CALENDAR

Special Program: Pushing Through Life’s Challenges

Please join the Bleeding Disorders Foundation of Florida for a very special family event and dinner PUSHING THROUGH LIFE'S CHALLENGES Presented by Seth Rojhani Friday February 21, 2019 5:15 p.m. (please be on time for this great program) Amway Center 400 West Church Street #200 Orlando, FL 32801 After the program enjoy the game of

Read More

*CANCELLED* Superhero Fun Walk Registration Party at Tampa Lightning Game

**NOTE: DUE TO THE CDC RECOMMENDATIONS ON COVID-19, THEĀ  NHL HAS CANCELLED THEIR HOCKEY SEASON. AS SUCH, AND IN KEEPING WITH THE HEALTH AND SAFETY OF OUR ATTENDEES, WE HAVE CANCELLED THIS EVENT AS WELL. ** REGISTRATION PARTY: March 28th at the Amalie Arena LIGHTNING VS. RANGERS Educational Program & Dinner Included Program starts at

Read More

Webinar: Understanding Gene Therapy Research

Seasons 52 7700 W. Sand Lake Road, Orlando, FL, United States

Understanding Gene Therapy Research Webinar (This webinar is replacing the dinner due to COVID-19) Tuesday April 14, 2020 Webinar will begin at 7:00pm Presented by Laureen Temple, Senior Patient Education Liaison with Spark Therapeutics This presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene

Read More

BDFF World Hemophilia Day Online Trivia

Curtis Earth has been hosting his quiz online since the closing of the local restaurants. He was featured this week in Orlando Date Night guides favorite virtual things to do. We are going to have Curtis quiz us in our homes through the Zoom app. We will send out the link that will put you

Read More

BDFF Webinar: Emergency Preparation With a Bleeding Disorder

So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips! What to expect at ER Prep for emergencies Prep for travel Advocating Medical ID / medic alert Picking an ER Your Go Bag Your Emergency Plan When to go to the ER What happens when you get to

Read More

Step Therapy Webinar

At this webinar, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions. We will also have a patient in the webinar with us to tell her story and give tips on how to push

Read More

Mental Health Matters: Maintaining Your Mental Health in Uncertain Times

Maintaining Your Mental Health In Uncertain Times: Let's Talk About It In response to the anxiety generated by the coronavirus outbreak, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover: Common reactions to crisis Our natural stress response

Read More

CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.