Programs
Self-Infusion 101
Here is your chance to join an interactive webinar and learn the basics of self-infusion Friday May 1, 2020 4:oopm Hosted by Leanne Buchanan, RN Hemophilia Outreach Nurse Our Education and Outreach nurse Leanne will present a Self-Infusion 101 class. You will be able to watch all the steps and once life is back to
Exercise and Your Joints Scavenger Hunt
Understand the importance of exercise to maintain joint health. Discuss the various types of exercise, all exercise does not have to be strenuous. Exercise for all age groups. This online program will be led by Janelle Swartz, RN and Nurse Educator. Please RSVP By June 3, 2020 Email: [email protected] Phone: 800-293-6527 Once you we have
Sports, Drugs & Rock N’ Roll
Mikey Berkman received a scholarship from BDFF and plays lacrosse at Syracuse. Listen to his story and how his experiences as a severe hemophilia playing college sports. Please RSVP by June 24, 2020 Email: [email protected] Phone: 800-293-6527 Once you we have your RSVP you will be sent the instructions on how to login the day
BDFF Live Broadcast: Challenge Accepted
Join us for a screening of an original video series inspired by and made for the hemophilia community, followed by an open discussion about the everyday struggles of living with a bleeding disorder. Are you up for the challenge? Topic of this video: Siblings and Bleeding Disorders RSVP to [email protected] for login information. By RSVPing
PUSHING THROUGH WITH POSITIVITY
Exploria Stadium 655 W Church St,, Orlando, FL, United StatesJOIN US FOR A SPECIAL FAMILY DINNER PROGRAM PUSHING THROUGH WITH POSITIVITY Presented By Pete D Common Factors Advocate (Baseball/Basketball) Friday, September 9, 2022 6:15 pm Exploria Stadium 655 W Church St, Orlando, FL 32805 Entrance at Gate A No Strollers - No Bags Parking not included After the program you will see the
Women’s/Girls’ Annual Retreat
Renaissance Hotel St. Augustine 6 W Castillo Dr., Saint Augustine, United StatesJoin us for a special Women's Retreat from June 9-10th (Friday-Saturday) starting at 6:30PM at the historic downtown Renaissance hotel in St. Augustine! Address: 6 W Castillo Dr. Saint Augustine, FL 32804 The Women's Retreat is a special overnight program for women/girls with bleeding disorders and carriers. You will learn the most updated
Patient Dinner Program
Join us for a special dinner program A Discussion on Hem A Product Presented By Shveta Gupta, M.D. Director of Hematology at Orlando Health Thursday, July 27, 2023 6:30 PM The Capital Grille 4200 Conroy Road Orlando, FL 32839 RSVP by July 24, 2023 [email protected] or 800-293-6527 Sponsored By
Topgolf Orlando: Fun Family Program
TopGolf Orlando 9295 Universal Blvd., Orlando, FloridaJoin us for a Fun Family Program An information conversation about Hemophilia A Presented By Tim G. Common Factors® Advocate Thursday, August 3, 2023 6:30 PM Topgolf Orlando 9295 Universal Blvd Orlando, FL 32819 This program includes refreshments and Topgolf playing RSVP by July 28, 2023 [email protected] or 800-293-6527 Sponsored By
Orlando Dinner Program: Gene Therapy in Hemophilia A
Season's 52 Restaurant 5096 Big Island Drive, FL, United StatesJoin us for a Special Dinner Program Gene Therapy in Hemophilia A: Come find out what all the buzz is about—from curiosity to eligibility and beyond Facilitated by Maria E. Torres Esteves, R.Ph., Pharm.D. Account Manager, Gene Therapy BioMarin Pharmaceutical Inc. Thursday, October 12, 2023 6:00PM Season's 52 Restaurant Orlando 7700 W Sand Lake Rd
Family Retreat Weekend
Camp Boggy Creek 30500 Brantley Branch Rd,, Eustis, FL, United StatesFamily Retreat Weekend is the perfect way for families to get familiar with Camp Spirit. The whole family is invited to spend a weekend at Camp Spirit so that everyone in the family can get comfortable with all of the fun activities available at Camp Spirit. This way, when it’s time for kids to go