersfl.org
SUMMARY:Happy Hour
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/happy-hour/
CATEGORIES:Fun Stuff
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200507T160000
DTEND;TZID=UTC:20200507T170000
DTSTAMP:20260418T053353
CREATED:20200413T213020Z
LAST-MODIFIED:20200413T213020Z
UID:7280-1588867200-1588870800@bleedingdisordersfl.org
SUMMARY:BDFF Teen Talk
DESCRIPTION:Hey Teens! How are you dealing with COVID-19? We want to give you a safe space to chat about how you’re feeling through all of this. Do you like distance learning? Do you miss your friends? What do you miss most about life before COVID-19? \nBDFF’s very own Natalie Rubin will be leading this talk. Natalie has been part of the BDFF community throughout middle and high school. She gets what it’s like to live with a bleeding disorder as a teen. \nRSVP to info@bleedingdisordersfl.org for log in information. \nBy RSVPing for this event\, you are allowing BDFF to use your image/likeness in BDFF promotions and outlets such as the BDFF website\, Facebook/Twitter/Instagram pages\, etc.
URL:https://bleedingdisordersfl.org/event/hfgf-teen-talk/
CATEGORIES:Fun Stuff,Webinar
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/93365721_10157852433876839_8123290217810493440_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200505T160000
DTEND;TZID=UTC:20200505T170000
DTSTAMP:20260418T053353
CREATED:20200422T002321Z
LAST-MODIFIED:20200422T002321Z
UID:7320-1588694400-1588698000@bleedingdisordersfl.org
SUMMARY:Happy Hour En Español
DESCRIPTION:La Fundación de Hemofilia de la Gran Florida te invita a\nnuestro primer\nHappy Hour en Español\nMartes\, Cinco de Mayo\, 2020 a las 4 p.m.\n\nNuestro tema de discusion:\nActivando A Nuestra Comunidad Hispana\n\nRSVP a info@bleedingdisordersfl.org para recibir instrucciones de como conectarte\n\nBebidas opcionales ?. Te esperamos!\n\nThe Bleeding Disorders Foundation of Florida invites you to\nour first\nHappy Hour in Spanish\nTuesday\, May 5th\, 2020 at 4 p.m.\n\nOur topic of discussion:\nEngaging our Hispanic Community\n\nRSVP to info@bleedingdisordersfl.org to receive instructions on how to connect\n\nDrinks optional ?. We hope to see you there!
URL:https://bleedingdisordersfl.org/event/happy-hour-en-espanol/
CATEGORIES:Fun Stuff
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200501T160000
DTEND;TZID=UTC:20200501T170000
DTSTAMP:20260418T053353
CREATED:20200418T005402Z
LAST-MODIFIED:20200418T005402Z
UID:7305-1588348800-1588352400@bleedingdisordersfl.org
SUMMARY:Self-Infusion 101
DESCRIPTION:Here is your chance to join an interactive webinar and learn the basics of self-infusion \nFriday May 1\, 2020\n4:oopm \nHosted by\nLeanne Buchanan\, RN\nHemophilia Outreach Nurse \nOur Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to normal one of our nurses will schedule a visit so you can practice infusing your factor. \nPlease RSVP By April 30\, 2020 \nEmail: info@bleedingdisordersfl.org \nPhone: 800-293-6527 \nOnce you we have your RSVP you will be sent the instructions on how to log in the day of the webinar. \n*By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration.* \n 
URL:https://bleedingdisordersfl.org/event/self-infusion-101/
CATEGORIES:Programs,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200430T190000
DTEND;TZID=UTC:20200430T203000
DTSTAMP:20260418T053353
CREATED:20200421T000125Z
LAST-MODIFIED:20200421T000125Z
UID:7315-1588273200-1588278600@bleedingdisordersfl.org
SUMMARY:Mental Health Matters: Maintaining Your Mental Health in Uncertain Times
DESCRIPTION:Maintaining Your Mental Health In Uncertain Times: Let’s Talk About It \nIn response to the anxiety generated by the coronavirus outbreak\, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover: \nCommon reactions to crisis \nOur natural stress response and ways to minimize its negative impact \nThe distinction between situational stress and an anxiety condition \nCreating a personalized stress management toolkit \nResources for mental health information and care \nSpeaker Bio:\nDebbie de la Riva\, LPC has been an active member of the bleeding disorders community since the birth of her son with severe hemophilia 25 years ago. She served as the Executive Director of the Lone Star Chapter of the National Hemophilia Foundation\, was a co-chair of a NHF Annual Meeting\, and received a Ryan White Award for Advocacy Excellence. In 2018\, Ms. de la Riva founded Mental Health Matters Too as a way of combining her degree as a licensed professional counselor with her passion of helping community members struggling with mental health challenges. The mission of MHMT is to normalize the discussion of mental health issues within the bleeding disorders community\, provide information on various mental health concepts and help community members locate resources for mental health care and support. \nPlease RSVP to info@bleedingdisordersfl.org for login information. \nModerated by BDFF Outreach and Education Nurse\, Leanne Buchanan\, RN
URL:https://bleedingdisordersfl.org/event/mental-health-matters-maintaining-your-mental-health-in-uncertain-times/
CATEGORIES:Programs,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200429T140000
DTEND;TZID=UTC:20200429T150000
DTSTAMP:20260418T053353
CREATED:20200318T224910Z
LAST-MODIFIED:20200318T224910Z
UID:7202-1588168800-1588172400@bleedingdisordersfl.org
SUMMARY:Step Therapy Webinar
DESCRIPTION:At this webinar\, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions. \nWe will also have a patient in the webinar with us to tell her story and give tips on how to push this issue forward for the 2021 Florida legislative session. \nPlease RSVP to info@bleedingdisorderscoalitionofflorida.org for the log in information. \nThis is a great way for you to become an advocate for yourself and the bleeding disorders community of Florida!
