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X-WR-CALNAME:Bleeding Disorders Foundation of Florida
X-ORIGINAL-URL:https://bleedingdisordersfl.org
X-WR-CALDESC:Events for Bleeding Disorders Foundation of Florida
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TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20190101T000000
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
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DTSTART:20190310T070000
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TZOFFSETTO:-0400
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DTSTART:20200308T070000
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TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20201101T060000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20201017T100000
DTEND;TZID=UTC:20201017T110000
DTSTAMP:20260418T043356
CREATED:20200703T010202Z
LAST-MODIFIED:20201002T141105Z
UID:7494-1602928800-1602932400@bleedingdisordersfl.org
SUMMARY:Jacksonville Virtual Creepy Crawl
DESCRIPTION:Virtual Walk
URL:https://bleedingdisordersfl.org/event/jacksonville-virtual-creepy-crawl-2/
CATEGORIES:Fun Stuff,Fundraising,Walks/5K
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201008T183000
DTEND;TZID=America/New_York:20201008T193000
DTSTAMP:20260418T043356
CREATED:20200924T172943Z
LAST-MODIFIED:20200924T173136Z
UID:7898-1602181800-1602185400@bleedingdisordersfl.org
SUMMARY:Men's Program (Virtual)
DESCRIPTION:Join Dr. Gupta & others from the bleeding disorder community to talk about your bleeding disorder.
URL:https://bleedingdisordersfl.org/event/mens-program/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201002T183000
DTEND;TZID=America/New_York:20201002T193000
DTSTAMP:20260418T043356
CREATED:20200908T182339Z
LAST-MODIFIED:20200908T182339Z
UID:7831-1601663400-1601667000@bleedingdisordersfl.org
SUMMARY:Von Willebrand's Disease (an overview)
DESCRIPTION:Presented by \nMary Ann Cardenas\, RN\nHemophilia Nurse Coordinator\nAll Children’s Hospital
URL:https://bleedingdisordersfl.org/event/von-willebrands-disease-an-overview/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200929T183000
DTEND;TZID=America/New_York:20200929T200000
DTSTAMP:20260418T043356
CREATED:20200921T184306Z
LAST-MODIFIED:20200924T173204Z
UID:7891-1601404200-1601409600@bleedingdisordersfl.org
SUMMARY:Healthcare Insurance Road Map (Virtual)
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/healthcare-insurance-road-map/
LOCATION:VIrtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200924T183000
DTEND;TZID=America/New_York:20200924T200000
DTSTAMP:20260418T043356
CREATED:20200921T184115Z
LAST-MODIFIED:20200921T184115Z
UID:7888-1600972200-1600977600@bleedingdisordersfl.org
SUMMARY:Do What Moves You: Staying Fit (Virtual)
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/do-what-moves-you-staying-fit-virtual/
LOCATION:VIrtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200917T183000
DTEND;TZID=America/New_York:20200917T193000
DTSTAMP:20260418T043356
CREATED:20200908T180523Z
LAST-MODIFIED:20200908T180523Z
UID:7825-1600367400-1600371000@bleedingdisordersfl.org
SUMMARY:Parenting with A Chronic Condition
DESCRIPTION:Gain insights about the two phases of living with chronic condition\, including impact on the family & available resources.
URL:https://bleedingdisordersfl.org/event/parenting-with-a-chronic-condition/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200911T180000
DTEND;TZID=America/New_York:20200911T190000
DTSTAMP:20260418T043356
CREATED:20200908T182130Z
LAST-MODIFIED:20200908T182130Z
UID:7829-1599847200-1599850800@bleedingdisordersfl.org
SUMMARY:My HTC & Me
DESCRIPTION:A conversation with the University of Miami Hemophilia Treatment Center Team. \n\nDo you have questions about your bleeding disorder? Maybe you understand what it means\, from a laboratory or scientific point of view\, to have Hemophilia or von Willebrand Disease.  \nBUT\, Have you ever left a clinic visit\, arrived home and thought:  “Oops\, I should have asked about……….” OR has a challenge or situation come up between clinic visits —- nothing urgent — Wouldn’t it be nice to talk it over with the HTC team?\nWell\, now’s your chance.
