Bleeding Disorders Foundation of Florida

Step Therapy Webinar
2020-04-29 14:00 - 15:00 UTC | FL
At this webinar, we will discuss what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of America will lead this discussion and answer questions.
We will also have a patient in the webinar with us to tell her story and give tips on how to push this issue forward for the 2021 Florida legislative session.
Please RSVP to info@bleedingdisorderscoalitionofflorida.org for the log in information.
This is a great way for you to become an advocate for yourself and the bleeding disorders community of Florida!

Mental Health Matters: Maintaining Your Mental Health in Uncertain Times
2020-04-30 19:00 - 20:30 UTC | FL
Maintaining Your Mental Health In Uncertain Times: Let’s Talk About It
In response to the anxiety generated by the coronavirus outbreak, Mental Health Matters Too has created a practical webinar to address the increased stress level of members in the bleeding disorders community. The webinar will cover:
Common reactions to crisis
Our natural stress response and ways to minimize its negative impact
The distinction between situational stress and an anxiety condition
Creating a personalized stress management toolkit
Resources for mental health information and care
Speaker Bio:
Debbie de la Riva, LPC has been an active member of the bleeding disorders community since the birth of her son with severe hemophilia 25 years ago. She served as the Executive Director of the Lone Star Chapter of the National Hemophilia Foundation, was a co-chair of a NHF Annual Meeting, and received a Ryan White Award for Advocacy Excellence. In 2018, Ms. de la Riva founded Mental Health Matters Too as a way of combining her degree as a licensed professional counselor with her passion of helping community members struggling with mental health challenges. The mission of MHMT is to normalize the discussion of mental health issues within the bleeding disorders community, provide information on various mental health concepts and help community members locate resources for mental health care and support.
Please RSVP to info@bleedingdisordersfl.org for login information.
Moderated by BDFF Outreach and Education Nurse, Leanne Buchanan, RN

Self-Infusion 101
2020-05-01 16:00 - 17:00 UTC | FL
Here is your chance to join an interactive webinar and learn the basics of self-infusion
Friday May 1, 2020
4:oopm
Hosted by
Leanne Buchanan, RN
Hemophilia Outreach Nurse
Our Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to normal one of our nurses will schedule a visit so you can practice infusing your factor.
Please RSVP By April 30, 2020
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527
Once you we have your RSVP you will be sent the instructions on how to log in the day of the webinar.
*By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration.*

Exercise and Your Joints Scavenger Hunt
2020-06-04 16:00 - 17:00 UTC | FL
Understand the importance of exercise to maintain joint health. Discuss the various types of exercise, all exercise does not have to be strenuous. Exercise for all age groups. This online program will be led by Janelle Swartz, RN and Nurse Educator.
Please RSVP By June 3, 2020
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527
Once you we have your RSVP you will be sent the instructions on how to login the day of the program.
Thank you to Octapharma for your support!

Sports, Drugs & Rock N' Roll
2020-06-25 18:30 - 20:00 UTC | FL
Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse. Listen to his story and how his experiences as a severe hemophilia playing college sports.
Please RSVP by June 24, 2020
Email: info@bleedingdisordersfl.org
Phone: 800-293-6527
Once you we have your RSVP you will be sent the instructions on how to login the day of
WEBINAR WAIVER AND DISCLOSURE
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.
Brought to you by CSL Behring

BDFF Live Broadcast: Challenge Accepted
2020-07-14 18:30 - 19:30 UTC | FL
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge?
Topic of this video: Siblings and Bleeding Disorders
RSVP to info@bleedingdisordersfl.org for login information.
By RSVPing to this event you hereby grant the Bleeding Disorders Foundation of Florida (BDFF) and the Bleeding Disorders Coalition of Florida (BDCF) permission to use your likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. This session is not being recorded. To be in compliance, we ask people working for industry attending this online program to disclose their position and the company they work for one time at the beginning of the session. You are not obligated to share any personal information. BDFF recommends using your first initial instead of your full name when signing on.

PUSHING THROUGH WITH POSITIVITY
2022-09-09 18:00 - 21:00 (America/New_York) | Exploria Stadium, 655 W Church St,, Orlando, FL, 32805, United States
JOIN US FOR A SPECIAL FAMILY DINNER PROGRAM
PUSHING THROUGH WITH POSITIVITY
Presented By
Pete D
Common Factors Advocate (Baseball/Basketball)
Friday, September 9, 2022
6:15 pm
Exploria Stadium
655 W Church St,
Orlando, FL 32805
Entrance at Gate A
No Strollers – No Bags
Parking not included

After the program you will see the Women’s Soccer Game of the Season
Orlando Pride v Portland Thorns
(The Game Begins at 7:00 pm)
Scoreboard Deck
Private Game Viewing

Women's/Girls' Annual Retreat
2023-06-09 18:30 - 2023-06-10 17:00 (America/New_York) | Renaissance Hotel St. Augustine, 6 W Castillo Dr., Saint Augustine, 32804, United States
Join us for a special Women’s Retreat from June 9-10th (Friday-Saturday) starting at 6:30PM at the historic downtown Renaissance hotel in St. Augustine!