URL:https://bleedingdisordersfl.org/event/step-therapy-webinar/
CATEGORIES:Programs,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200421T190000
DTEND;TZID=UTC:20200421T200000
DTSTAMP:20260418T053353
CREATED:20200403T002136Z
LAST-MODIFIED:20200403T221939Z
UID:7239-1587495600-1587499200@bleedingdisordersfl.org
SUMMARY:BDFF Webinar: Emergency Preparation With a Bleeding Disorder
DESCRIPTION:So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips! \nWhat to expect at ER\nPrep for emergencies\nPrep for travel\nAdvocating\nMedical ID / medic alert\nPicking an ER\nYour Go Bag\nYour Emergency Plan\nWhen to go to the ER\nWhat happens when you get to the ER\nCommunicating with Providers\nPatient Rights \nThere will be time for questions and answers. \nPresented by Bayer nurse\, Linda Peacock \nRSVP to info@bleedingdisordersfl.org and you will receive login information. \nBrought to you by Bayer
URL:https://bleedingdisordersfl.org/event/hfgf-webinar-emergency-preparation-with-a-bleeding-disorder/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200417T190000
DTEND;TZID=UTC:20200417T203000
DTSTAMP:20260418T053353
CREATED:20200404T001919Z
LAST-MODIFIED:20200404T001919Z
UID:7257-1587150000-1587155400@bleedingdisordersfl.org
SUMMARY:BDFF World Hemophilia Day Online Trivia
DESCRIPTION:Curtis Earth has been hosting his quiz online since the closing of the local restaurants. He was featured this week in Orlando Date Night guides favorite virtual things to do. \nWe are going to have Curtis quiz us in our homes through the Zoom app. We will send out the link that will put you on Zoom and introduce you to Virtual Trivia with Curtis Earth!! You can even create remote teams. \nBDFF World Hemophilia Day Online Trivia is our time to celebrate and create awareness for bleeding disorders! There will be bleeding disorders trivia included so being knowledgeable about your disorder is your advantage! \nRSVP to info@bleedingdisordersfl.org for link to play. There is no cost for members of our bleeding disorders community to play. \nGame on!
URL:https://bleedingdisordersfl.org/event/hfgf-world-hemophilia-day-online-trivia/
CATEGORIES:Fun Stuff
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200416T160000
DTEND;TZID=UTC:20200416T170000
DTSTAMP:20260418T053353
CREATED:20200411T004504Z
LAST-MODIFIED:20200411T004504Z
UID:7275-1587052800-1587056400@bleedingdisordersfl.org
SUMMARY:BDFF Happy Hour
DESCRIPTION:BDFF Happy Hour \nApril 16th at 4pm \nTopic: What’s in a name? \nRSVP to info@bleedingdisordersfl.org for login information
URL:https://bleedingdisordersfl.org/event/hfgf-happy-hour-2/
CATEGORIES:Fun Stuff,Social Media
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200414T190000
DTEND;TZID=UTC:20200414T210000
DTSTAMP:20260418T053353
CREATED:20200309T213559Z
LAST-MODIFIED:20200324T210140Z
UID:7165-1586890800-1586898000@bleedingdisordersfl.org
SUMMARY:Webinar: Understanding Gene Therapy Research
DESCRIPTION:Understanding Gene Therapy Research Webinar\n(This webinar is replacing the dinner due to COVID-19) \nTuesday\nApril 14\, 2020\nWebinar will begin at 7:00pm \nPresented by Laureen Temple\, Senior Patient Education Liaison with Spark Therapeutics \nThis presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene therapy research. We will walk through the basics of genetics and how that plays a role in hemophilia. With that knowledge\, we will look at how gene therapy is meant to work and discuss both the potential for and the challenges of investigational gene therapy research in hemophilia today. \nPlease RSVP By April 10\, 2020\nEmail: info@bleedingdisordersfl.org\nPhone: 800-293-6527 \nOnce you we have your RSVP\, you will be sent the instructions on how to log in. \nThis webinar is sponsored by\nSpark Therapeutics
URL:https://bleedingdisordersfl.org/event/program-understanding-gene-therapy-research/
LOCATION:Seasons 52\, 7700 W. Sand Lake Road\, Orlando\, FL\, 32819\, United States
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200407T160000
DTEND;TZID=UTC:20200407T170000
DTSTAMP:20260418T053353
CREATED:20200328T001438Z
LAST-MODIFIED:20200328T001438Z
UID:7232-1586275200-1586278800@bleedingdisordersfl.org
SUMMARY:BDFF Happy Hour
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/hfgf-happy-hour/
CATEGORIES:Social Media
END:VEVENT
END:VCALENDAR