URL:https://bleedingdisordersfl.org/event/my-htc-me/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200714T183000
DTEND;TZID=UTC:20200714T193000
DTSTAMP:20260418T043356
CREATED:20200703T004604Z
LAST-MODIFIED:20200703T004604Z
UID:7492-1594751400-1594755000@bleedingdisordersfl.org
SUMMARY:BDFF Live Broadcast: Challenge Accepted
DESCRIPTION:Join us for a screening of an original video series inspired by and made for the hemophilia community\, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? \nTopic of this video: Siblings and Bleeding Disorders \nRSVP to info@bleedingdisordersfl.org for login information. \nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration. This session is not being recorded. To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
URL:https://bleedingdisordersfl.org/event/hfgf-live-broadcast-challenge-accepted-2/
CATEGORIES:Online Events,Programs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200714T183000
DTEND;TZID=UTC:20200714T193000
DTSTAMP:20260418T043356
CREATED:20200625T224118Z
LAST-MODIFIED:20200625T224118Z
UID:7473-1594751400-1594755000@bleedingdisordersfl.org
SUMMARY:BDFF Live Broadcast: Challenge Accepted
DESCRIPTION:Join us for a screening of an original video series inspired by and made for the hemophilia community\, followed by an open discussion about the everyday struggles of living with a bleeding disorder.  Are you up for the challenge? \nTopic of this video: Siblings and Bleeding Disorders \nRSVP to info@bleedingdisordersfl.org for login information. \nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration.  This session is not being recorded.  To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session.  You are not obligated to share any personal information.   BDFF recommends using your first initial instead of your full name when signing on.   \nThank you to Genentech.
URL:https://bleedingdisordersfl.org/event/hfgf-live-broadcast-challenge-accepted/
CATEGORIES:Fun Stuff,Online Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200625T183000
DTEND;TZID=UTC:20200625T200000
DTSTAMP:20260418T043356
CREATED:20200618T220322Z
LAST-MODIFIED:20200618T220322Z
UID:7455-1593109800-1593115200@bleedingdisordersfl.org
SUMMARY:Sports\, Drugs & Rock N' Roll
DESCRIPTION:Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse.  Listen to his story and how his experiences as a severe hemophilia playing college sports. \nPlease RSVP by June 24\, 2020\nEmail: info@bleedingdisordersfl.org\nPhone: 800-293-6527 \nOnce you we have your RSVP you will be sent the instructions on how to login the day of \nWEBINAR WAIVER AND DISCLOSURE\nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration. This session is not being recorded. To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information.   BDFF recommends using your first initial instead of your full name when signing on. \nBrought to you by CSL Behring
URL:https://bleedingdisordersfl.org/event/sports-drugs-rock-n-roll/
CATEGORIES:Programs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200618T190000
DTEND;TZID=UTC:20200618T200000
DTSTAMP:20260418T043356
CREATED:20200515T232131Z
LAST-MODIFIED:20200618T220045Z
UID:7386-1592506800-1592510400@bleedingdisordersfl.org
SUMMARY:BDFF Star Search -- POSTPONED
DESCRIPTION:Join BDFF for an online variety show! We want YOU to get involved… sing a song\, play an instrument\, tell a joke… share your talent during this hilarious hour of heartfelt fun! Be creative with your talent\, we want to see what you can do! \nWe are looking for a limited number of 2-3 minute talent acts for this online variety show of BDFF talent. This is your time to shine! And don’t worry\, this is all happening from the comfort of your own home. \nMore info coming soon. \nContact events@bleedingdisordersfl.org if you’d like to be part of the show! \nSponsorships available. Contact leahnash@bleedingdisordersfl.org for information.
URL:https://bleedingdisordersfl.org/event/hfgf-star-search/
CATEGORIES:Fun Stuff
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/97107188_10157956923086839_1760685116729851904_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200611T160000
DTEND;TZID=UTC:20200611T170000
DTSTAMP:20260418T043356
CREATED:20200515T231808Z
LAST-MODIFIED:20200515T231808Z
UID:7383-1591891200-1591894800@bleedingdisordersfl.org
SUMMARY:BDCF Legislative Webinar: Understanding the Committee Structure
DESCRIPTION:The Bleeding Disorders Coalition of Florida is hosting a webinar that will help you understand the committee structure. Nathan Schaefer with the National Hemophilia Foundation will lead an interactive session and give tips on getting bills through committees and which legislators to talk about bills such as step therapy and copay accumulators. \nPlease RSVP to info@bleedingdisorderscoalitionofflorida.org by June 10th for login information. This program is supported by Takeda. \nWEBINAR WAIVER AND DISCLOSURE\nBy RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF)\, Florida Hemophilia Association (FHA) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration. This session is not being recorded. To be in compliance\, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
URL:https://bleedingdisordersfl.org/event/bdcf-legislative-webinar-understanding-the-committee-structure/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/97016961_10157956859676839_9112552715157766144_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200604T160000
DTEND;TZID=UTC:20200604T170000
DTSTAMP:20260418T043356
CREATED:20200522T000517Z
LAST-MODIFIED:20200603T235101Z
UID:7398-1591286400-1591290000@bleedingdisordersfl.org
SUMMARY:Exercise and Your Joints Scavenger Hunt
DESCRIPTION:Understand the importance of exercise to maintain joint health. Discuss the various types of exercise\, all exercise does not have to be strenuous. Exercise for all age groups. This online program will be led by Janelle Swartz\, RN and Nurse Educator. \nPlease RSVP By June 3\, 2020\nEmail: info@bleedingdisordersfl.org\nPhone: 800-293-6527 \nOnce you we have your RSVP you will be sent the instructions on how to login the day of the program. \nThank you to Octapharma for your support!
