CALENDAR

Webinar: Understanding Gene Therapy Research

Seasons 52 7700 W. Sand Lake Road, Orlando, FL, United States

Understanding Gene Therapy Research Webinar (This webinar is replacing the dinner due to COVID-19) Tuesday April 14, 2020 Webinar will begin at 7:00pm Presented by Laureen Temple, Senior Patient Education Liaison with Spark Therapeutics This presentation is intended to walk you through the journey that started over 50 years ago with the beginnings of gene

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BDFF Webinar: Emergency Preparation With a Bleeding Disorder

So many families need preparation for a Hemophilia emergency! This presentation will assist families with helpful tips! What to expect at ER Prep for emergencies Prep for travel Advocating Medical ID / medic alert Picking an ER Your Go Bag Your Emergency Plan When to go to the ER What happens when you get to

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Step Therapy Webinar

At this webinar, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions. We will also have a patient in the webinar with us to tell her story and give tips on how to push

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Mental Health Matters: Maintaining Your Mental Health in Uncertain Times

Maintaining Your Mental Health In Uncertain Times: Let's Talk About It In response to the anxiety generated by the coronavirus outbreak, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover: Common reactions to crisis Our natural stress response

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Self-Infusion 101

Here is your chance to join an interactive webinar and learn the basics of self-infusion Friday May 1, 2020 4:oopm Hosted by Leanne Buchanan, RN Hemophilia Outreach Nurse Our Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to

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BDFF Teen Talk

Hey Teens! How are you dealing with COVID-19? We want to give you a safe space to chat about how you're feeling through all of this. Do you like distance learning? Do you miss your friends? What do you miss most about life before COVID-19? BDFF's very own Natalie Rubin will be leading this talk.

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BDCF Legislative Webinar: Understanding the Committee Structure

The Bleeding Disorders Coalition of Florida is hosting a webinar that will help you understand the committee structure. Nathan Schaefer with the National Hemophilia Foundation will lead an interactive session and give tips on getting bills through committees and which legislators to talk about bills such as step therapy and copay accumulators. Please RSVP to

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CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.