2020 Advocacy Days
Join the Bleeding Disorders Foundation of Florida and the Bleeding Disorders Coalition of Florida in Tallahassee as we advocate for the bleeding disorders community.
Special Program: Pushing Through Life’s Challenges
Please join the Bleeding Disorders Foundation of Florida for a very special family event and dinner PUSHING THROUGH LIFE'S CHALLENGES Presented by Seth Rojhani Friday February 21, 2019 5:15 p.m. (please be on time for this great program) Amway Center 400 West Church Street #200 Orlando, FL 32801 After the program enjoy the game of
Gainesville Blaze Pizza Fundraiser
Blaze Pizza-- Archer 3617 SW Archer Rd, Gainesville, FL, United States*CANCELLED* Superhero Fun Walk Registration Party at Tampa Lightning Game
**NOTE: DUE TO THE CDC RECOMMENDATIONS ON COVID-19, THE NHL HAS CANCELLED THEIR HOCKEY SEASON. AS SUCH, AND IN KEEPING WITH THE HEALTH AND SAFETY OF OUR ATTENDEES, WE HAVE CANCELLED THIS EVENT AS WELL. ** REGISTRATION PARTY: March 28th at the Amalie Arena LIGHTNING VS. RANGERS Educational Program & Dinner Included Program starts at
Webinar: Understanding Gene Therapy Research
Seasons 52 7700 W. Sand Lake Road, Orlando, FL, United StatesUnderstanding Gene Therapy Research Webinar (This webinar is replacing the dinner due to COVID-19) Tuesday April 14, 2020 Webinar will begin at 7:00pm Presented by Laureen Temple, Senior Patient Education Liaison with Spark Therapeutics This presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene
BDFF Happy Hour
BDFF Happy Hour April 16th at 4pm Topic: What's in a name? RSVP to [email protected] for login information
BDFF World Hemophilia Day Online Trivia
Curtis Earth has been hosting his quiz online since the closing of the local restaurants. He was featured this week in Orlando Date Night guides favorite virtual things to do. We are going to have Curtis quiz us in our homes through the Zoom app. We will send out the link that will put you
BDFF Webinar: Emergency Preparation With a Bleeding Disorder
So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips! What to expect at ER Prep for emergencies Prep for travel Advocating Medical ID / medic alert Picking an ER Your Go Bag Your Emergency Plan When to go to the ER What happens when you get to
Step Therapy Webinar
At this webinar, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions. We will also have a patient in the webinar with us to tell her story and give tips on how to push