URL:https://bleedingdisordersfl.org/event/exercise-and-your-joints-scavenger-hunt/
CATEGORIES:Fun Stuff,Programs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200521T190000
DTEND;TZID=UTC:20200521T203000
DTSTAMP:20260418T043356
CREATED:20200515T231051Z
LAST-MODIFIED:20200515T231051Z
UID:7380-1590087600-1590093000@bleedingdisordersfl.org
SUMMARY:BDFF Family Trivia Night
DESCRIPTION:BDFF is hosting another fun trivia night with your favorite trivia master\, Curtis Earth! RSVP to info@bleedingdisordersfl.org for login information.
URL:https://bleedingdisordersfl.org/event/hfgf-family-trivia-night/
CATEGORIES:Fun Stuff
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/96611337_10157953099441839_4535135158453403648_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200514T160000
DTEND;TZID=UTC:20200514T170000
DTSTAMP:20260418T043356
CREATED:20200422T002432Z
LAST-MODIFIED:20200422T002432Z
UID:7322-1589472000-1589475600@bleedingdisordersfl.org
SUMMARY:Happy Hour
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/happy-hour/
CATEGORIES:Fun Stuff
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200507T160000
DTEND;TZID=UTC:20200507T170000
DTSTAMP:20260418T043356
CREATED:20200413T213020Z
LAST-MODIFIED:20200413T213020Z
UID:7280-1588867200-1588870800@bleedingdisordersfl.org
SUMMARY:BDFF Teen Talk
DESCRIPTION:Hey Teens! How are you dealing with COVID-19? We want to give you a safe space to chat about how you’re feeling through all of this. Do you like distance learning? Do you miss your friends? What do you miss most about life before COVID-19? \nBDFF’s very own Natalie Rubin will be leading this talk. Natalie has been part of the BDFF community throughout middle and high school. She gets what it’s like to live with a bleeding disorder as a teen. \nRSVP to info@bleedingdisordersfl.org for log in information. \nBy RSVPing for this event\, you are allowing BDFF to use your image/likeness in BDFF promotions and outlets such as the BDFF website\, Facebook/Twitter/Instagram pages\, etc.
URL:https://bleedingdisordersfl.org/event/hfgf-teen-talk/
CATEGORIES:Fun Stuff,Webinar
ATTACH;FMTTYPE=image/jpeg:https://bleedingdisordersfl.org/wp-content/uploads/93365721_10157852433876839_8123290217810493440_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200505T160000
DTEND;TZID=UTC:20200505T170000
DTSTAMP:20260418T043356
CREATED:20200422T002321Z
LAST-MODIFIED:20200422T002321Z
UID:7320-1588694400-1588698000@bleedingdisordersfl.org
SUMMARY:Happy Hour En Español
DESCRIPTION:La Fundación de Hemofilia de la Gran Florida te invita a\nnuestro primer\nHappy Hour en Español\nMartes\, Cinco de Mayo\, 2020 a las 4 p.m.\n\nNuestro tema de discusion:\nActivando A Nuestra Comunidad Hispana\n\nRSVP a info@bleedingdisordersfl.org para recibir instrucciones de como conectarte\n\nBebidas opcionales ?. Te esperamos!\n\nThe Bleeding Disorders Foundation of Florida invites you to\nour first\nHappy Hour in Spanish\nTuesday\, May 5th\, 2020 at 4 p.m.\n\nOur topic of discussion:\nEngaging our Hispanic Community\n\nRSVP to info@bleedingdisordersfl.org to receive instructions on how to connect\n\nDrinks optional ?. We hope to see you there!