Address:
6 W Castillo Dr. Saint Augustine, FL 32804

The Women’s Retreat is a special overnight program for women/girls with bleeding disorders and carriers. You will learn the most updated information from the experts, share information, and have lots of fun!

RSVP BY MAY 20, 2023 by emailing info@hemophiliflorida.org OR call 800-293-6527

Patient Dinner Program
2023-07-27 18:30 - 20:30 (America/New_York) | FL
Join us for a special dinner program
A Discussion on Hem A Product

Presented By
Shveta Gupta, M.D.
Director of Hematology at Orlando Health

Thursday, July 27, 2023
6:30 PM

The Capital Grille
4200 Conroy Road
Orlando, FL 32839

RSVP by July 24, 2023
info@bleedingdisordersfl.org or 800-293-6527

Sponsored By

Topgolf Orlando: Fun Family Program
2023-08-03 18:30 - 21:00 (America/New_York) | TopGolf Orlando, 9295 Universal Blvd., Orlando, Florida, 32819
Join us for a Fun Family Program
An information conversation about Hemophilia A

Presented By
Tim G.
Common Factors® Advocate

Thursday, August 3, 2023
6:30 PM

Topgolf Orlando
9295 Universal Blvd
Orlando, FL 32819

This program includes refreshments and Topgolf playing

RSVP by July 28, 2023
info@bleedingdisordersfl.org or 800-293-6527

Sponsored By

Orlando Dinner Program: Gene Therapy in Hemophilia A
2023-10-12 18:00 - 20:00 (America/New_York) | Season’s 52 Restaurant, 7700 Sandlake Road, Orlando, FL, 32819, United States
Join us for a Special Dinner Program
Gene Therapy in Hemophilia A:
Come find out what all the buzz is about—from curiosity to eligibility and beyond

Facilitated by
Maria E. Torres Esteves, R.Ph., Pharm.D.
Account Manager, Gene Therapy
BioMarin Pharmaceutical Inc.

Thursday, October 12, 2023
6:00PM
Season’s 52 Restaurant

Orlando
7700 W Sand Lake Rd
Orlando, FL 32819
RSVP to
info@bleedingdisordersfl.org or 407-629-0000

Sponsored By:

Family Retreat Weekend
2023-10-13 17:00 - 2023-10-15 12:15 (America/New_York) | Camp Boggy Creek, 30500 Brantley Branch Rd,, Eustis, FL, 32736, United States
Family Retreat Weekend is the perfect way for families to get familiar with Camp Spirit. The whole family is invited to spend a weekend at Camp Spirit so that everyone in the family can get comfortable with all of the fun activities available at Camp Spirit. This way, when it’s time for kids to go to Camp Spirit in the summer, everyone feels comfortable and is looking forward to it! SPACE IS LIMITED.

Tampa Fun Family Program: Zoo Tampa
2023-11-11 11:00 - 14:30 (America/New_York) | Zoo Tampa, 1101 W. Sligh Ave, Tampa, FL, 33612, United States
Join us for a

Fun Family Program

“Advocating for your child from birth to college: the 411 on IEP and 504s.”
&
“Unity through community:
getting involved with your local chapter.”

Presented by
Mily M-C

Saturday, November 11, 2023
11:00 am

Zoo Tampa at Lowry Park
1101 W. Sligh Ave,
Tampa, FL 33604

Join us for a delicious lunch and
information on bleeding disorders.

After the program…enjoy your afternoon at Zoo Tampa at Lowry Park

RSVP by
November 6, 2023
info@bleedingdisordersfl.org
800.293.6527

Sponsored By

Gainesville Fun Family Program: Escapology
2023-11-12 13:00 - 15:30 (America/New_York) | Escapology, 4480 SW 32nd Rd Suite 10, Gainesville, FL, 32608, United States
Learn how your HTC and BDFF collaborate, and what they have to offer the community!

November 12, 2023
1:00 PM
Lunch is provided. All ages are invited!

