CALENDAR

BDFF Live Broadcast: Challenge Accepted

Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? Topic of this video: Siblings and Bleeding Disorders RSVP to [email protected] for login information. By RSVPing

Read More

PUSHING THROUGH WITH POSITIVITY

Exploria Stadium 655 W Church St,, Orlando, FL, United States

JOIN US FOR A SPECIAL FAMILY DINNER PROGRAM PUSHING THROUGH WITH POSITIVITY Presented By Pete D Common Factors Advocate (Baseball/Basketball) Friday, September 9, 2022 6:15 pm Exploria Stadium 655 W Church St, Orlando, FL 32805 Entrance at Gate A No Strollers - No Bags Parking not included   After the program you will see the

Read More

Women’s/Girls’ Annual Retreat

Renaissance Hotel St. Augustine 6 W Castillo Dr., Saint Augustine, United States

Join us for a special Women's Retreat from June 9-10th (Friday-Saturday) starting at 6:30PM at the historic downtown Renaissance hotel in St. Augustine!   Address: 6 W Castillo Dr. Saint Augustine, FL 32804   The Women's Retreat is a special overnight program for women/girls with bleeding disorders and carriers. You will learn the most updated

Read More

Patient Dinner Program

Join us for a special dinner program A Discussion on Hem A Product   Presented By Shveta Gupta, M.D. Director of Hematology at Orlando Health   Thursday, July 27, 2023 6:30 PM   The Capital Grille 4200 Conroy Road Orlando, FL 32839   RSVP by July 24, 2023 [email protected] or 800-293-6527   Sponsored By

Topgolf Orlando: Fun Family Program

TopGolf Orlando 9295 Universal Blvd., Orlando, Florida

Join us for a Fun Family Program An information conversation about Hemophilia A   Presented By Tim G. Common Factors® Advocate Thursday, August 3, 2023 6:30 PM Topgolf Orlando 9295 Universal Blvd Orlando, FL 32819 This program includes refreshments and Topgolf playing RSVP by July 28, 2023 [email protected] or 800-293-6527 Sponsored By

Orlando Dinner Program: Gene Therapy in Hemophilia A

Season's 52 Restaurant 5096 Big Island Drive, FL, United States

Join us for a Special Dinner Program Gene Therapy in Hemophilia A: Come find out what all the buzz is about—from curiosity to eligibility and beyond Facilitated by Maria E. Torres Esteves, R.Ph., Pharm.D. Account Manager, Gene Therapy BioMarin Pharmaceutical Inc. Thursday, October 12, 2023 6:00PM Season's 52 Restaurant Orlando 7700 W Sand Lake Rd

Read More

Family Retreat Weekend

Camp Boggy Creek 30500 Brantley Branch Rd,, Eustis, FL, United States

Family Retreat Weekend is the perfect way for families to get familiar with Camp Spirit. The whole family is invited to spend a weekend at Camp Spirit so that everyone in the family can get comfortable with all of the fun activities available at Camp Spirit. This way, when it’s time for kids to go

Read More

Tampa Fun Family Program: Zoo Tampa

Zoo Tampa 1101 W. Sligh Ave, Tampa, FL, United States

Join us for a Fun Family Program “Advocating for your child from birth to college: the 411 on IEP and 504s.”  & “Unity through community: getting involved with your local chapter.”  Presented by Mily M-C Saturday, November 11, 2023 11:00 am Zoo Tampa at Lowry Park 1101 W. Sligh Ave, Tampa, FL 33604 Join us

Read More

Gainesville Fun Family Program: Escapology

Escapology 4480 SW 32nd Rd Suite 10, Gainesville, FL, United States

Learn how your HTC and BDFF collaborate, and what they have to offer the community!   November 12, 2023 1:00 PM Lunch is provided. All ages are invited!   Escapology Celebration Pointe 4480 SW 32nd Rd Suite 10 Gainesville, FL 32608   To RSVP, call 800-293-6527 or email [email protected]   Sponsored by:

Miami Program: Fun, Food, and Football!

Miami Lakes Hotel and Golf Club 6842 Main Street, Miami Lakes, FL, United States

Fun, Food, and Football Saturday, November 18, 2023 11:00 am Program time may change. due to the UM Football Schedule, we will keep you posted. Presented by Dr. Kelli A Fraga Physical Therapist University of Miami Miller School of Medicine The program includes a fun program, delicious brunch, and tickets to the game of the

Read More

CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.