URL:https://bleedingdisordersfl.org/event/happy-hour-en-espanol/
CATEGORIES:Fun Stuff
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200501T160000
DTEND;TZID=UTC:20200501T170000
DTSTAMP:20260418T043356
CREATED:20200418T005402Z
LAST-MODIFIED:20200418T005402Z
UID:7305-1588348800-1588352400@bleedingdisordersfl.org
SUMMARY:Self-Infusion 101
DESCRIPTION:Here is your chance to join an interactive webinar and learn the basics of self-infusion \nFriday May 1\, 2020\n4:oopm \nHosted by\nLeanne Buchanan\, RN\nHemophilia Outreach Nurse \nOur Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to normal one of our nurses will schedule a visit so you can practice infusing your factor. \nPlease RSVP By April 30\, 2020 \nEmail: info@bleedingdisordersfl.org \nPhone: 800-293-6527 \nOnce you we have your RSVP you will be sent the instructions on how to log in the day of the webinar. \n*By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida permission to use your likeness in a photograph\, video\, or other digital media (“photo”) in any and all of its publications\, including web-based publications\, without payment or other consideration.* \n 
URL:https://bleedingdisordersfl.org/event/self-infusion-101/
CATEGORIES:Programs,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200430T190000
DTEND;TZID=UTC:20200430T203000
DTSTAMP:20260418T043356
CREATED:20200421T000125Z
LAST-MODIFIED:20200421T000125Z
UID:7315-1588273200-1588278600@bleedingdisordersfl.org
SUMMARY:Mental Health Matters: Maintaining Your Mental Health in Uncertain Times
DESCRIPTION:Maintaining Your Mental Health In Uncertain Times: Let’s Talk About It \nIn response to the anxiety generated by the coronavirus outbreak\, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover: \nCommon reactions to crisis \nOur natural stress response and ways to minimize its negative impact \nThe distinction between situational stress and an anxiety condition \nCreating a personalized stress management toolkit \nResources for mental health information and care \nSpeaker Bio:\nDebbie de la Riva\, LPC has been an active member of the bleeding disorders community since the birth of her son with severe hemophilia 25 years ago. She served as the Executive Director of the Lone Star Chapter of the National Hemophilia Foundation\, was a co-chair of a NHF Annual Meeting\, and received a Ryan White Award for Advocacy Excellence. In 2018\, Ms. de la Riva founded Mental Health Matters Too as a way of combining her degree as a licensed professional counselor with her passion of helping community members struggling with mental health challenges. The mission of MHMT is to normalize the discussion of mental health issues within the bleeding disorders community\, provide information on various mental health concepts and help community members locate resources for mental health care and support. \nPlease RSVP to info@bleedingdisordersfl.org for login information. \nModerated by BDFF Outreach and Education Nurse\, Leanne Buchanan\, RN
URL:https://bleedingdisordersfl.org/event/mental-health-matters-maintaining-your-mental-health-in-uncertain-times/
CATEGORIES:Programs,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200429T140000
DTEND;TZID=UTC:20200429T150000
DTSTAMP:20260418T043356
CREATED:20200318T224910Z
LAST-MODIFIED:20200318T224910Z
UID:7202-1588168800-1588172400@bleedingdisordersfl.org
SUMMARY:Step Therapy Webinar
DESCRIPTION:At this webinar\, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions. \nWe will also have a patient in the webinar with us to tell her story and give tips on how to push this issue forward for the 2021 Florida legislative session. \nPlease RSVP to info@bleedingdisorderscoalitionofflorida.org for the log in information. \nThis is a great way for you to become an advocate for yourself and the bleeding disorders community of Florida!