Escapology
Celebration Pointe
4480 SW 32nd Rd Suite 10
Gainesville, FL 32608

To RSVP, call 800-293-6527 or email info@bleedingdisordersfl.org

Sponsored by:

Miami Program: Fun, Food, and Football!
2023-11-18 11:00 - 14:30 (America/New_York) | Miami Lakes Hotel and Golf Club, 6842 Main Street, Miami Lakes, FL, 33014, United States
Fun, Food, and Football
Saturday, November 18, 2023
11:00 am
Program time may change.
due to the UM Football Schedule, we will keep you posted.
Presented by
Dr. Kelli A Fraga
Physical Therapist
University of Miami Miller School of Medicine
The program includes a fun program,
delicious brunch, and tickets to
the game of the season!

at
Miami Lakes Hotel and Golf Club
6842 Main Street
Miami Lakes, FL 33014

R.S.V.P. by November 13, 2023
1-800-293-6527
info@bleedingdisordersfl.org
Space to the game is VERY limited

THIS PROGRAM IS SPONSORED BY

Orlando Patient Program: Orlando Magic Game
2024-01-28 16:00 - 18:00 (America/New_York) | Kia Center, 400 West Church Street #200, Orlando, FL, 32801, United States
Join the BDFF and a special guest speaker for a fun program at the Kia Center (previously Amway Center) on January 28th!

Orlando Patient Dinner Program
2024-02-29 18:30 - 20:30 (America/New_York) | Blu on The Avenue, 326 S. Park Ave, Winter Park, FL, 32789, United States

South Florida Patient Program: Women's Tea and Luncheon
2024-03-23 11:30 - 14:00 (America/New_York) | Tea Time, 7762 NW 44th Street, Sunrise, FL, 33351, United States

Gainesville Patient Dinner Program
2024-03-28 18:30 - 20:00 (America/New_York) | Amelia’s Italian Restaurant, 235 S Main St 107, Gainesville, FL, 32601, United States

Orlando Patient Dinner: World Hemophilia Day Celebration
2024-04-26 18:00 - 21:00 (America/New_York) | Leu Gardens, 1920 N Forest Ave, Orlando, FL, 32803, United States
Join us for a World Hemophilia Day celebration and dinner at the beautiful Leu Gardens!

Tampa Patient Program: Women's Tea and Luncheon
2024-04-27 11:00 - 14:00 (America/New_York) | Empress Room – International Event Venue, 6463 W Hillsborough, Tampa, FL, 33634, United States
Join us for a Ladies’ Tea and Luncheon at the Empress Room to discuss the most updated information about women and bleeding disorders!

Pensacola Patient Dinner: The Science Behind Gene Therapy
2024-05-08 18:00 - 20:30 (America/New_York) | Angelena’s Ristorante Italiano, 101 E. Intendencia Street, Pensacola, FL, 32502, United States
Join us for a fun educational dinner program in the Panhandle!

Tampa Dinner Program: Health Insurance Roadmap
2024-05-29 18:30 - 20:30 (America/New_York) | Columbia Restaurant, 2117 East 7th Avenue, Tampa, FL, 33605, United States
Join us at the Columbia Restaurant on May 29th for an educational dinner program. The program will begin at 6:30PM. Please RSVP by Monday, May 27th.

Jacksonville Patient Dinner Program
2024-06-13 18:30 - 20:30 (America/New_York) | Season’s 52 Restaurant, 7700 Sandlake Road, Orlando, FL, 32819, United States
RSVP by June 10th for this fun, educational dinner program!

Camp Spirit
2024-06-19 14:00 - 2024-06-23 12:00 (America/New_York) | Camp Boggy Creek, 30500 Brantley Branch Rd,, Eustis, FL, 32736, United States

Teen & Youth Retreat
2024-07-19 10:30 - 15:00 (America/New_York) | Hard Rock Cafe, 6050 Universal Blvd, Orlando, FL, 32819, United States
SAVE THE DATE for Friday, July 19th at the Hard Rock Cafe for the 5th annual Teen & Youth Retreat! More information to come.

Tampa Dinner Program
2024-10-10 18:00 - 20:30 (America/New_York) | Fleming’s Steakhouse and Seafood, 4342 W Boy Scout Blvd., Tampa, FL, 33607, United States
Dine with us and discover how to navigate the world of bleeding disorders.

Annual Family Program at SeaWorld
2025-06-07 09:00 - 13:00 (America/New_York) | SeaWorld Orlando, 7007 SeaWorld Drive, Orlando, FL, United States
SMART ADVENTURES:
LEARN, LAUGH, AND PLAY
Facilitated by
Mike Rosenthal
The day includes:
Breakfast
Interactive family program
AND a fun day
at SeaWorld® Orlando
You must attend the program to go into the park.

Women's Retreat
2025-06-20 18:00 - 2025-06-21 12:00 (America/New_York) | Renaissance Hotel St. Augustine, 6 W Castillo Dr., Saint Augustine, 32804, United States
The Women’s Retreat is a special overnight program for women and girls with bleeding disorders, as well as carriers. Participants will receive the latest information from experts, share experiences, and enjoy a variety of fun activities.