URL:https://bleedingdisordersfl.org/event/step-therapy-webinar/
CATEGORIES:Programs,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200421T190000
DTEND;TZID=UTC:20200421T200000
DTSTAMP:20260418T043356
CREATED:20200403T002136Z
LAST-MODIFIED:20200403T221939Z
UID:7239-1587495600-1587499200@bleedingdisordersfl.org
SUMMARY:BDFF Webinar: Emergency Preparation With a Bleeding Disorder
DESCRIPTION:So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips! \nWhat to expect at ER\nPrep for emergencies\nPrep for travel\nAdvocating\nMedical ID / medic alert\nPicking an ER\nYour Go Bag\nYour Emergency Plan\nWhen to go to the ER\nWhat happens when you get to the ER\nCommunicating with Providers\nPatient Rights \nThere will be time for questions and answers. \nPresented by Bayer nurse\, Linda Peacock \nRSVP to info@bleedingdisordersfl.org and you will receive login information. \nBrought to you by Bayer
URL:https://bleedingdisordersfl.org/event/hfgf-webinar-emergency-preparation-with-a-bleeding-disorder/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200417T190000
DTEND;TZID=UTC:20200417T203000
DTSTAMP:20260418T043356
CREATED:20200404T001919Z
LAST-MODIFIED:20200404T001919Z
UID:7257-1587150000-1587155400@bleedingdisordersfl.org
SUMMARY:BDFF World Hemophilia Day Online Trivia
DESCRIPTION:Curtis Earth has been hosting his quiz online since the closing of the local restaurants. He was featured this week in Orlando Date Night guides favorite virtual things to do. \nWe are going to have Curtis quiz us in our homes through the Zoom app. We will send out the link that will put you on Zoom and introduce you to Virtual Trivia with Curtis Earth!! You can even create remote teams. \nBDFF World Hemophilia Day Online Trivia is our time to celebrate and create awareness for bleeding disorders! There will be bleeding disorders trivia included so being knowledgeable about your disorder is your advantage! \nRSVP to info@bleedingdisordersfl.org for link to play. There is no cost for members of our bleeding disorders community to play. \nGame on!
URL:https://bleedingdisordersfl.org/event/hfgf-world-hemophilia-day-online-trivia/
CATEGORIES:Fun Stuff
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200416T160000
DTEND;TZID=UTC:20200416T170000
DTSTAMP:20260418T043356
CREATED:20200411T004504Z
LAST-MODIFIED:20200411T004504Z
UID:7275-1587052800-1587056400@bleedingdisordersfl.org
SUMMARY:BDFF Happy Hour
DESCRIPTION:BDFF Happy Hour \nApril 16th at 4pm \nTopic: What’s in a name? \nRSVP to info@bleedingdisordersfl.org for login information
URL:https://bleedingdisordersfl.org/event/hfgf-happy-hour-2/
CATEGORIES:Fun Stuff,Social Media
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200414T190000
DTEND;TZID=UTC:20200414T210000
DTSTAMP:20260418T043356
CREATED:20200309T213559Z
LAST-MODIFIED:20200324T210140Z
UID:7165-1586890800-1586898000@bleedingdisordersfl.org
SUMMARY:Webinar: Understanding Gene Therapy Research
DESCRIPTION:Understanding Gene Therapy Research Webinar\n(This webinar is replacing the dinner due to COVID-19) \nTuesday\nApril 14\, 2020\nWebinar will begin at 7:00pm \nPresented by Laureen Temple\, Senior Patient Education Liaison with Spark Therapeutics \nThis presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene therapy research. We will walk through the basics of genetics and how that plays a role in hemophilia. With that knowledge\, we will look at how gene therapy is meant to work and discuss both the potential for and the challenges of investigational gene therapy research in hemophilia today. \nPlease RSVP By April 10\, 2020\nEmail: info@bleedingdisordersfl.org\nPhone: 800-293-6527 \nOnce you we have your RSVP\, you will be sent the instructions on how to log in. \nThis webinar is sponsored by\nSpark Therapeutics
URL:https://bleedingdisordersfl.org/event/program-understanding-gene-therapy-research/
LOCATION:Seasons 52\, 7700 W. Sand Lake Road\, Orlando\, FL\, 32819\, United States
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200407T160000
DTEND;TZID=UTC:20200407T170000
DTSTAMP:20260418T043356
CREATED:20200328T001438Z
LAST-MODIFIED:20200328T001438Z
UID:7232-1586275200-1586278800@bleedingdisordersfl.org
SUMMARY:BDFF Happy Hour
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/hfgf-happy-hour/
CATEGORIES:Social Media
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200328T060000
DTEND;TZID=UTC:20200328T210000
DTSTAMP:20260418T043356
CREATED:20200316T220212Z
LAST-MODIFIED:20200316T220257Z
UID:7182-1585375200-1585429200@bleedingdisordersfl.org
SUMMARY:*CANCELLED* Superhero Fun Walk Registration Party at Tampa Lightning Game
DESCRIPTION:**NOTE: DUE TO THE CDC RECOMMENDATIONS ON COVID-19\, THE  NHL HAS CANCELLED THEIR HOCKEY SEASON. AS SUCH\, AND IN KEEPING WITH THE HEALTH AND SAFETY OF OUR ATTENDEES\, WE HAVE CANCELLED THIS EVENT AS WELL. ** \nREGISTRATION PARTY: \nMarch 28th at the Amalie Arena \nLIGHTNING VS. RANGERS \nEducational Program & Dinner Included \nProgram starts at 5 pm; Game starts at 7 pm \nYou must be registered for the walk to attend! \nRSVP to info@bleedingdisordersfl.org
URL:https://bleedingdisordersfl.org/event/cancelled-superhero-fun-walk-registration-party-at-tampa-lightning-game/
CATEGORIES:Programs,Walks/5K
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200226T180000
DTEND;TZID=UTC:20200226T210000
DTSTAMP:20260418T043356
CREATED:20200211T014053Z
LAST-MODIFIED:20200211T014053Z
UID:7117-1582740000-1582750800@bleedingdisordersfl.org
SUMMARY:Gainesville Blaze Pizza Fundraiser
DESCRIPTION:
URL:https://bleedingdisordersfl.org/event/gainesville-blaze-pizza-fundraiser/
LOCATION:Blaze Pizza– Archer\, 3617 SW Archer Rd\, Gainesville\, FL\, 32608\, United States
CATEGORIES:Fundraising
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200221T171500
DTEND;TZID=UTC:20200221T220000
DTSTAMP:20260418T043356
CREATED:20200129T000745Z
LAST-MODIFIED:20200129T000745Z
UID:6980-1582305300-1582322400@bleedingdisordersfl.org
SUMMARY:Special Program: Pushing Through Life's Challenges
DESCRIPTION:Please join the Bleeding Disorders Foundation of Florida\nfor a very special family event and dinner \nPUSHING THROUGH LIFE’S CHALLENGES\nPresented by Seth Rojhani\nFriday February 21\, 2019\n5:15 p.m.\n(please be on time for this great program) \nAmway Center\n400 West Church Street #200\nOrlando\, FL 32801 \nAfter the program enjoy the game of the season\nOrlando Magic vs Dallas Mavericks! \nEntrance Details \nAttendees will enter through the Administration Entrance\,\nwhich is located to left of the Magic Team Shop on the corner of  S. Hughey Ave. and Church St.\nThe program will be in the Amway Center’s Bank United Vault Room.\nYou will be escorted to the program by Magic staff. \nBackpack & bags larger than 14 in. x 14 in. x 6 in are prohibited \nRSVP by February 19\, 2019\n1-800-293-6527 or info@bleedingdisordersfl.org \nTickets are limited & are available on a first come\, first served basis\n(for immediate family members only\, please).\n The program must be attended to receive tickets. \nThis program is supported by Octapharma.
URL:https://bleedingdisordersfl.org/event/special-program-pushing-through-lifes-challenges/
CATEGORIES:Programs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200218T080000
DTEND;TZID=UTC:20200219T210000
DTSTAMP:20260418T043356
CREATED:20200114T024836Z
LAST-MODIFIED:20200114T024836Z
UID:6932-1582012800-1582146000@bleedingdisordersfl.org
SUMMARY:2020 Advocacy Days
DESCRIPTION:Join the Bleeding Disorders Foundation of Florida and the Bleeding Disorders Coalition of Florida in Tallahassee as we advocate for the bleeding disorders community.
URL:https://bleedingdisordersfl.org/event/2020-advocacy-days/
CATEGORIES:Advocacy
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200211T183000
DTEND;TZID=UTC:20200211T200000
DTSTAMP:20260418T043356
CREATED:20200131T025342Z
LAST-MODIFIED:20200131T025342Z
UID:6999-1581445800-1581451200@bleedingdisordersfl.org
SUMMARY:Legislative Webinar
DESCRIPTION:Informative and interactive webinar about BDCF 2020 legislative priorities. At this webinar\, you will learn about BDCF bills and how to communicate with your legislators about them. This webinar is for anyone who wants to be able to speak on behalf of the bleeding disorders community either at BDCF Legislative Days or on your own. \nRSVP to info@bleedingdisorderscoaltionofflorida and you will receive log in information. \n 
URL:https://bleedingdisordersfl.org/event/legislative-webinar/
CATEGORIES:Advocacy
END:VEVENT
END:VCALENDAR